posted
'Hate to be whining, but I have just had it with this disease!
I have been ill for almost three years straight with not really much improvement at all! In many ways I am worse than when this all started. When this all began, for about six months straight, I was dying (literally) from it...seizures, major life threatening heart arrhythmias to the point of coding in the ER. My main issues are brain-related. I never really had much joint pain or fatigue. I have abnormal EEGs and MRIs. While the cardiac issues seemed to have abated (even before beginning treatment, by the way)I am still VERY ill. I have never really herxed on anything and in many ways I am worse than when this all started. I have felt really sick every single day for what is going on three years! 'Just can't take it anymore.
I am on my third LLMD, tested positive for lyme, bart and babs, have been on numerous oral antibiotics, some IV, supplements and even tried about two months of acupuncture. Nothing, and I mean NOTHING, is working! I dump anywhere between $500-$1000 down the "Lyme toilet" every month, with a kid going off to college next year! Just don't know if any of this is worth it. I guess that I am wrestling with just throwing in the towel on treatment and having the money for my kids, while just waiting to die on the couch. It's just way too difficult getting through each day anymore with not even a glimmer of hope or light at the end of the tunnel.
I guess why I am posting this is that I'm looking for a little hope, that recovery IS indeed possible, even with major brain issues and having been in treatment and really sick for years.
My apologies, again, for posting my complaints here, but as most of you know, I don't really have much of a support system anymore.
Thanks in advance!
~tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
| IP: Logged |
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Tri - I KNOW how you feel. Have been there many times myself. It can be a very sad, depressing, hopeless place. I have to tell you, my progress has come quickly, and from a direction I never would have guessed.... I finally started to treat parasites in earnest. The amount of progress I have seen since starting (in the last 3 weeks) is huge. Not to mention, I am blown away by what is coming out of me. Most of my vibrations, numbness, tingling, hot sizzling sensation are gone, or greatly diminished.
If you want to know more, read my fairly recent posts. Also read glm1111 posts. This woman has been consistently giving the same message. I wish I had listened sooner. She, an educated woman herself, was sick for 30 years and finally got better after treating parasites. All of her Lyme and co-infection symptoms are gone. Pretty amazing.
I'm coming to believe that parasitic infections are perhaps the primary infection that keeps us sick and unable to get over Lyme and cos. Remember, Willy Bergdorfer found filarial worms in the ticks.
I would make this priority #1. Just my 2 cents...
Hang in there. Hope you find your way. God bless.
Posts: 2238 | From East Coast | Registered: Jul 2010
| IP: Logged |
posted
What Tammy said! And Tri, depending on where you are in PA, Tammy and I see a doc who follows Dr. K's protocols, and they really seem to be helping me. PM me if you want any scoop. Hang in!
-------------------- Increasingly ill over past 10 yrs; treating since October '08. Posts: 180 | From Philadelphia, PA | Registered: Oct 2008
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
It is possible to get better ... I had bad neuro symptoms and still got well. Do everything you can to get better!!!
moving to general support
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
Topic Closed
Printer-friendly view of this topic