-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Great news!
How long have you been on that treatment for?
Keep us informed.
Posts: 2094 | From NY | Registered: Oct 2011
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I've been ramping up this program over the last two weeks. I just added the Ivermectin today. If you can't tell (sarcasm), Babesia is my problem infection.
I started the Bicillin shots two weeks ago. Big herxes after the first couple injections. Now, I just feel good.
I tolerate this amount of medication because my pathogen loads are much lower now. I never could have done this in the early years.
I've been on ILADS-style oral antibiotics for the last four years. I entered year five of treatment at the end of April.
I do expect more herxing. But right now, I feel better than I've felt in decades. It's kind of weird, to tell you the truth. I lost my baseline for good health many, many years ago. Who knows how healthy people feel?
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Yay!!! Great to hear!!!
So glad things are improving!!!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
After feeling like crap for years, believe me, you know 'normal' when you feel it - so CONGRATS!!!
You're on your way!!!! Feeling 'normal' should start to make appearances more often. And if you have a bad day, or a few crappy hours, don't freak and think 'OMG I'm relapsing'. Normal will return - it's just a little bit of a roller coaster sometimes, even at the end.
Diflucan and Flagyl were instrumental in getting me well.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
OMygosh, such great news BoxerMom!! We spoke quite awhile back, not sure if you remember, I live in your area and think my daughter and I are seeing the same doc?
Couldn't be happier for you!!!!
Posts: 219 | From pacific nw | Registered: Jun 2009
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I'm going to send you a PM and ask about your dose of Ivermectin, as I just started it too.
Posts: 964 | From san diego | Registered: Oct 2009
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
This makes me happy:) Excited for you!!!
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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posted
It excites me to see when people finally reap the rewards of perseverance. It gives me hope to never quit.
Posts: 538 | From kentucky | Registered: Nov 2011
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Yaaaaay!!!!!
Doing the happy dance for ya!
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Wow, that's fantastic!
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Yeah !!!! Love it ! So happy for you !
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Great news. Posts: 1728 | From USA | Registered: May 2011
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You've been our inspiration and mentor through this journey!
You deserve to be healthy and feel normal. I am so happy. Yeah!!!!
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Keep up the good work. Wishing you TOTAL healing Posts: 2238 | From East Coast | Registered: Jul 2010
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Best news I've heard all decade;) Can you tell us in any way your dosages (or PM me)? I am on Bicilin although my doc seems to use much less than most LLMDs, will be adding back the Ivermectin and Mepron (I had to stop these due to my Strep flair). I'd like to be on Zith, but I have gotten Tinnitis so I'm nervous about this drug.
If you just started the Ivermectin.... hold on before you say you are feeling great. My guess is you will have some type of effect from the Ivermectin.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
Don't let feeling good make you forget about detoxing!!! I did that and had a few bad days to remind me.
So happy to hear you're feeling good, though. Posts: 161 | From vancouver island | Registered: Feb 2012
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Lies!! D@mn lies!!! Told by me, no less!
I herx each time I add or switch a med. In between herxes, I feel pretty good. Thanks for the detox reminder. I do feel a ton better when I exercise and detox.
Still on Bicillin, Mepron, Zith, Ivermectin. Switched out Diflucan for Bactrim DS. Huge herx that day.
Bicillin is 3x/wk. Mepron/Zith/Bactrim 2x/day. Ivermectin every third day.
This is a good program for me. My Babs' symptoms are reducing quickly. No more evening fevers or sweats. No chills. No cough. No twitching. (Ivermectin is the best for that.)
No neck/back pain. Some jaw/teeth pain. Leg pain much reduced.
Fatigue comes and goes. No insomnia.
My hair is still falling out. But that's what hats are for.
No headaches unless I'm herxing. Then it's perma-headache til I'm done.
Herxes are intense, but short. I still have no discernible flare cycle.
Still have moderate titers for Chlam. Pneu, Myco. Pneu, HHV6, EBV.
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by BoxerMom: Who knows how healthy people feel?
Maybe I get to find out.
Congratulations! I hope the herxes stay small and that you keep improving!
That is exactly the truth about not knowing what healthy feels like. I beat the infections, and thought I felt 100%. Then as my body actually got healthy, not *just* infection-free, I kept feeling better and better.
People ask, "How can you say you're 100% and say you're feeling better and better?" The statement just doesn't make sense until you get to that point.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Yay, BoxerMom!!
Keep fighting!! You give hope to all of us!!!
So happy for you!!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Just noticed you did a switch to Bactrim...What part to you think ,if any , on this breakthrough???
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I saw this before, but this is sooo great!! Those of us still slogging away need to hear news like this. I know that you are not saying that you are done, but still . . . To be able to say that you feel normal a lot, wow, at this point it is inconceivable to me, sadly.
Posts: 3792 | From around | Registered: Mar 2008
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
so happy for you Boxermom! I hope it continues to get better and better for you. Keep us posted.
Posts: 2387 | From New England | Registered: Aug 2011
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posted
How wonderful!!! It's funny - I think about the same thing all the time - I don't remember what "normal" feels like any more!
Posts: 33 | From Michigan | Registered: May 2012
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posted
congrats on your success! I just love hearing success stories. I'm doing very well, too.
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Hope your still doing well boxer mom!
Posts: 1728 | From USA | Registered: May 2011
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Me too !! Doing great !
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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