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I started a higher dose of Malerone last night (adding to the rocephin). Middle of the night I got bad chills, then vomited very hard and discovered that I had a fever of 102.5.
Can this be part of a die-off reaction, a reaction to the meds or (even though it feels fine)should I be super concerned about a picc infection? I also have a raging lower back of the head headache, that makes me feel nauseous when I move too much.
Fever went down to 100.5 with tylenol, but I think its starting to creep back up.
Has anyone experienced something like this? I'll be calling the Dr. as soon as they open, but thought I'd post here in the meantime...
-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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Please monitor your temperature closely. It is good that the tylenol brought it down (advil would really be a better choice though). Anything above 100 or 100.5 is cause for concern in an adult.
As you know there are several possibilities.
Babesia treatment/die-off or PICC line infection are the 2 most obvious assumptions.
But then there is also the possibility that you have another tickborne infection which has come out of hiding and is not responsive to the antibiotics/antimalarials you are taking.
You did not mention it -- are you taking flagyl or tindamax?
If you have no history of fevers with your illness then that somewhat complicates diagnosis.
Hubby ran a fever of 99 to 100.5 pretty much daily last summer for 5 months -- but had 5 high fever spikes that required ER visits and hospitalizations. He had been sick for over 10 years at the time and in treatment for about 7 years.
He ended up having positive tests for ehrlichia and anaplasma (different strains), RMSF and even typhus. Still not exactly sure which of those he has/had. Also tested posiitve 3 times for serratia marcescens (a supposed PICC line infection). But the bacteria was never found in the line and it was replaced 2 different times.
Have you ever been treated with doxycyline?
Hubby's fevers went away for about 7 months but have recently come back. And he has not had a PICC line for the last 7 months.
The meds that worked last summer on his fever (doxycycline and levaquin added to his aggressive babesia protocol) are not working this time so he is very very frustrated.
Please let us know how you are doing.
Bea Seibert
P.S. The nausea and vomiting are normal body reactions to a high fever unfortunately. And they do not always respond well to nausea meds if the fever is due to an infection.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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I've been monitoring very closely - it has stayed at my usual 100.5 all day now, without meds. (I took tylenol because I think the advil I took at 12:30am is what threw me over the edge last night)
Dr. thinks stomach virus that is going around, and it does seem to be following that pattern so far. I have not been able to fathom anything but ginger ale so far though, so I haven't taken my meds or supplements yet today either. Dr. said I can ease back into the Malerone, and we'll see if that's actually the cause then.
Chest and picc area feel fine, whew. They had enough trouble finding a vein that would work for it, that I really don't want them to have to pull it, since I'm not sure I'd be able to get another, and the Rocephin seems to be making the biggest impact so far.
I was on tindamax for a while in Feb/March with my oral cocktail, but I had plateau'd on those and switched over to the Rocephin in April. Just recently added the Malerone. Up until the Rocephin, I had not experienced fevers with any of this, then I started getting the low-grade one daily.
I was treated with the typical doxy back in 2008, and another round last October, before I started seeing my llmd.
So that's where I sit - waiting to be able to actually eat something, and then take my meds and see what happens... I'm thinking another nap right now since a friend has taken the kids to their TKD lessons for a while. Thank goodness.
-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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This is very interesting. I guess we'll see when I am able to take the next dose (I'm going to start with only half though!).
Just now able to finally try some rice - I don't think I can handle the malerone yet, regardless of whether its the cause of the fever or not. I will probably try it in the morning. I'm keeping up with the Rocephin though - at least I don't have to swallow that!
-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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