posted
I'd love feedback from those who've either followed a protocol combo of abx and herbs or only herbal medicine to treat their lyme & co's successfully... under the care of an LLMD or LLND.
Is Buhner considered the best herbal protocol? Do people do this on their own or under the care of a LLND?
I've had this 13 yrs, dx in Jan, on abx for 5 mos. I know I have a long road ahead. I just want to make it the most effective road possible....
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I like Buhner the best
Though Dr Zhang's Houttuynia is amazing.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Different, but equal in scholarship, IMO: you might get both books and study each approach. Even if you don't do one or the other, the information in each book is excellent.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Personally, I did GREAT when I was on Zhang's protocol but funds ran out. I did that for a few months, two separate times.
The cost is very reasonable but still way out of my reach. The quality is top-notch, the thought and work behind it excellent, etc.
Pros: felt so much better; so easy to figure out the protocol.
Considerations:
cost is more than many can afford (though reasonable and FAR less than most protocols);
odor from the allicin (garlic). But since that protocol stopped my seizures when on it, I did not mind others smelling garlic on my (I could not smell it on myself).
Buhner's book is one I wanted my whole life to see. He also has a new set coming out "soon" (I hope).
While the cost may be easier on most, I was only able to do a few of the suggestions and then had to decide on just one thing.
Andrographis was great in many ways for me (but very sedating and urine flushing, good for the edema but hard to go out).
Not everyone has good experiences with andrographis - quite the opposite from my experience as one herb that saved my life even if it's not been the total miracle I had hoped for -
- but, again, it's just not for everyone. I am just very glad I've found it and rotate it with Olive Leaf Extract (Seagate brand) because andrographis makes me just too tired during the day.
He does not suggest that as the top tier anymore.
I know all this is very complex and there are few clear answers. And, here's another thought:
RIFE machine. But that also is just part of the process. Supplements are also important but just certain ones and with certain timing.
RIFE links are in the "ND Thread" above.
If you could, Bionic 880 is also something to consider. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I seem to recall reading more positives here about Zhang . I have also read articles by other doctors who really admire him.
My opinion is not worth a lot , but personally I think people are just as likely to improve with Zhang as ABX . At least they will avoid kidney and liver problems . I did ABX 3 years and got rid of pain , but was still really sick , and had chronic bladder/ kidney problems.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
Keebler . as always you are so helpful . I would like to know how much the Z protocol ran for you in expense .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It was years ago. You'll have to call Hepapro ( www.hepapro.com )
Allicin dosage is the only one determined by the patient's weight, so that might cost more, depending . . . .
Also ask if they still might have a discount of any kind. They have at times and that helped a lot.
I think I sent them a copy of my IRS income statement proving income level and that shaved off a bit. They may or may not still "be in the position to be able to do that" though. (That's how I like to ask, if they are "able" to do so).
A note about smelling of garlic for summer - I think it might help keep insects and other vectors away and can only be good to have that circulating in the blood.
Allicin can raise tinnitus for some, though. If so, a cooler, more sedating balancing herb can help, such as Kudzu.
Just get everyone you know hooked on garlic hummus and baba ganoush and you'll fit right in.
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Taking antiparasitic herbs would be a VERY good idea for you. The salt/c protocol is also VERY powerful.
Parasites/worms can be considered a co-infection of Lyme and often overlooked even by LLMDs.
I had the most success with these protocols getting rid of Lyme and co even after 4 yrs of abx. Do a search on here for parasites and google parasite symptoms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Allicin / garlic also helps against a variety of parasites - and biofilm, too. Not sure whether antifilarial but that can be searched.
Andrographis is also antiparasitic / antifilarial.
Gael's point is a good one. Do address parasites.
Where at all possible, when taking any treatment for lyme & co., if it is also antiparasitic & antifilarial that's a plus. Usually, it takes combinations & rotation.
Best with professional medical guidance and an individualized treatment plan. -
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