posted
I've been in treatment for Lyme for nearly a year and Babesia for approximately 3 months. I am looking for a new LLMD for a second opinion as we speak.
I have been very lucky in comparison to many, but I'm not getting better.
On highly symptomatic days, in addition to other symptoms, I've started feeling this vibrating sensation. It generally follows in the hours after an onset of sudden overwhelming bodily exhaustion.
The vibrating is more noticeable in my head (along with a recent onset of ringing in my ears), legs, and arms. But, I do think it is vibrating everywhere.
Wondering, is this something caused by Lyme or Babesia? Something else?
Also wondering if anyone found a way to stop it from happening.
Any comments are greatly appreciated.
Posts: 274 | From United States | Registered: Feb 2012
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
I am supposed to be free of lyme ( this is questionable ) because I went to germany and treated with bionic.
When I started biaxin plaquinil and mepron I felt strong vibration that went worst in treatment of babesia. The vibrations were in my head and in my groins .
Still feel some slightly in the head.
Posts: 1379 | From disable | Registered: Aug 2011
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Repeated sensation of vibrations are caused by neurotoxins that have not left the body yet.
Toxin binders, 4 times a day, are very important.
Metal toxins that are released during die-off also cause this sensation. When bugs die, these toxins are released and they have to be addressed. That is usually followed by fungal die-off also, which needs to be addressed.
As Dr. K. told an audience recently, the Bionic does not reduce the pathogen load -- at most it modulates the immune system. Many followed us to Germany - the majority, except one, are still sick now almost four years later. I am still in touch with some. Lyme Disease is a multi-faceted disease and very different from the Borreliosis as it is known in Germany.
Attention to binders is very important to clear the neurotoxins that make us feel ill. So is optimizing blood flow and biofilm breakers.
I have talked about this in many of my posts.
Take care.
[ 03-12-2012, 03:15 AM: Message edited by: GiGi ]
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
For me the vibrating sensation was definitely bartonella, as bartonella treatment is what has helped it.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Sounds like i need to get back to focusing on detoxing. I'll also look into the possibility of Bartonella.
Thanks. GiGi, I'll try to look up your post history.
This is the first time I've heard of a toxin binder, does anyone have any links or info on what that's for me?
Posts: 274 | From United States | Registered: Feb 2012
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posted
Found some info. Pasting here for reference:
quote:Originally posted by GiGi: Binders and Detox Remedies:
Biosil (Connective tissue and intercellular detox)
Charcoal (Binds toxins, Diarrhea) 2 capsules very 2-3 hours up to 8 total in 24 hours. Capsulres are preferred to tablets. Use only as needed - it will compete for absorption with food and other nutrients. I used to take them at bedtime, with nothing else.
Chlorella (pyrenoidosa or vulgaris)
Apple Pectin
DMG (dimethylglycine) Assists chemical detox
Green Clay/ Calcium Bentonite Living Clay (suffocates larval forms of parasites and toxins in the gut. 1 tsp 2x/d in small amount of juice (berry juice works best). May need to be given with 1 tablespoon of ground flax to prevent constipation.
Microsilica (detox/put in Klinghardt Lyme Cocktail)
Cholestyramine (primarily for mycotoxins). Rx. always without aspartame.
Cholestepure
Maybe tomorrow I will think of a few more. Alternating is always a good thing. Don't take charcoal too often - but it works when you really feel miserable from die-off. Take it when you know meds are causing die-off ---- not days later...
Take care.
Posts: 274 | From United States | Registered: Feb 2012
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posted
This raises another question for me. If I'm doing some proper detoxing (sauna, exercise, coffee enema, lemon water, green juice) do I need to add a binder to the regime?
I'm not great at including all of that in my week, but I notice when I slack on detoxing with a flare up of symptoms.
Just trying to,figure out if the binders do the same thing as the other methods or remove something else so I'd need to add it in.
Thanks!
Posts: 274 | From United States | Registered: Feb 2012
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I would look into treating for parasites. I had internal vibrations for yrs and they would get more intense when I took antiparasitic herbs and salt/c.
Getting rid of parasites was KEY to getting rid of the vibrations for me. Do a search on here for parasites.
Regardless of what may be causing the vibrations, treating for parasites is VERY important in getting well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
The vibrations for me came from a virus. Coxsackie B to be specific. The only thing that has helped me control this is L-lysine which I make sure I take every day. It has worked wonders in controlling the virus.
