posted
Before I was diagnosed with lyme a few months ago I knew nobody with lyme. Now, my sister has been diagnosed with it, my son has been diagnosed with it and my niece from my ex-husband's side was just diagnosed with it!!! Wake up America...it is indeed an epidemic. What's it going to take to wake the medical field up to this?
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
jlf2012 I am so sorry to hear how Lyme is affecting your family. There are 5 in mine that we know of. Another Ohioan was diagnosed same time as you and since then her son and sister have been diagnosed.
Not sure what it will take. It is scary and awful!
Hope you are doing well with treatment.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
Sorry to hear. Ohio is becoming a lyme hotbed FAST. We are the minority who have researched and been through the ringer with this illness enough to find the source of the problem.
Many, many others have it but choose to believe the what the hospitals say (MS, Fibro, ALS) and get shot up with pain killers and steroids...Slowly killing them. But insurance will pay so it's the simplest route.
I have 2 family members who have been bit this spring in Ohio, both have bullseye rashes. Neither will seek out opinions outside of their GP.
The trust people have in their doctor is deadly. I'm literally watching my teenage niece go chronic as I speak because her mom refuses to listen to me and believes what pediatrician says...."it'll pass in a couple weeks".
It's a travesty
Posts: 184 | From taking pills | Registered: Oct 2011
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
I'm so sick of people saying that "there's no LYMES in Ohio". Makes me want to scream!!!
Above is a map that shows where Ohio State has collected deer ticks. The ticks are here so Lyme is here.
I personally think that we have to try to educate everyone, including all the medical professionals that we come in contact with. That is the only way they will learn.
When you share your own personal story you make the disease real. Instead of a rare set of symptoms it is an infection that has damaged your health and every part of life... They will remember.
One of my sister's friends recently got bit by a tick. It was fully engorged. Had probably been attached for 3 days before she found it in her hair. She went to her doctor and demanded 4 weeks of doxy 200mg BID. Her doctor did not want to treat her because she didn't have a rash. She educated him, told him how I nearly died from Lyme. He gave her the RX. I was proud
We still have to deal with some of the bad IDSA docs but there are a lot of other good health care professionals out there that are willing to listen and learn.
Posts: 5237 | From here | Registered: Nov 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I am in the same boat. �My daughter, 3x nieces on one side from NY who have gotten bit multiple times. �My sister who was deathly sick but got well. �My mother who is now developing gradual arthritis after 2-3 bites during her life.
My father was bit in another country, but remains symptom free.
My niece on my wife's side got bit a while ago and her mother just got bit last summer in CT. �Her mother got bit after I identified a tick off their lawn and tried so hard to warn them. �People just don't seem to get it and don't understand.
My son has never seen a tick on him, but gets odd symptoms here and there. �Headaches a few times, once or twice pin like pains in his elbow. �Contracted calf muscle once where he was crying and just last week a swelled knee that went down on its own after 2-3 days. �He was treated in the past as a precaution, but who knows. �Does he have Lyme?
Ticks are spreading like wild fire and so will Lyme.
Posts: 2094 | From NY | Registered: Oct 2011
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I live in southeastern Michigan, two years ago I was in perfect health and never even heard about people suffering with Lyme. After I got my diagnosis six months ago, I'm learning that one other family member has it. Along with two other family members that probably had it too and successfully treated with antibiotics.
I live in the city, only took a few visits fishing on an inland Lake to get it.
I also know all of other people we talked to through neighborhood talk that have it as well.
Future is looking very scary!
quote:Originally posted by sammy:I'm so sick of people saying that "there's no LYMES in Ohio". Makes me want to scream!!!
Couldn't agree with you more Sammy. I just read these three articles, they all say the word "rare," but yet I know people over here in southeastern Michigan that have it. I don't even know that many people!
Connecticut is where it originated yet this picture from a Connecticut news Website says risk of infection is small.
I'm a webmaster and I want to make a website to expose all these news articles for what they really are, but I can't because my arthritis is so bad in my hands. The lies and deceitfulness coming from the media and CDC is so bad it's atrocious.
Posts: 267 | From MI | Registered: Oct 2011
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