posted
After a few years on antibiotics went off them this month to give this a shot in the dark.
Wasn't gaining much on abx anymore. Was treating for chronic C. Pneumonia. But doc was OK with doubling Doxy dose. Made me feel better and in case of Lyme. 400 mg. Doxy twice a day, 250 mg. Azith on M-W-F plus 5 days a month 500 mg. Tindamax twice a day.
Presently I am up to 2 drops each (15 min apart) twice a day on the Banderol & Samento drops from Nutramedix.
Amazing reactions really. First drop hit hard in both brain & body, etc. Focus short, memory worse, aches & pains, etc. Feeling a bit lost ...
My left leg and foot have had neuropathy for several years. More recently right foot beginning of it too.
Question? Up to 2 drops twice daily now and am now have less of the usual numbish sensation in left foot & leg. Is that nerves waking up?
Next muscle twitching appeared, some short lived pain in foot at times and horrid leg cramps below the knee at night in bed.
IE. Last night leg cramp hit right leg for the first time in the front shin area. OMG was that painful.
Usually left leg and foot cramping pulling toes so hard to walk. Can feel like a tendon or something ? pulling through the leg into the foot pulling it back. Crazy! Weird! lol
So far I can walk these cramps off by immediately jumping out of bed when they strike but hoping to stave them off before I get into a bad situation. In the dark my balance is not good.
Question: Wondering those experienced in this what you did to help stop these type cramps? Any insights are so very welcome!
Labs in Feb. showed normal magnesium level via blood test. Never had a potassium test low either.
I do supplement the magnesium daily.
Also wondering if this indicates Lyme disease? My tests were always "indeterminate". Any thoughts on this?
My doc is not LLMD but treats chronic disease, ME/CFS, etc. So thought you may know more about this subject perhaps?
Many thanks for any input you may offer me on any of this.
Cheers, ~Dee
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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posted
Hmmmm. Disappointed no response at all. Maybe this is a bad subject? I have been absent from this forum while battling the Cpn last few years so I don't know what goes on in here. Maybe someone can clue me in on how best to get opinions from seasoned users of B & S? Is my title not a good one to use?
Question: I forgot to mention that my neck pain increased dramatically with the initial dose of Banderol and Samento. Clinically speaking, would that lean toward Lyme Disease being the culprit? Or do other infections this as well?
Cheers, ~Dee
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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But I thought you had to have the red streak type rash? or the papular type? (raised blister like bumps ) Is that true?
The only rash I had was originally on my shoulder blade 4" area. Over a dozen or so bumps that looked a lot like flea bites but were not. I had the nerve pain along with itching for years in that spot.
With the rash also I had the fatigue with malaise, anxiety and the headache from hell began in right temporal area into my eye and sinus same side.
At the time I thought it was mild case of shingles. All my symptoms were on right side until about a year later when my heart became involved.
That was followed by the downward spiral ending in a crash the naturopath called adrenal fatigue and immune dysfunction.
The nerve pain still flares up in same shoulder area when I herx bad sometimes.
Later have had either mosquito bite size or more recently flea bite size red welt or a few that itch and prick on legs and ankles.
Plus spider veins in dime to nickle size patches on legs and ankles began appearing.
No bugs in the house so figure an internal cause is the culprit. Never could figure it out though.
Wondering could what I described be a type Bartonella rash? or do they always look a specific way on everyone?
I need to continue reading about this now but if anyone wants to share their opinions or information that would be great.
I will check back here soon again. Thanks again. ~Dee
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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posted
"thank god"? Would you care to elaborate on your remark? Thank you for your reply. It looks like I need a Bart education.
So if I do have Bartonella which looks likely...
Your opinions? Is the Banderol & Samento enough to kill it off?
Evidently I have stirred it up anyway. That is something.
Do I need to get tested? OR is testing not effective?
I can't waste money cause I am on SS so not much to go around.
Thanks again...
~Dee
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
It sounds like you're doing this on your own?
Wondering if you're planning on switching to other Cowden herbs after this? (I know it's a lot just to deal with this first step so you probably haven't thought that far)
By phone consult, I found out that you're supposed to switch after 79 days. I'm there already, but not close to 30 drops.
I've been doing a lot of searching about banderol and Samento and found this in a post of Buhner:
"The study [that people are relying on] is ONLY an in vitro study. I discuss the nature of in vitro work on lyme spirochetes in my book; they are virtually useless. Literally thousands of compounds can kill the spirochetes in vitro. The problem is that test tube spirochetes are NOT the same as the ones expressed into the body through a tick bite. There are a number of research papers that go into this in depth. This early misunderstanding is part of what led to the trouble in treating lyme. I do think cat�s claw is highly useful in treating lyme. As to banderol, the extract made from the bark of the otaba tree, there is virtually NOTHING on that plant in the literature. It most likely does have antibacterial action, most South American species of plants do, but there is just too little on it to make any definitive statements about it. As to Dr H's protocol: I have spoken with him and looked over his treatment plans and he uses a very wide variety of things to treat lyme, NOT just these two herbs. Banderol probably does have some efficacy in practice but I can�t in any way say that it is a specific for lyme. I am very uncomfortable with the lack of data on the plant, even in ethnobotanical sources."
Just so hard to know who to believe. I know that no two people respond the same, so it might just be trial and error. When my banderol runs out I might just stay on the samento.
(MDs name edited by me)
Posts: 1302 | From USA | Registered: Dec 2002
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posted
My doc said go ahead and try out the Banderol & Samento when I brought up the subject. Haven't discussed my reactions yet with my doc.
I am trying to figure things out for our next consultation. My doc is very supportive and listens to me. A rare doc indeed!
Thought I'd get educated here as much as possible as I know most seasoned patients have a greater understanding of it all than most docs. In order for me to make good decisions I get the counsel from as many as possible.
But then it comes down to what I decide in the end. I am sure you know what I am talking about. All us chronically ill patients have had to educate ourselves in subjects we never had dreamed we would endeavor.
So until I gain more knowledge I am going to stay on the B & S increasing drops as my body allows. I don't know what I will end up doing in the future because frankly... I have a lot to learn.
I know little to nothing about Bart and can't seem to get my direct questions answered here so far. Maybe I should post each question separate or they all get mingled into a long post most won't read. Can't blame anyone for that for sure.
I read a couple hours here and there online lately but have more questions than answers at this point.
Thanks for the quote. I had came across it last night reading and it gave me pause. Nothing ever seems to be clear cut with the chronic illnesses we face. Like you said and I agree "no two people respond the same".
I read that Dr. M.R. in Seattle has had favorable results from using the B & S combo so I figured I'd give it a whirl at any rate. Seems to be stirring things up for me. If it brought out the Bart symptoms for me to pursue a new line of treatment to give me a leg up in life... I'd would consider it a blessing. Hmmmm. Maybe that is what ardraneala was meaning by "thank god".
Thank you very much for sharing with me and I do hope your efforts with samento are successful.
~Dee
So how long
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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Is my title not a good one to use? 
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