LymeNet Flash: ALS and Doxy

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»	LymeNet Flash » Questions and Discussion » Medical Questions » ALS and Doxy

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Author

Topic: ALS and Doxy

2young2dieMom
LymeNet Contributor
Member # 25434

posted

Anyone else with an ALS diagnosis try Doxycycline? I've heard this drug kills ALS patients very quickly.

I took a new version of it, Doryx, for about a month before I started having trouble breathing. I was so scared that my diaphram was being paralyzed already. I'm going for a pulmonary test next week to see if any damage was done.

Too bad, the doryx really seemed to be helping. I had so much more energy and actually an increase in muscle function.

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Dxd ALS 3/2010
Dxd cllinical Lyme 4/2010
Positive for Protomyxzoa but absolutely nothing else in Igenex

Posts: 417 | From central ct | Registered: Apr 2010 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

Up.

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

LymeLogged
Member
Member # 36494

posted

I'm so sorry for your troubles.

I only wanted to add that Doryx is timed release Doxy. Way more espensive than regular Doxy, but it's easier on most peoples stomachs.

I hope you get an answer soon.

Posts: 74 | From NEPA | Registered: Mar 2012 | IP: Logged |

jackie51
Frequent Contributor (1K+ posts)
Member # 14233

posted

Your shortness of breath could be caused by a co-infection.

Posts: 1374 | From Crazy Town | Registered: Dec 2007 | IP: Logged |

lpkayak
Honored Contributor (10K+ posts)
Member # 5230

posted

that is so scaarey and so sad

im taking regular doxy with not trouble

my son got the othere one and it was easy on his stomach

i hope you get answers and get well

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Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004 | IP: Logged |

Sammi
Frequent Contributor (1K+ posts)
Member # 110

posted

I recently started Minocycline. My shortness of breath has increased since starting it, but I have Babesiosis.

Do you have Babesiosis?

Do you think it could be a herx since this happened after you took it for about a month?

Posts: 4682 | Registered: Oct 2000 | IP: Logged |

steve1906
Frequent Contributor (1K+ posts)
Member # 16206

posted

Lyme Disease Found in 100 Percent of 150 ALS Patients>
http://floridadetox.com/lyme-disease-found-in-100-percent-of-150-als-patients

_________________________________________________

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Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008 | IP: Logged |

lyme-o
LymeNet Contributor
Member # 35115

posted

Anyone that I have talked to has never heard of this Florida Detox. I actually got the info from them. But they only treat with mega doses of Vitamin C. And I've heard thats not good with Lyme

Posts: 305 | From United States | Registered: Nov 2011 | IP: Logged |

Caniggia
Member
Member # 30479

posted

HBOT, you got to try that. It's gonna make you feel better.

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My blog about my condition - http://borreliawenttofar.wordpress.com - Diagnosed with cellular activity for Borrelia, Ehrlichia, Chlamydia Pneu. Also have the herpes simplex virus.

Posts: 52 | From Sweden | Registered: Feb 2011 | IP: Logged |

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