nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The GP gave me heparin. He said the pain in my lower legs is phlebitis. Of course my blood work shows hypercoagulation. I am very glad about getting it because I hope it will help me. My leg pain is pretty much gone.
I have been giving myself shots three times a day for three days. I am supposed to do it for ten days and then reevaluate. What do other people do?
I am covered in bruises so the idea of three shots a day for a long time is not something I want to do. I read there is a nasal spray but the doctor and pharmacist have never heard of it. Does anyone know about it so I can transfer who makes it etc?
I am going to see Dr. F the beginning of April and maybe he will know, but I just wanted someone's else's input. I know a lot of LLMDs are giving heparin to help the medication penetrate deeper into the tissue and to oxygenate the body better - so it seems like it is long term.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I'll send you some info. Those bruises get old quick, don't they!?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Yes, they do get old and it has only been three days. The actual shot is not a problem but it burns afterwards and then the bruise come out. Thanks.
How long does it take for the blood to thin? I hope I can feel the sludge move out of my brain!
I also wonder how long I have to do this. The MTHFR 677 mutation I have contributes to it but with treatment for that, maybe it will not remain a problem - except the infections cause it too.
Do you just keep getting your blood checked?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
You probably have to keep doing it until you get rid of all infections. If you have the genetic problem, then it may be for life.
Heparin helped me most with brain fog, pain, and fatigue.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I hope it helps me too.
Here is something I found: "The heparin is continued throughout, and then slightly beyond, the course of anti-microbial treatment. It dissolves the fibrin, making the virus and/or bacteria more vulnerable, thus improving the treatment's effectiveness.
As the heparin removes the fibrin and allows a more effective attack against the pathogens, they reactivate and/or become more active, once again triggering the coagulation process.
Most patients have more abnormalities on the ISAC test one month into treatment than on their initial test, indicating progress. They often must pass through a time of increased illness when the infection is temporarily activated."
Then I found this site: "Heparin (Rx, blood thinner) - _____units ( _____cc) subcutaneously twice a day for 3 months. Then switch to Heparin in lozenge form (1000 units/dose more than you took by injection) and dissolve under your tongue 2-3 times a day. A heparin nose spray (10,000 units per CC with one spray equally 1000 units) is also available from University pharmacy 800-985-8065."
I get so confuse. I found this the other day and totally forgot. My brain is fried. Maybe I could control the hypercoagulation with Boluoke after awhile. Heparin has sulfa and that might not be good for me.
It would be SO NICE to be able to remember things!!!
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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