posted
I think folks are all over the map in terms of what works - some abx only, some a mix, some complementary only. It's really what works best for you. There's lots of options in all categories. I always suggest starting with very small doses of anything, to gauge your response.
Posts: 13171 | From San Francisco | Registered: May 2006
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I have an appt. with a kinesiologist coming up in a month to muscle test all of my meds/supplements. It is mind boggling that this works.
I find it hard to believe that it is an accurate science, but I know people go to college to study this and there is some validity to it! I hope it works for me.
Posts: 2387 | From New England | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Many of the articles and books listed here are by LLMDs who also incorporate nutritional support methods with antibiotics and other Rx.
Many of the LL NDs also rely on antibiotics and other Rx, along with herbal and nutritional supplements.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Just remember that you need the big guns on these infections.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Exactly.
And that is why whichever doctor you choose MUST be ILADS "educated" so they understand the science and tenacity of tick borne infections and other stealth infections.
Most NDs are not at all lyme literate. And some who think they are are not at all, either.
The "just get the body stronger" approach often fails without the big guns.
Herbal and nutrient support often helps the Rx work better with fewer complications and less "herxing" so the Rx are better tolerated.
Still, when possible, best to work with both a LLMD & a LL ND who are on the same page, both current with all ILADS research.
(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's important to know all this, just for the record (even if your LL doctor treats differently, you need to have a frame of reference): -----------------------------------------
�� Nutritional Supplements in Disseminated Lyme Disease ��
J.J. Burrascano, Jr., MD (2008) - Four pages
==============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
posted
Some of us detox well and some don't. That matters, when it comes to handling treatments.
There's a detoxigenomics liver test done through Genova Diagnostic lab in NC that can show whether we have the genetic capacity to detox.
It shows 8 pathways in phase I liver detox, which is like the bathtub filling up. And it shows 4 major pathways out of 10 in Phase II liver detox, which is like the bathtub draining.
Knowing this can help the doctor and you design your protocol. Someone like me cannot do muscle testing - the issue is my ability to detox or not. When info about the product isn't clear, I have to take the smallest, tiniest amount of anything to physically find out whether I can pass it.
So just be aware, when people say what they can do, that we vary in our genetic capacities to handle treatments.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Wow! You guys are amazing. As usual a wealth of knowledge...THANKS! I am thinking of going to Dr.c in Mt kisco, NY. He sounds great, but I think he just does the Big Guns approach.
Its expensive with the airfare and hotel fromFla but maybe worth it.
I cant believe its so hard to choose. Thanks again. Atheana
Posts: 47 | From ft lauderdale florida | Registered: Aug 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Talk with the lyme support groups within a good radius of the any LL doctor you consider. That way you have a good sampling of experiences.
Usually, you can call a support group leader or communicate by email.
Never go to any doctor that you only "think" treats just one way. Find out for sure as much as possible beforehand.
Call their office and ask how to find any of their articles so you can get a good idea of their treatment philosophy.
Of course, each patient will have an individualized plan but at least you will have an idea if they incorporate support supplements or not.
If not, IMO, you will need to find adjunct care for that part of it. IMO, "just Rx" are not safe for the long haul, or nearly as comfortable, as with support supplements.
It's much easier to find adjunct care for support, though, than to find doctors who really know how to manage the most effective Rx combinations / rotations and address all the tick-borne infections, and consider other stealth infections, too.
Ask if they consider parasites & heavy metals, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Why on earth would anyone make "abx" OR "natural" the choice? That's nonsensical.
In the first place, most abx came from natural sources. Penicillin, for example, was produced by yeast to ward off bacteria competing for nutrients.
In the second place, these infections are not treatable by either on their own, at least in most cases. Lymetoo is absolutely right, you gotta get out the big guns for these infections.
Download Burrascano's guide - it's sticked at the very top of the medical questions list. Read it, understand it, it's IMHO easily the best overall plan for getting well. It uses antibiotics, supplements, herbs, nutrition, diet, and exercise. It spells out just how to get well, and it's based on Dr B treating 11,000 patients.
My sole quibble with it is that it doesn't address parasites well enough. I think parasite treatment is currently where lyme treatment was 10-15 years ago, and that getting well usually requires treating parasites as well.
So it's emphatically not an either/or, it's really an all-the-above. If you want to get well:)
Posts: 146 | From Maine | Registered: Aug 2011
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