posted
I started chelation therapy last week recommended by my LLMD and my symptoms (especially neuro) have worsened. I'm doing detoxamin suppositories every other night and chemet every 3 nights.
I'm also doing lots of detox like ALA, NAC, intestinal drawing formula and pekana drainage.
I started a whole bunch of new antibiotics last month but I don't know if that has anything to do with it.
I'm wondering if it's normal to feel worse when starting chelation.
I just did a parasite test, which I know will probably be negative but hopefully I will start addressing that soon. I'm already on salt/c.
Any advice or experiences appreciated!
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
If you're releasing metals fast than you're expelling them, yes. Maybe you need a binder. I used zeolite, but many use chlorella.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Yes, Detoxamin is a very strong product, I was very ill taking it
The only thing that took the edge off for me is Vit C IV's
The sales rep at Detoxamin told me that the most metals are released at the very beginning
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
I am taking chlorella but maybe I can increase it. I'm also going to start FIR sauna.
Do you all think it's worth the pain?
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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annxyzz
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Member # 20404
posted
YES , even taking bentonite clay with a couple of drops of cilantro makes me feel awful!!
Chlorella makes me totally sick and I stay away from it .
What I am learning with detox is that I have to take half as much as is advised or I feel deathly ill. That is OK , because it will all come out a little slower , but I will still accomplish the task.
I am amazed how strange the detox makes me feel . I have weird aches that move around my body from joint to joint , or around the kidneys , for a couple of hours . Then I feel stiff as a board and can hardly bend my limbs for a few hours . I am never stiff otherwise . This proves I am definitely toxic anyway . I had no idea it would be so unpleasant .
You might take half a suppository and only a half every other day to make it more tolerable . It will still work, just slower.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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Catgirl
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posted
So you are on abx, salt C and chelating? It sounds like a lot, but then I'm no doc. Surprisingly, I feel pretty good chelating (I'm not on abx though).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Yes I'm on all those things. I guess I shouldn't be too surprised I feel bad. I'm really impatient! Had done treatment for 2 and 1/2 years with a more cautious LLMD and I'm ready to kick this diseases butt!
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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posted
So do you think it's like a healing reaction? My instincts are telling me that I'm getting worse so I should figure out something new. My head says I should do nothing and just stick with this treatment. Any suggestions?
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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philly78
Frequent Contributor (1K+ posts)
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posted
Seems to me that your body cannot keep up. I would slow down on something and give your body a chance to get rid of what you have floating in your bloodstream now.
If you cannot get rid of the toxins/metals or whatever it is your trying to detox, then it is just floating around in your blood....causing symptoms. That is why you feel so bad.
You don't get many symptoms when these toxins are hanging out in your organs/tissues/cells....not like you do when they're in the bloodstream. So your pulling everything out and into the blood but not excreting it as fast as your drawing it out so you feel like crap.
Make sense? I hope so!
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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dbpei
Frequent Contributor (1K+ posts)
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posted
Linnada, I am sorry you are feeling so crappy. I tested high for mercury and arsenic 6 months ago and took Pecta Sol C as a mild chelator per my LLMD's suggestion.
I took it for several months and then stopped when I was extremely nauseous and feeling toxic with doxy and rifampin. I never took it again.
I have recently been taking LOTS of fresh, chopped cilantro in my morning scrambled egg, salads and any dishes that I can. I am using about 2 big bunches per week. I have also been drinking licorice tea and trying to use coconut oil daily.
I don't know if they are accountable for making me feel better - or if it is getting off doxy and rifampin, and starting my new ABX, but I feel like a new person.
I was tested again for heavy metals and my tests were negative, but we all know that blood tests can be deceiving when the organs and tissue are holding heavy metals... The point is, I am feeling better with these dietary changes. Perhaps you could give one or all a try, if you haven't.
Just be sure to ask your MD if the licorice tea is okay because it can raise blood pressure. Cilantro may be too much with your other chelators, so check with your MD on that as well. Good luck to you!
Posts: 2387 | From New England | Registered: Aug 2011
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posted
Thanks for the advice! Does any of this sound like KPU? I'm just learning about it and finding the information overwhelming.
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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Catgirl
Frequent Contributor (5K+ posts)
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posted
Have you been tested for MTHFR gene?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Yes, I have 2 copies of the C677T.
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I'm no doc, but maybe that has something to do with it. Are you taking any glutatione (helps)?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I do IV glutathione once or twice a week.
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I dunno, again, I'm no doc. But the abx and the salt C and the chelation sounds like a lot. Did your doc put you on all of that? Can you let up on the salt C just to see if it will help?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Linnada, how are you doing? I hope you are doing better. I've been thinking about you lately because I started doing IV gluts last month.
Both times I did them they made me feel worse. I got depressed right away and they brought on a herx. So maybe it's the IV glutatione making you feel bad?
The first time I did a glut push though, I felt awesome. But the last glut push made me depressed and herx. I didn't recognize it in myself at first(slow to get things for myself). Someone else I chatted with here did.
Have you been tested for protomyxoza? I need to get checked for this one. I've heard that IV glutes make it worse. I have to search for that link here.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Hey Catgirl, I haven't been doing the Glut IVs anymore because like you, they were making me feel worse. My first Glut push was awesome too but then it seemed to not help as much each time after.
I started Allergy-immune treatment last week and am focusing on just taking binders. I stopped the chelating agents because I think it was too much.
I know I really need to treat parasites but waiting to see a doctor who can help me with that. I'm doing some Humaworm but I think I probably have parasites in my CNS so I'm sure I will need something stronger.
I'm really in the process of looking at Lyme in a different way, more of Dr. K's approach because the traditional way with antibiotics doesn't seem to be working for me. I stopped antibiotics last week too and feel no different.
I'm hoping treating parasites will be a breakthrough for me. I hope you are hanging in there and I will keep you updated on my progress.
Posts: 84 | From St. Louis, MO | Registered: Feb 2010
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