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» LymeNet Flash » Questions and Discussion » Medical Questions » Malarone experiences...what to expect?

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Author Topic: Malarone experiences...what to expect?
undiagnosed22
LymeNet Contributor
Member # 28152

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Hi everyone,

I will now be pulsing flagyl. I also am on Rocephin and zith(pulsed Zith) and will be starting Malarone.im on Plaquenil too.

I am on he Rocephin Zith and plaq already and have done flagyl in the past. I was going to start the Malarone tomorrow.i have talked to 2 people who have been on malArone and reported it was easy to tolerate but would love to hear from more of you and your experiences. what to expect? Did you make gains while on it?
I am feeling pretty crappy brain wise soap very interested in your responses.

Thanks !!!!

Posts: 200 | From Boston | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
WendyK
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My only experience with malarone was purely coincidental, and I think I'm going to ask my llmd for it again! I went on a trip to the Amazon last year, and was put on preventative malarone for malaria - I felt better than I had in a long time after that trip, and thought it was just an effect of being on vacation. Now I'm thinking there was a lot more to it! I had no problems whatsoever with it, and I'm allergic to a lot of stuff.

--------------------
Wendy

Posts: 253 | From Near Albany, NY | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Sammi
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Malarone did nothing for me, but it has helped some people. Everyone is different.

I hope it helps you!

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ktkdommer
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How much malarone are you prescribed?
My oldest son is slowing ramping up from 2 to 6 a day. We are trying to avoid severe herxing while he is in college.

Both my boys herxed more on artemesia than on malarone or mepron.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
undiagnosed22
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I am tAking 4 pills the first day and then only 1 a day after that
. It is low but I only weigh 95.

Anyone else?

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gingerteacup
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I take Malarone, can only tolerate one a day right now. I am supposed to take two a day but that is too much pain wise. Not sure if I am herxing or having a hard time with the med itself since I am chemically sensitive, but I know the pain is definitely from the malarone. I am betting I am herxing though. It causes upper and lower back pain, chest pain, neck pain, anxiety, and just a yukky feeling overall. I hate it, but have to hit babs somehow.
Posts: 29 | From Northeast | Registered: Feb 2012  |  IP: Logged | Report this post to a Moderator
   

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