Lyme and company has really attacked my nervous system. I NEVER have "good" days. My days are always dealing with a plethora of symptoms, but some days/hours are much worse than others.
One frustrating thing for me is my body's inability to handle even the slightest stress, I mean stupid stress. Like going to my 11 year old son's relay race yesterday. Between the excitement of the race atmosphere, all the people etc. - just sent me into a tailspin. I had started the morning feeling like I might be having a better day.
By the time I was at the race and all day (and still this AM) after, I became very tremory, dizzy/off-balance, weird perception/vision, feeling like I might faint, lots of internal vibrating etc. etc. etc.
I have no emotional feelings of being anxious (other than sometimes when I worry I might pass out). But overall, it's just my body unable to cope; it's so fragile with any kind of stress, ridiculous.
If I tried to listen to my body, I would be in a quiet room, laying down, doing nothing 24/7. I just can't live like that, as it doesn't feel like living. I've been at this for over 6 years, I don't see it improving.
Any ideas? Anyone else know what I'm talking about? Thanks. TS
Posts: 566 | From West Coast | Registered: May 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i do not handle stress AT ALL. i start panicking, sweating, feeling dizzy, weak. you name it.
i had one attack so bad i turned around and came home. i was shaking so bad i couldn't drive.
i'll sit in that room with you...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
me too. I think it's a self-protective mechanism because I know I only have so much energy and can't waste it on things that don't matter. Mostly I dread social situations, a night out with people will leave me weak for days.
Posts: 63 | From Catskills, NY | Registered: Mar 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This post was in response to another question today about "why are stimulants bad for those with lyme" I'm too tired to edit but, basically, the answers are the same. The links should help even further. ---------------------
The HPA-axis is nearly always adversely affected by lyme, and the entire endocrine system goes kaput. the body is unable to handle stimulation or exertion very well.
Stimulants can turn the basic lyme adrenal dysfunction into adrenal failure - and that can be life-threatening.
The heart can't take it, also can be life threatening to have too much stimulation.
The various nervous systems can't take it. Brain function can't take it.
The nerve fibers can't take it due partly to demyelination that goes with lyme - they can overfire or misfire and seizures can result.
Topic: To everyone with cardiac symptoms please read ! And - What helps support the heart.
----------------
Adding to that for you, consideration of vestibular issues that are very common with lyme. When that system is kaput in the slightest manner, fatigue and inability to handle stress can be profound.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Just decided to get some fresh air, and a long string of loud Harley motorcycles went by. I blacked out for a second, very nearly fainted. Just from chaotic, loud sound? Incredible.
Posts: 63 | From Catskills, NY | Registered: Mar 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What a shame about the noisy cycles. Noisy vehicles (and their alarm/locking systems) prevent me from even a simple neighborhood walk. Sigh.
The toxic exhaust from some cycles can be overwhelming, too. I hope when electric becomes more popular and less expensive, sound and fumes will improve for all of us who would like to walk.
I hope you can find an isolated park - or that the Harleys have moved on. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Another source of stressors: food & beverage additives:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This excerpt has been tremendously helpful in coming to some kind of understanding about my reactions.
For myself, this is not about personality or character but solely about my body's ability to manage all the stimuli coming in - while so ill and managing all that inside my body.
Truly physiological but, then that can also impact emotions, understandably. So be kind to yourself and plan around this for the best outcomes.
. . . Lyme patients can be easily irritated by anyone just walking into the same room even though eye contact is never made or words exchanged. . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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I just had to read your post to let you know you are not alone. I suffer from this as well. All the symptoms you listed as well as heart palpitations and more.
Yesterday my family came for a visit. It was a lovely day to have a picnic in our yard with our three grandkids. I did pretty well pacing myself etc. but found the outdoor elements just too much for me. For example I had the chills while everyone else was quite comfortable with less clothing layers on. I began to feel sicker afterward with those buzzy off balance sensations too. So after they left I got into bed with a pile of blankets for relief.
One of the last time I visited my folks my mom hurt my feelings terribly so that I did a nose dive physically so unfortunately I had to leave. Negative emotions just have gotten ridiculous reactions for me lately. You just can't control these things unfortunately.
My granddaughters play soccer but I cannot attend their games because of what you described. It is maddening.
I need to read those articles posted in your thread. Maybe I can learn something to help. I sure hope we can figure a way out so we can enjoy more of life. Take care and keep looking for answers. We can beat this!
~Dee
-------------------- IGeneX WB on 9.09: IGG:31.IND,34.IND,41+,66+ IGM:39IND,41++ on 9.09 same on 1.10 ME/CFS, CPN, EBV, HHV6 Posts: 77 | From Washington | Registered: Apr 2009
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this too has been a major issue for me and still is 3.5 into treatment. i know this will sound contrarian but one thing that can keep this under control is reducing your toxi load through sweating and excercising which i am sure is the last thing you feel like doing...give it a try ...go to sauna....this seems to help me and usualy lead to better sleep which leads to better healing , etc.
Dave
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
The inability to handle stress was related to adrenal fatigue for me and low mag contributed to my sound sensitivity.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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Basketball games for my kids over the winter were a major difficult time.
Weekends are overwhelming. I have the same shaky feeling. Sometimes I do actually shake.
I can't process conversations in background noise and I sometimes feel so overwhelmed that I want to run around screaming with my hands over my hears (of course the screaming may bother others with Lyme if they happen to be in my way:)
I agree. I think our bodies are overwhelmed and I know it has alot to do with adrenal stress. Adrenal supplements help a little as do thryoid supplements.
My LLMD said people with lyme are like "one raw nerve". So true.
Prayers for all of you.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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posted
I've just been diagnosed, so I have 0 knowledge to import - but, I this is a symptom that is one of my biggest problems I have. So, thanks for posting. It is a question that I wanted to hear about as well.
Posts: 132 | From Texas | Registered: Apr 2012
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