nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I have not been able to sleep and just connected the dots about what is happening. I am pretty sure I have thyroiditis. I have had it before and it is miserable.
Over the last few months I have had a low grade temperature. It is usually about 97 degrees but it has been around 99. I had outbursts of anxiety and rage after doing a round of DMSA which I will never touch again.
I eat like a horse and have lost ten pounds. When I wake up in the middle of the night and can't go back to sleep, I start cooking! Notice all my recipes in General?
I have several bowel movements a day. My eyes are dry and irritated, more so than usual. Worst thing is I cannot sleep no matter how exhausted I am. Yesterday I went to the store and when I came out I had left the car running in the parking lot for half an hour. I have never done that before.
So I researched it and I think it is "silent thyroiditis". I had it after my daughter was born. I have thyroid nodules. I tested positive for thyroid antibodies in 2010. I have been on Armour thyroid for years. Sometimes it can just go from under to over active like this.
I thought it was the drugs but now I am almost certain this is the cause. There is no treatment because it is auto immune. I am starting LDN again. I couldn't tolerate it before because it caused frequent irritation. I was going to the bathroom every hour even in the night. Since I am up all night anyway, I guess that does not matter now.
A big irony is the vet came day before yesterday and my old pony has hyperactive thyroid too. Poor poor little girl. The vet won't do anything. I think maybe I should give her LDN too but I will see how it goes with me first.
Has anyone else had this happen?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Get a TPO antibody test. If that is out of range you could have an autoimmune thyroid disease. Forget what you T3 and T4s say. One can have thyroid issues with those numbers still normal.
Posts: 267 | From South | Registered: Oct 2011
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nefferdun
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posted
Thanks lost. I already tested positive for antibodies. I was wondering if I should even go to the doctor, they can be such idiots. But I need something to get me to sleep so if I go I will ask for that test. I am exhausted.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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posted
I started LDN yesterday. My fever broke for the first time in months. I ate normally in the afternoon, evening, and I slept last night. Maybe just a coincidence but I am staying on it this time. That was horrible.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I woke up with this one day in 2/2006. I remember it vividly because it is the craziest thing to have. I had it for 3 solid weeks, then it began to sputter out, and that was it.
Ate like crazy, lost weight, walked in circles, increased heart rate. TPO antibodies were up to 80, but then normalized back into the 30s. Allegedly had nodules on thyroid, they disappeared quickly.
In retrospect, this was the first sign my HPA axis was off. After this event about a month later I remember losing a lot of hair. I chased a thyroid dx for 5 years...it would always normalize on its own. Finally a Lyme dx in 2011 that seemed to help put these puzzle pieces together.
Posts: 478 | From Third Coast | Registered: Feb 2011
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tricia386
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posted
I had this happen right before my lyme exploded. One of the worst experiences of my life. It is definately scary. Stay on the LDN its great. You might have Hashimoto Thyroid and autoaummine disease.
If you do have it. It can swing back and fourth from HYPO to HYPER its pretty crazy. LDN is geat for Hashimoto. However, you may need to decrease your armour thyroid quickly. It seems to help normalize the thyroid and you will need less meds, other wise you will go hyper again.
Let me know if you have any questions. As I chased the Thyroid and Adernal Fatigue for 1 year prior to DX of lyme.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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nefferdun
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Thank you tricia and koo. I did not know that hashimoto could become hyper. That sounds exactly like what is happening to me. I tested positive for antibodies in 2010. I believe this is something I have had a long time, before lyme, and it may have been triggered to go hyper by chloroquine which I read can cause hyperthroidism in rare instances.
The doctors always told me it is impossible for your thyroid to go from hypo to hyper. I read that can happen when you get silent thyroiditis which often occurs 3 to 6 months after having a baby - my first episode 28 years ago.
After the thyroiditis, it can go hypo and that is what happened to me, but like you describe, I felt it would go hyper again now and then. I am so glad I am not the only person who has experienced this. Another one of those "all in your mind" maladies.
I am sleeping about 6 hours a night. For several days, it was only 3. I am debating if I should bother with going to a doctor or just wait it out. There is nothing they know to do anyway and I just don't want to explain the lyme infections I have been treating to be told I don't have it bla bla.
I have been off the armour since Thrusday -about 4 days. I feel like I am crashing with fatigue but that is better than feeling like I was ready to explode with tension. It is like being on a run away train.
When I had this after my daughter was born, I literally collapsed but did not sleep. I would get up in the middle of the night, make home made ice cream (with real cream) and eat the entire thing. I never stopped eating and I weighed 132 pounds. I am 5"9". I got through it with meditation and reciting the 33 Psalm over and over. It lasted 6 months. I also lost hearing and damaged my other ear causing vertigo.