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I`ve had this. I`m not aware of having Bart, though I do have Babesia
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Trying to pin down the actual culprit for vibrations is difficult, because it is the cumulative effect of the total toxins that stay in the body, are recirculated and reabsorbed. If you hit on and are able to eliminate permanently one specific infection or toxin, that much the better, But usually it is the total sum.
Dr. K. always points out that it is not the individual infection that cause our problems, but strictly the neurotoxins they put out that keep contaminating our body. That makes it so important to constantly stay ahead of the problem by using the binders before we start using the agents for killing and toxin mobilization. It is of little use to take the binders after we have set everything in motion that needs to be eliminated/captured in the small intestine.
All infections are connected, surrounded by, and mingle with the rest of the toxins and when one dies, all toxins are affected and hopefully mobilized for excretion. But you have got to help it. Killing bugs alone does nothing to get rid of the problems, unless you work at it and free your body of the debris that is set in motion with the killing, with physical therapies of any kind, massages, exercise, etc. When doing any of these, we have to think of organ support, binders on board before we start, and after until things can settle down.
The need for binders is always present. If you don't pay attention to them and use them, you will find the same toxins circulating your body again and again and that is why so many people never seem to be able to get well.
we need to do the same when treating parasites. because the system gets flooded with the toxins they held. Usually serious metal toxicity shows up after a parasite kill, and that as sure as day turns to night, is followed with fungal toxin release that feels just as miserable -- unless you prepare with binders several times a day.
Half hour before all meals and at night time.
Killing bugs and almost any therapy or act that mobilizes becomes sort of useless unless you prepare with binders.
Neurotoxins are present for thirty-some years, is what Dr. K. said many times, unless you work with binders.
Take care.
P.D. I sure sound like a broken record --- but believe me you can save yourself a lot of agony by paying attention to this. I remember in my early days when I was still sick calling Dr. K. and complaining how miserable I felt, and the first thing he would say was always: "before you continue, grab a handful of chlorella, and then we can continue talking!" That is when I learned the importance of binders.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Regarding any degree or variation of ringing, buzzing, whirring, hissing, or muddled ears: --------
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
My hands felt like they were on a diesel trunk hood. Once I knocked down my heavy metal load (mercury) it went away and has not returned. I did about 6 DMPS infusions and had about 1/2 my amalgams replaced before the vibrating stopped. I contiued my DMPS for a total of 18 chelations.
I continue to reduce my heavy metal load (mostly lead now) and have recently switched to EDTA chelations. I am getting close to the finish!
All the Best, MattH
Posts: 607 | From Houston Texas | Registered: Mar 2011
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posted
I had this "vibration sensation." I suspect it is related to Lyme attacking the nerves, and is likely associated with a Herxheimer reaction, given the timing I noted. I did not find anything that reliably lessened it, sorry to say. DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
If you work on unloading the neurotoxins, the vibrations will stop. What are neurotoxins? They are all listed here.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
Thanks everyone. I have a lot of learning to do. Once you think you are on the right path, you get thrown for a loop. I just need to take it slow. Tonight I just need to take a break and just have a detox bath, that I can handle. Thinking, I just can't handle right now. Maybe tomorrow!
Posts: 274 | From United States | Registered: Feb 2012
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Although I was ignorant of things to bind toxins in the gut, I did take supplements to try to supply the liver with what it needs to make glutathione.
The awful vibration sensations eventually went away. I sometimes get a mild case, and then I increase the liver support.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
A vibrating sensation in my head was one of the first things (after sudden hearing loss in one ear) that made me know there was something seriously wrong with me. That was the one symptom that did not fit with my diagnosis of Meniere's disease that I had been given.
That vibrating feeling eventually traveled to my extremities (feet and fingertips) and the doctors thought it was anxiety before we knew I had Lyme.
I have been being treated since November 2011 and those vibrations are slightly better now but do act up. I was also recently diagnosed with Rocky Mountain Spotted Fever and Anaplasmosis. On rifampin and doxy and I think there is some improvement.
My LLMD says that those vibrations will go away when the Lyme is treated. I hope she is right. They are annoying! (But not as annoying as the tinnitus!)
Posts: 2387 | From New England | Registered: Aug 2011
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Take more binders. Avoid psyllium because it tends to constipate. Use I Ching Sung (costs pennies) to avoid constipation from certain binders. It's an herbal laxative that works great. Whatever you do, the neurotoxins have to be removed before they find other areas to settle in again and cause more problems. All neurotoxins cause these problems! no matter what name or cause we give them.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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