LymeNet Flash: POTS - help with heart rate and adrenaline surges

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » POTS - help with heart rate and adrenaline surges

UBBFriend: Email this page to someone!

Author

Topic: POTS - help with heart rate and adrenaline surges

opus2828
LymeNet Contributor
Member # 15407

posted

If you have POTS, how do you get your heart rate to not go so high when getting up?

Also, how do you stop adrenaline surges - they keep waking me up all night.

I have tried salt, water, eating well - nothing is helping at all. the doc didn't want to give meds yet.

It is impossible to be on my feet for more than a minute.

I've only had these symptoms for 2 weeks and am about ready to give up.

I am trying acupuncture tomorrow.

Please help if you can.

Thanks.

Posts: 581 | From CT | Registered: May 2008 | IP: Logged |

outerspace1226
LymeNet Contributor
Member # 34274

posted

they are 2 separate issues for me. hydrocortisone .2 pills helped my adrenaline. nothing has helped pots...beta blockers help a little.

Posts: 147 | From youngstown | Registered: Oct 2011 | IP: Logged |

sk8ter
LymeNet Contributor
Member # 8671

posted

coconut water balances my potassium drops which can start the cascade....i get the organic young coconut water...it really helps and one of the POTS dr back east suggested it on a website. It is God's natural electrolyte balancer

Posts: 871 | From orange county, ca. | Registered: Jan 2006 | IP: Logged |

ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

posted

My son takes florinef and midodrine for POTS. We tried more natural stuff and nothing worked. We are hopeful that POTS will go away once Lyme is fully treated. Maybe you can think of it as a temporary fix by going on prescriptions. They do help. A regular heart rate keeps him from fatiguing also.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010 | IP: Logged |

Life+Lyme
LymeNet Contributor
Member # 33568

posted

I have tried almost every prescription med for POTS. I didn't see any relief from them, and I just felt worse because of side-effects.

For me, the thing that has worked the best, it just learning my body. I stand a certain way, get up a certain way, ect. Sometimes when I start blacking out, I have learned just to lean up against something, close my eyes, and take deep breaths.

Staying hydrated is also very important.

--------------------
You name it, I've got it.
Full-time medical anomaly.

Posts: 432 | From Southeast | Registered: Aug 2011 | IP: Logged |

opus2828
LymeNet Contributor
Member # 15407

posted

Thanks. Anyone else have any ideas?

Posts: 581 | From CT | Registered: May 2008 | IP: Logged |

lululymemom
Frequent Contributor (1K+ posts)
Member # 26405

posted

I use Magnesium Citrate to control heart issues. I used to have those early morning heart surges as well. The magnesium got me off beta blockers. My daughter had POTS and found that treating babesia and using Cryptolepis helped her the most.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2027 | From British Columbia | Registered: Jun 2010 | IP: Logged |

lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

posted

Benadryl helps me with the Anxiety more then any Rx drug on the market including Xanax.

Beta Blockers will reduce the heart rate and depending on which one you use, can help with the Adrenaline surges.

Keep in mind, there are Alpha and Beta Receptors antagonist drug. Using a drug that targets both is ideal.

Obviously, present this to your Dr. Coreg, Acebutolol are good drugs. Clonidine 0.1mg is also a good choice, but a combo approach is best IMHO.

See if the Benadryl helps and PM me if you wish.

Gary

Posts: 1227 | From District of Columbia | Registered: Mar 2009 | IP: Logged |

0ldman
LymeNet Contributor
Member # 22101

posted

Beta blockers slowed my heart rate and made it impossible to do anything heavy when I was feeling better.

They served their purpose, but it isn't a long term fix. What seemed to sort mine out more than anything was light activity to build my heart back up, Gatorade, vitamins and plenty of water.

Any time I get the slightest bit out of whack, dehydrated, electrolyte imbalance, eat the wrong food too many days in a row, my ticker starts acting up.

--------------------
Ticks suck.

Posts: 140 | From Alabama | Registered: Aug 2009 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/