It is very scary. I also get stabbing pains in one knee. Is that related or lyme?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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Member # 20157
posted
I did a search and I am certain I have Hashimoto's. You guys are life savers. I suffered almost all of my life, and I never was diagnosed! It is genetically linked with celiac disease and type one diabetes (which my son has).
I am mixing LDN from full strength naltrexone I bought online, for the dog actually. I had swelling in my eyes last time I tried to take it, and frequent urination. So far no problems with this so maybe it was the filler I was reacting to. Even if I do wake up a lot to urinate for awhile, at lease I will be sleeping better.
Another piece to my puzzle. It can also cause stabbing pain. Good grief. If I was not so tired I would be jumping up and down for joy to find this out.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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tricia386
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posted
Also, you might want to look into selnium. That is a great supplement for Hashimoto Antibodies. Also, L-carnitine is good for the thyroid as well.
The only thing I would be careful about during a "hyper state" is your blood pressure and your heart rate. The LDN should help.
Can you notice if your thyroid area is swollen??
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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nefferdun
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Yes, I have had nodules for many years. That is why I was first given thyroid med - to try to keep the nodules from growing or becoming cancerous.
I received massive amounts of radiation when I was child to shrink my adenoids - something they did way back when. It was the equivalent of 20 thousand dental x rays and can cause thyroid cancer and brain tumors.
I am feeling better. I will get some selenium. I take ALCAR.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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nefferdun
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Still not sleeping well. I wake up between 3 and 4 AM and have a lot of trouble getting back to sleep. Usually I can't go back to sleep. So tired! I hate to get sleeping pills. I take LDN in the morning so it doesn't worsen things.
The chloroquine stays in your body 8 weeks! If that is what provoked this attack, I have a long way to go before I get back to be able to sleep.
I am not on any drugs at all, not even armour, which I quit 6 days ago. My pain is completely gone. The babesia symptoms went completely away with chloroquine. I can climb a flight of stars without the breathlessness, even though I am physically exhausted from lack of sleep. No headaches, not muscle twitching. Just the insomnia.
I don't trust that the symptoms are permanently erased. I am just hoping the LDN will help me get into remission. Knowing my thyroid is partly to blame for all of this helps.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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AuntyLynn
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Member # 35938
posted
Hi. I am Hyper, and without health insurance, so I've been trying to control this thing "naturally."
Apparently hyperthyroidism can be exacerbated by deficiencies of copper, magnesium, and selenium. (Copper is especially suspect because so many more women than men suffer with hyper - and we burn through copper during our reproductive years.)
There's a great website put up by a man named John who managed to control his own Hyperthyroidism by self experimentation. Perhaps you can figure out which deficiency you are most likely to suffer from, by perusing his pages here:
posted
Neffer, I have not been on here so I'm just reading your post about sleeping issues. When the thyroid is off.. That can be enough to cause sleep issues right there. Do you take meds?
Posts: 267 | From South | Registered: Oct 2011
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posted
Please excuse my ignorance, what is LDN? You said you had rage and anxiety after taking DMSA, was that immediately before the hyperthyroidism took off? That would make sense, DMSA might mobilize mercury from different areas of the body, or even from dental amalgams, if you have any. the mercury would then cause mischief elsewhere by displacing other metallic micronutrients of similar charge from key proteins and enzymes.
Posts: 60 | From Maine | Registered: Jan 2012
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Ignore my ? re:LDN, figured it out.
Posts: 60 | From Maine | Registered: Jan 2012
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nefferdun
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Member # 20157
posted
The LDN is helping. I am only on 2 mg but my thyroid has calmed down. I still have trouble sleeping but it is better. I am off all thyroid medication.
I sent the test in yesterday for protomyxzoa which also causes insomnia so that is probably contributing to the problem. I have a lot of those symptoms
I was running a low grade fever for months so I think my thyroid was getting hyper for a long time. Then it just went haywire. It could have been a combination of things that caused it. I am just glad it has settled back down.
LDN, in case you did not find info on it docluddite, is Low Dose Naltrexone. It halts auto immune attacks. It increases endorphins and stimulates production of regulatory T cells up to 300%. It is also good for cancer, depression, pain relief and to boost the immune system for fighting infections.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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AuntyLynn
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OK now I am trying to figure out what LDN is - and you're mixing it from naltrexone?
I'm clueless.
But if it slows your thyroid, I'm interested.
I just found out this week-end that L-Carnitine has a protective effect against T-4. I'm starting that tomorrow.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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AuntyLynn
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Member # 35938
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OK now I am trying to figure out what LDN is - and you're mixing it from naltrexone?
I'm clueless.
But if it slows your thyroid, I'm interested.
I just found out this week-end that L-Carnitine has a protective effect against T-4. I'm starting that tomorrow.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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