posted
ok here it goes,,, i think i have lyme, pretty
sure thats what it is, and all of you seem to
think it is also, the reason im so freaked out is
because this thing is all fear based, my main and
only symptom is the brain, brain fog, lyme brain,
derealisation, fryed out whatever you want to
call it, thats my worst, so ive been so fried out
for 2 1/2 years constant fog, dreamyness,
anxiety, ocd, bipoloar rage emotions just gone
crazy, and let me reasure you i never had 1
symptom of this mental stuff ever, so long story
shrt im getting sick of it and mad at this way of
,life, and im all on my own, no one to help, no
llmd no nothing ,just the net and research, im
gonna list my arsenal and will you guys advise me
on how to take it and what to mix together,ive been
starring at these meds for a year now just trying
to get the courage so here it is... samento,
cumunda,takuna herbs, teasel root herb, mms , 30 day supply doxy 100mg, 30 day supply of
amoxy that i stole from my girlfriend, when she
was done with a cold or something, lithium
orotate, and some mag supps and vitamins, what
would you guys do, thanx for any reply and
hopefully i dont wind up in the mental ward bcuz
this neuro stuff is no joke, i can see why it
would be used as germ warfare to scramble the
mind and it works horribleeee!!!
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Begin with supportive measures.
Magnesium
Fish oil
Probiotics....look into Kefir for this
Good quality B complex vitamins
B12 sublingual
Vitamin D3
I began my own treatment with cat's claw capsules. Although I didn't think it was doing anything, I noticed that when I stopped I felt worse.
There are other things that will kill bacteria besides cat's claw, such as allicin. I would not do antibiotics unless under a doctor's supervision.
There are people here who have alot of experience with antibiotics from their LLMD's, and sometimes they decide to go it alone.
One of the protocols for Lyme is to take systemic enzymes and cat's claw. The systemic enzymes strip away the biofilm hiding the bacteria, and the cat's claw stimulates the white blood cells to phage the bacteria.
Read about systemic enzymes, I think this will prove to be a good part of the answer for many people.
You will need years of support to restore the vitamins and minerals that this disease has depleted. Liver support is important too, as the liver makes glutathione to neutralize the nerve toxins left behind by the dead Lyme bacteria.
I've been able to do alot without the use of antibiotics. I will never be well, I know, but I have reduced many symptoms that made my life hell.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
Why can't you see a Dr? This is a long road, you don't want to enter years of treatment without proper testing to know you're actually treating something you have.
I would get an appt with an LLMD at least for testing and focus on detox until you have your results.
Posts: 844 | From CA | Registered: Apr 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
It sounds like you have lyme and company (co infections). You must have done some research to acquire what you have as far as meds and supplements go.
I would not take them without being under the supervision of a LLMD though. You could really screw yourself up as far as medications go. I had a LLMD and abx still screwed me up.
Just the fact that you got an igenex test suggests that maybe you've already seen a lyme doc? If so, I would do whatever he or she suggested.
There are certain combinations of meds that the lyme docs know. They customize a treatment plan specifically for you and your situation. When you see one of them, they do a lengthy intake apt to determine what you have and what meds you can tolerate.
I think the samento and cumanda are part of the Cowden protocol (herbal tinctures). I am not familiar with those herbs, but the herbs I am on require guidance by my LLMD.
If I don't take them correctly, it could cause treatment failure, which is a big fat waste of money, time, and possibly resistance to those herbs.
You you may want to check out Stephen Buhner's protocol. He has a book that specifically tells you which types of herbs to use for what. He even has a blog you can refer to.
Also there is the salt/C protocol.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Hi, The Lyme guidlines and treatment options of Dr Burascano our on this site. I believe they are up at the top of the topics. Download them and study them. The antibiotic combinations that are in the guidelines saved my life and I can live again. I wish you all the best and good luck!
Posts: 54 | From New Mexico | Registered: Nov 2008
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
This is a very complicated illness to self treat. Is there anyway that you can get into a LLMD? Are you not seeing a LLMD because of lack of funds?
If I decided to self treat I would buy a Rife machine and beg, borrow and steal to buy some tools for agressive detox such as a FIR Sauna and a home colonic unit.
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Catgirl ,,when you say take them correctly..
what do you mean?// I don't want to waste .time/money/health or resistance
Thank you
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Nonna, it depends on what you're on. The ones I'm on I have to ramp up very slowly. My doc said that he's seen failure when people go too fast (causing major herxing).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I would start with these 2 supplements because they hit a wide variety of infections , and start low - herb pharm artemesia annua and Nutribiotic grapefruit seed extract . These have helped many people . Allicin has also helped a lot of people .
Once you begin to lower your pathogen level , you can consider incorporating Buhner or Zhang herb protocols . Many people here have improved with Zhang herbs and he is quite respected.
My opinion is that those of us who are not DXed early will not likely get well even if we take a million drugs . The herbs are probably as effective for us IMO , and less destructive. Many herbs are antioxidants and anti cancer . artemesia is one.
The people I personally know who went to LLMD s eventually resorted to managing the disease themselves after ingesting a lot of drugs and $pending a lot of money with minimal improvement .
You CAN order doxycycline cheaply from 4 corners pharmacy , or at amazon if you look up vet version of bird biotic . These are safe and cheap and a good place to start to lower pathogen load .
My advice perosnally is something I wish I knew about when I first got sick : glutathione , which is the key to getting well. It is critical to research it . I am raising my level cheaply with a supplement from NOW called Liver Detox and Regenerator . It is potent and has precursors for glutathione , which is A MUST!!!! I also wish I knew early on about CHAGA mushroome, which have helped a desperately ill friend with HEP C cut her viral load in HALF! She orders through won with nature online . Her improvement is amazing . You can research Sloan Kettering website and chaga mushrooms. The info is compelling and there is more at Pubmed .
Improvement is possible! You may want to consider meds for moods also . Good luck!!
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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