Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Wondering what it may mean.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Babesia maybe?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
Babesia or just plain ole anemia... or Celiac disease.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Known causes of low red cell count:
Iron deficiency Vitamin B12 deficiency Folic Acid deficiency Lyme Babesia Ehrlichia/Anaplasma (Don't know if other coinfections can also cause anemia) Malabsorption - e.g., Celiac Disease
I've had a low red cell count for a long time. Mine is from malabsorption, possibly Lyme/coinfection (not Babesia), and "chronic disease." My anemia is unresponsive to nutritional support, and also does not respond to red cell stimulating medication.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Very good list. I would also add bartonella to the list as well and intestinal parasites such as giardia and ascaris.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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blinkie
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Member # 14470
posted
Bea-your hubby had this with low hemoglobin and hemocrit, right? I thought his went up after a found of factive but then nose-dived again.
I also have low RBC, hemocrit and hemoglobin. Persistently...I know it's infection, not sure which one...I've treated most of them very aggressively.
Posts: 1104 | From N.California | Registered: Jan 2008
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Wow, I didn't know all of those could do that (fascinating). I didn't even think of celiac (not eating any gluten though).
Blinkie, I have the low hemocrit and hemoglobin too.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Also depends what you are taking right now. When I was on clindamycin/qualaquin pulse, my rbc was low. When I tested two weeks later, it was back up.
Posts: 447 | From Vermont | Registered: Jan 2011
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Razzle
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Member # 30398
posted
There are some others I also forgot to add to the list:
One other oddity that was seen with me in the hospital was, when they took blood through my PICC line, the hematocrit & hemoglobin would be lower than when they took blood through venipuncture.
Blood draw through PICC was at the same time as blood draw through venipuncture. The hospital re-ran the tests numerous times because they couldn't understand how the numbers could be so different! The doctors didn't have an explanation either...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Catgirl
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Member # 31149
posted
I had a low count even when I went undiagnosed with lyme. She never said anything about it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Hubby's RBC, hematocrit and hemoglobin were all normal for probably the first 8 years of his illness -- but most of that time he was not treated very aggressively.
In 2009 I think it was he started having issues with these numbers. RBC was somewhere between 4.0 and 4.5 -- basically borderline normal or slightly low. This was while hubby was on a 5 drug combo to treat babs, bart and lyme all. The doses were moderately aggressive.
Then after a year or so when hubby switched from levaquin to factive his RBC went to normal and stayed there for about 6 months.
Then we started treating babs aggressively at the beginning of 2011 and hubby had the 5 high fevers of over 101 with hospitalizations. That is when the ehrlichia/anaplasma started showing up. RBC and hemoglobin and hematocrit bounced around a little but mostly stayed low all of 2011. This was the first time hubby ever had issues with low WBC.
Most recently hubby's RBC and WBC were almost back to normal finally while on the sida acuta and ivermectin and all the other babs meds.
Hubby has been off all antibiotics, antimalarials, antiparasitics and killing herbs for 31 days today. His RBC and WBC both have started falling again -- OFF of all meds.
So we are pretty sure he still has an infection -- or multiple infections. Hope the next round of tests can help direct further treatment.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Does anyone have also a low platellete count?
My RBC is normal but platellets have been going down in the last few years.
Posts: 247 | From Ca | Registered: Feb 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
My platelet count drops cyclically about once every 2-3 weeks. I suspect Lyme to be at least partially responsible.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Bea-this is all so frustrating, isn't it? Mine have been chronically low since my tick bite. Like your hubby...borderline normal to low.
My LLMD says it goes with chronic infection (of multiple possiblities)...I think it's specific to one of these buggers.
Posts: 1104 | From N.California | Registered: Jan 2008
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
For me was babesia.
I ended up after the car accident with blood transfusion .
Only combo Biaxin , plaquinil , Mepron and cryptolepsis brought the numbers back up to normal range .
I confirmed the diagnose as my neutrophils were high after the blood transfusion .I had also all symtoms of babesia.
Posts: 1379 | From disable | Registered: Aug 2011
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