posted
My fiance just got a positive from Stony Brook. She has been bounced around the "Fibromyalgia rubber room" for about 10 years now. While I am thankful that she finally has an answer, I am miserable to think of what is in store for her.
I have a few questions, I hope some of you may be able to answer.
- Her Dr., (a Rheumie) has told her that she has early stage Lyme. She said that the bands on the test indicate that the infection is recent. I disagreed completely. That statemnet makes no sense to me. I am very curious to know how a doc can tell what stage the disease is in by looking at a test. Am I wrong?
- She has really bad time with ABX. She will be combatting yeast the whole way through. Are there any women that are similar that could tell me what will work best for her?
Right now she has her standard 8 weeks doxy. She will be going to my doc after she runs through the Doxy. I know that she has had this for well over a decade.
She is about to get a Masters degree in May. She is totally stressed right now, and I don't want to make her life harder by bombarding her with all of this Lyme stuff. Would it be wise to let this go until may? A lot of it she already knows from watching me deal with everything. Im happy she won't have to claw her way to a good doc like I did. But I am getting anxiety thinking about what is in store for her.
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"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa."
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Start reading all the links on candida/yeast... buy the best probiotics you can and tell her to stay on a good clean, sugar free diet. (low carb too)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
use excellent quality probiotics-theralac is good but there are others
sbc
nystatin and if necessary diflucan
anti-yeast diet
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I was very sensitive to antibiotics, I have a very low tolerance on most meds so the double lyme dose was hell. I always took a small dose to see how I reacted to the med and then worked my way up depending on tolerance.
I agree with a no sugar/ no simple carbs diet, lots of probiotics (100 billion) a day or more, and using anti yeast medications or natural products as needed for yeast.
I did not follow the diet and didn't really have problems until I took antibiotics that really wipe out the flora (Amoxicillin and Flagyl). Now I have yeast pretty badly.
Luckily since she just had aches and pains, maybe she doesn't have coinfections and this will be a shorter less painful experience for her.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
to me if lyme patients cannot donate blood because the infection is in the blood, then it stands to reason that it could Be in vaginal secretions or semen
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Yeast free, sugar free diet, probiotics, nystatin. She may also want to work with a naturopath to help her balance and support the abx.
Good luck!
Posts: 98 | From Ontario | Registered: Feb 2012
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lymeboy
Unregistered
posted
Jamers, she is dealing with much more than aches and pains. She has just about every symptom and then some.
Thanks everyone for your help. I know that she is going to be treating for a while. She has had Lyme for a good 10 years. So I really want to make sure that she doesn't make things worse for her from treating with abx.
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posted
Clear mailbox when you can- Tried PM -Full
Posts: 249 | From Northern NJ | Registered: Jul 2005
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Lymeboy, I am so sorry to hear this. I would probably suggest to her that she get on 100billion+ probiotics, fast, and to try to incorporate the sugar free, starch free diet (burrascano's).
It may be too much for her given that she has so much school stuff to do. But she will be chasing the yeast beast if she doesn't (and it sucks). Best to her, and you.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Consider buying a rife machine or a PE-1 LED red light photon device.
I use both. The rife machine does work somewhat on Candida, better than the drugs. Selma says that Candida hates photons!
I've been off antibiotics for 2 years and have no need to ever go back on them. The machines are my staple treatment. I use them self-treating, so i don't depend on any doctor.
PS your fiancee is spelled with 2 e's since it's French and feminine. One e fiance is masculine.
PollyPolygonum
Posts: 1226 | From USA | Registered: May 2007
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Having fibro & lyme are not necessarily exclusive of each other. I know alot of folks here think they are the same but in my experience - I don't think that is true.
From what I have read - if a person has a specific genetics - a pathogen or stressor can trigger a kind of detox loop. If the loop is not corrected - it can lead to all kinds of trouble... like the reason why all of the symptoms of Lyme, CFS, fibro, etc. all seem to overlap & why some people get well quickly with not much of an issue & why other have ingering illness.
All of this is theoretical but I do this they are separate & unique. It is possible she had "fibro" for many years from some other cause & then, more recently, acquired Lyme...
Good luck! "Aches & pains" are no simple thing when they linger for decades. They can really drain one's life force.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
iodine is supposed to help with toxins and such, I'm not familiar with lyme, but iodine I think helps candida. Most people are deficient in iodine as well, caution if you have hashimoto's disease this can make it worse. It can also cause detox symptoms, and it is reccommended to talk to your' doctor first, and even more recommended to test your' iodine levels to see where they are at. Take it with a grain of salt and research it first...extensively.
Posts: 27 | From northeastern nevada | Registered: Mar 2012
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posted
I do seagate olive leaf extract and oil of oregano to help prevent (fight) yeast and take vsl#3 or theralac probiotics.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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lymeboy
Unregistered
posted
Thank you Pam, I have been speeling with one "e" and I am pretty sure I knew that. So much for my college degree!
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