I have been on doxy/cipro or mino/cipro for some time, my burning pain, muscle twitching and shortness of breath is much improved.
I also have been treating parasites as I discovered in Feb I have a bad case of parasites, mostly with humaworm and a few rx's.
Last week I took ivermectin (paste) and had a terrible reaction. very dizzy, scary vertigo stuff and chest pain. After 3 days of being in bed it subsided, and I began to feel better.
Then 2 days after it cleared up I began having the vertigo again, I am only taking doxy/cipro. I finished the humaworm and was about to try parastroy.
I have been waking up drenched in sweat several times each night, also the vertigo is making me wonder if I have babesia emerging, triggered from the ivermectin??
I did try malarone last summer did have some dizziness and could not work up to the therapeutic dose.
Does this sound like babesia. I just received cryptolisis (spell?) what is a good and low staring dose?
thank you for reading
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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nefferdun
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posted
It does sound like babesia. Probably a giant herx. I am still learning about ivermectin myself so I am no expert on what all it treats. Most people take it for FL1953 but some say they are taking it for Bb and others for babesia.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Not something else I have to worry about? It seems impossible to get it all straight
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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annxyzz
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Frankly , there is so much confusion over every damn thing related to this disease . Almost all attempts to improve are guesswork as is DX , IMO .
It seems like everyone herxes forver, plateaus, but rarely gets well - no matter what . It seems like there is never a clear answer . We do know we have chronic infection(s) . Everything else is speculation.
I am herxing hard on ivermectin and doxy . I have been off ABX a long time , but can see that lyme is still a problem with the doxy die off reaction. I also herx on ivermectin .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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kelmo
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posted
I can tell you that my daughter had a day last week...a WHOLE DAY...where she felt absolutely normal.
It gave us hope.
Posts: 2903 | From AZ | Registered: Feb 2006
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nefferdun
Frequent Contributor (1K+ posts)
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posted
These are the symptoms of FL1953:
Symptoms of FL1953 are similar to Babesia. Symptoms include cold hands and feet, headache behind the eyes, scalp sores, sinus congestion, notable teeth pain, heart palpitations,
shortness of breath, dry cough, abdominal pain, nausea, IBS, insomnia, sweats, bladder pain, muscle pain, twitching, profound fatigue, exercise intolerance, insomnia, brain fog, poor balance, anxiety, OCD, irritability, hypercoagulation. Off and on hoarseness can be a symptom of FL1953.T
� Out of 103 patients tested for FL1953 with PCR, 78 were positive.
FL1953 herxes can be massive body pain, headache, anxiety, paranoia, hallucination, irritability, twitching, fatigue, joint pain, tooth pain, congestion or sinus pressure, abdominal pain, bladder pain, and increased hypercoagulability.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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These are my symptoms: Cold hands and feet, shortness of breath, difficulty sleeping, muscle pain, joint pain, extreme fatigue, exercise intolerance, brain fog, poor balance, irritability/anxiety, hypercoagulation, hoarseness, twitching and chills, dry irritated eyes (don't see that one in there) and nasal congestion as though I have allergies.
The fatigue and breathlessness is constant but the rest comes and goes. It sure sound like FL1953 but it also sounds like babesia and Bb. As annxyzz says, who the heck knows! You just use one thing and then another and see what happens.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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glm1111
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posted
Ivermectin is specific for targeting parasites/worms. Just because a doctor thinks it may hit another infection doesn't make it so. Parasite dieoff can get rough.
Shortness of breath can be caused by lungworm dieoff, and the other symptoms can be specific for other parasites.
Not saying it can't go after other infections because I did get rid of babs and bart with antiparasitic herbs and salt/c.
Dr. K. says in order to get rid of babs and other infections related to Lyme, you have to treat for G.I. parasites first.
My experience is that antiparasitics first target parasites/worms. Kind of like peeling an onion.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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I have not taken Ivermectin in 8 days but the symptoms triggered by it (vertigo) continue.
I guess it can't be a drug reaction? I am assuming a drug reaction would have subsided by now.
So would you guys start taking it again? even if I am feeling horrible?
Posts: 199 | From Niagara Falls | Registered: Dec 2009
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nefferdun
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I don't know but it seems it might be best to do some babesia drugs first. What separates FL1953 from babesia for me, is with babesia I had hot flashes, dizziness (vertigo and ataxia) and cramps in my large muscles; the thighs, back and buttucks. Do you have any of that or sweating?
Now I feel spaced and my balance is off from the minocycline I just started but I do not have the dizziness I had with babesia. That was the kind where I had to hold the wall to keep from falling.
I do not feel herbs do anything for babesia but create resistance unless you take them with drugs - then they boost each other. So I would try malarone or mepron with zithro if I were you.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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kelmo
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posted
minocycline did that to my daughter at first. It's a good drug for crossing the blood brain barrier. It really helped clear up most of her brain fog.
Posts: 2903 | From AZ | Registered: Feb 2006
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