LymeNet Flash: Need help for co-worker (MS diagnosis)

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Need help for co-worker (MS diagnosis)

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Topic: Need help for co-worker (MS diagnosis)

canefan17
Frequent Contributor (5K+ posts)
Member # 22149

posted

She was recently diagnosed with Multiple Sclerosis and tomorrow she wants to meet up and ask me questions (as she heard I've researched Lyme/MS and their potential relation)

Any key points to bring up?
I'd love to print her off some info or LLMDs with evidence of Lyme in MS patients. Anyone have any info?

Or even better... anyone here diagnosed with MS only to later test positive for Lyme and treat and get better?

What should she do first? Get with an LLMD and get tested? What if false test? Etc etc

Thanks guys

[ 06-18-2012, 06:34 PM: Message edited by: canefan17 ]

Posts: 5394 | From Houston, Tx | Registered: Aug 2009 | IP: Logged |

LymeXtu
LymeNet Contributor
Member # 24590

posted

Check out some articles by Tom Grier, he is a microbiologist from Duluth that was told he had MS.

He was very sick by the time he found out it was actually Lyme disease.

I think he started the support group in Duluth and has written some really good articles.

He is well now ( after treating for Lyme and other infections ) he is doing research and lecturing.

www.wisconsinlyme.net/p/tom-grier-microbiologist.html

Posts: 448 | From minnesota | Registered: Feb 2010 | IP: Logged |

LymeXtu
LymeNet Contributor
Member # 24590

posted

Another one from Minnesota that is now well after getting proper treatment.

Was also told she had MS.

I forgot to post the link, here it is:

www.michelleonlyme.org/

[ 06-30-2012, 12:11 AM: Message edited by: LymeXtu ]

Posts: 448 | From minnesota | Registered: Feb 2010 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Please share this thread with her. Many articles here on the topic and frequency of occurrence.

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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=117839;p=0

Topic: Could MS be misdiagnosed Lyme?
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

dmc
Frequent Contributor (1K+ posts)
Member # 5102

posted

me...dxd MS in 1988 found out Lyme, Bart, & Babs in 2003.

scroll down to #5 of the educational videos
http://www.newhaven.edu/unh/lyme/index.html

If you download & print out the GREEN lyme basic booklet (on the right side of the page) from http://lymepa.org

http://lymepa.org/Basics2009_rotated_landscape.pdf
the fist disease listed on the "have you been diagnosed with..."
is Muptiple Sclerosis.

Posts: 2675 | From ct, usa | Registered: Jan 2004 | IP: Logged |

Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

posted

Show her this symptom list.

http://canlyme.com/patsymptoms.html

Here are the entries that The Canadian Lyme Disease Foundation has for MS.

http://www.google.com/search?ie=UTF-8&oe=UTF-8&q=multiple+sclerosis&btnG=Canlyme+Search&domains=http%3A%2F%2Fwww.canlyme.com&sitesearch=http%3A%2F%2Fwww.canlyme.com

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004 | IP: Logged |

Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239

posted

http://www.ncbi.nlm.nih.gov/pubmed?term=rare%20infections%20mimicking%20ms

http://www.bjmp.org/content/bacterial-infections-and-pathogenesis-autoimmune-conditions

http://owndoc.com/lyme/multiple-sclerosis-is-lyme-disease-anatomy-of-a-cover-up/

--------------------
The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008 | IP: Logged |

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