tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I have a very bad time sleeping. Then it got better when I was on trazadone. Then I found myself falling asleep without the trazodone. So I weened off it. I was good for about 2 weeks. Now all my Sleeping issues are back.
I hate to go back on perscription pills.
5htp did not work for me. Nor Pharma Gaba nor Ltheanine or Gaba. or meltonin
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A friend just asked about this. Some of my starter notes:
Topic: NATURAL SLEEP & ADRENAL SUPPORT -
Posts: 48021 | From Tree House | Registered: Jul 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I guess I can give it a try before I result to chemicals
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
It made my heart palpitate I could not tolerate it.
Posts: 1104 | From N.California | Registered: Jan 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Oh no I don't need that with my anxiety !!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
My doc put me on it after she tested my neurotransmitters and I was low on GABA. If your sleep problems are due, in part, to not enough GABA it should help you some.
It did help me, but I was taking a lot of other stuff with it, like the supplement Sleep Link.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Remember, too,
A good quality of Magnesium is one of the best helpers to lower excitatory NMDA nerve transmitters that are elevated due to a toxic mix from TB (tick-borne diseases).
Magnesium - just by it's being there to lower NMDA - will help raise GABA levels.
Taurine, alone or with Magnesium &/or other key ingredients, will help, too. There are various forms of taurine, some better than others. Vegetarians are at risk for low levels so supplementation is often necessary.
So will liver support because that helps the liver better metabolize toxins, keeping the NMDA from going sky high.
There are other ways to also help. Avoiding anything that overstimulates, including food or beverage additives is just one other consideration of many:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors -
Posts: 48021 | From Tree House | Registered: Jul 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I hope it works....I use to take Xanax than trazodone Traz makes me feel like a zombie next day
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Be sure to also read the comments at the bottom of the page - and find others' comments at other sites.
Phenibut supplement benefit and side effects by Ray Sahelian, M.D. (He is not a lyme doctor). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Ugh now I'm scared to take it. Willi get afficited?? Go through withdrawlss I thought it was safe.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
So I tried it last night
Took one around 845 felt very relaxed. Not a high like a xanax or spacy...just very relaxed.
Then at 10 I went to bed. I took 1.5 time release meltonin as well as magnesium.
I slept through the whole night didnt get up once to go to the bathroom. No problems falling asleep drifted right off. Didnt wake up till alarm went off at 6.
I didnt have a werid hangover feeling today at all. And I feel great have good energy. Amazing what a good nights sleep can do for you.
I hope its not a fluke. I am going to Call down to my LLMD (the Famous One) and make sure its all good to keep taking.
The compounding pharmacy where I got it knows my LLMD very well and knows all the drugs I am on and is very Lyme Literate and he said it should be fine.
Just thought I would let you all know. Hope it lasts!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Just started kavinace again last night. I sleep well, just wake up confused. Dream much.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
What do you mean you wake up confused? LIke your in a fog?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Tried it again last night, but i was in a lot of pain last night in the middle of a herx/flare. I didnt fall asleep till 1230 adn slept till 630 straight still much better than how I was sleeping.
Just wanted to update you all!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
depersonalized, fog, unrealty, its been my main symptom for 2 years now.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Oh well, I hope it works again tonight. I think my biggest problem is that I worry about sleep.UGH
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Could Kavinace be causing withdrawl symptoms the next day.
I was doing well but my anxiety is creeping back in and monday I woke up very bad. I was wondering if this is do to the fact that I only take one Kavinace.
I wonder if I am withdrawling from it?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I just tried the Kavinace again (tried it 2 yrs ago) and it has totally made my palpatations worse. I know it is suppose to relax you but it actually does just the opposite for me.
I was hoping it would help with my sleep issues also but after 2 weeks I am going to quit trying it. I had taken one and sometimes 2 a few hours before bedtime in thinking it would calm me down some so sleep would come easier...
Posts: 343 | From North Carolina | Registered: Oct 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I have been taking it for 20 days....thats the only new thing I have added into my regiment to help with sleep. I woke up Monday and all my panic that has been gone for several months is all back again...anxious...muscle twitching...nasuea cant eat.
did some research on phenibut i guess its pretty bad and dirty stuff. Not sure how they can sell this as a supplement
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I called my LLMD to think if she thought I was going through withdrawls
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Scary stuff! I started taking Kavinace almost 2 weeks ago after neurotransmitter testing.
At first, I was sleeping better, falling asleep by 10 usually and not waking until 3 or 3:30 am to go to the bathroom. I usually could drift back to sleep until 5.
I just changed ABX and I don't know if it is the herxing or building up a tolerance for this med, but now I am waking at all hours.
Hmm... I guess I will give it some more time. I don't like taking anything that can be addictive.
Posts: 2387 | From New England | Registered: Aug 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I know dbpei, I am not sure if I am herxing or what?? But I am a mess...I havent been this bad in while. My lost dose was Sunday.
Its so hard to tell if you are flaring,herxing,backslidding....this was the only new thing I added into my regime. I took it for 20 days.
I resorted back to taking my trazodone to sleep at least I know what is in it ya know....
I hate not knowing what is going on with my body anymore.
My body feels like its vibrating
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I know dbpei, I am not sure if I am herxing or what?? But I am a mess...I havent been this bad in while. My lost dose was Sunday.
Its so hard to tell if you are flaring,herxing,backslidding....this was the only new thing I added into my regime. I took it for 20 days.
I resorted back to taking my trazodone to sleep at least I know what is in it ya know....
I hate not knowing what is going on with my body anymore.
My body feels like its vibrating
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Are you guy's talking/taking Kavinace pm or reg?
I slept a bit with PM ,but this is where my post came in about tryptophan sp? and 5-HTP,
Causes problems for me ,so Doc said to try K-regular,,, will know soon....
And to add Trazadone....
Hard to say..Some day's hardly sleep more than hour on and off .. Then I'll have a day where sometime yesterday I feel asleep ,and we could barely get me moving for doc appt. at 2.today..
Sleep wasn't the only issue, weird , I'm not getting better about the dreams, like stuck in third world country stuff,,,,,,
I know I was doing much better with this a few months ago
Doc wants to know what , in my gut, do I think helped or hurt.....
I'm dazed...
Have sweat dreams. Nonna ...
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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