Thank you so much-
Posts: 61 | From NC | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My take:
They can't wrap their heads around someone having chronic borreliosis. Plus, they can't imagine someone could have PV19 and chronic lyme.
They don't understand how the IgG and IgM results work in lyme disease - or the limits to their testing methods.
They are trying to say the lyme results are false, I think. They don't know enough about lyme to even know they don't know enough.
When they consider other infections, they are still looking for simple answers, not sets of coinfections.
Now, I can't be sure that is what they are saying - but this is what I wonder about that article.
Just one part that puzzle me in the excerpt below that just makes no sense to me - there is no such thing as immunity to Borrelia.
No one is immune, even those who got the vaccine a few years ago (some even contracted lyme from that - but as for immunity, we just don't know all there is yet to know about how that would or would not work, no certainty.):
Can't wait to hear from others willing to take the time to make sense of it all.....
Posts: 61 | From NC | Registered: Aug 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Keebler has understood it well, I think. This seems to be yet another study that wants us to assume false positives are the problem, instead of false negatives. And they don't tell us if the patients had any other symptoms besides arthritis.
Looking for antibodies is fraught with problems in lyme.
Do you have a special interest in this particular subject?
Posts: 2888 | From USA | Registered: Mar 2004
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Yes- as I had a severe case of Parvo- severe ongoing symptoms- and tick bites not long after- most symptoms of chronic Parvo and Lyme parallel each other- and I am still working on accepting that my bands so far are indeed Lyme/now late stage- As, through all of my research- the bands I am testing for can and do react when other things are present and Elisa as well.
Thinking of paying for another Igenex in a week if a month of doxy may do it- I have heard it could take a year of doxy to bring them out of hiding-
Lots of great advice during the journey from others on here- I have heeded every word. Yet, still trying to truly get to the bottom for healing, peace of mind, long term planning, work abilities, financial/disability, etc...... same for most... Posts: 61 | From NC | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lunaangel, you say: "if a month of doxy may do it"
A month of doxy is not enough to begin to address lyme.
You also say: "have heard it could take a year of doxy to bring them out of hiding-"
No, doxy sends spirochetes INTO hiding. It can cause spirochetes to go into cyst form in just 20 minutes after the first dose. Tindamax or similar Rx is needed to address the cyst form.
You probably do not need repeat lyme tests. I would not act on the basis of that one article. They seem to not grasp borrelia at all.
Regarding possible cross-reactivity - be very careful about IDSA authors. They would like to say if the sky is blue today that will cause cross-reactivity and false positives.
Now, clearly there is more than just lyme and Parvovirus may be the most acute now but, usually there are many other infections that co-exit with lyme.
And, if by chance, lyme may not be at the forefront, a good ILADS LLMD can help sort that out -
- because they will have more information. Most ILADS' researchers and doctors excel in the detective work whereas the IDSA doctors just give up because it's just so very complex.
You need an ILADS-educated lyme literate doctor who is well versed in all matters discussed in the thread "Diagnosing . . . " - see next post: -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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