desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
For those who have taken Coartem, did you herx bad?
I am on day 2 and things are feeling pretty bad right now. Head is all fired up - like a million neuro bugs running around in my scalp/skull, head pressure, body pain is back 10 fold,plus all the other joyful Babs symptoms.
How long did your herx last and did it actually help at all? Getting really discouraged again....Was feeling back to 75% and then all at once back to square one again.
[ 06-19-2012, 03:08 PM: Message edited by: desertwind ]
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Anyone? No one on Coartem for Babs?
Herxing like mad on this stuff - much worse then Mepron. Tons of head/scalp/skull issues coming up.
Would love to hear from any Coartem users. DW
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
I'm supposed to be on it but the pharmacy is back ordered from the mfg with it.
I just started feeling better after taking mepron for a week or so. Unfortunately it affected my vision, so I had to stop taking it. The symptoms all came back on artimisia, so coartem is the next step. I hope it is as effective for me as it seems to be for you.
Posts: 146 | From Maine | Registered: Aug 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Well I just compelted the 3 days of Coartem and on day 2 of Clindamycin - will be adding the rest in a few days.
This is probably the worst I have felt in a looong time. I remember feeling this way years ago when I was "sick" all the time but did not know what from. Guess I had Bab.'s much longer then I imangined.
I ache from head to toe...Can Babs do that? A guess that is a stupid question...
Somehow I got lucky and was able to get it right away at my local CVS. How long is it back ordered for???
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Very well known, like bombs exploding in the head. I felt soooo much better after though!
Binders!! Babesia caused me the worst herxes ever, no matter what I took. Riamet was one of the worst but fastest drugs ever. Even though it didn't eliminate my babesia, those 3 days worthed.
I got the worst sweat of my life on Riamet!
Posts: 6199 | From Brussels | Registered: Oct 2007
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Brussels; Thanks for the confirmation.
I am sweating like I have never sweat before and I hurt from head to toe and even my spine feels inflammed.
The flashing lights in my vision are back again and if someone would deflate my head I would be ever so greatful.
I will up my binders.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
desertwind, it sounds like the Coartem is really kicking the Babs. Yes, Babs can make you hurt all over. Not fun at all.
I have a bad case of Babs, but Coartem had no effect on it. It so weird how meds affect people differently.
I hope things let up for you soon.
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
The first time I took it, I was on the couch for a week, and could barely stand up after that!! But it helped a lot. Subsequent times I've taken it, I had not much of a herx. Well, recently I did have some herxing from it.
Will whoever can deflate your head, please deflate mine, too?!! I will say though, that now that I am finally back on treatment for Lyme and Babs, it is finally much better. But hardly all better.
Hang in there!
Posts: 3771 | From around | Registered: Mar 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
What is working for the babs and Lyme now...
Is babs the worse of all of them??
What else goes with mepron to kill it??
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Coartem affected my sinuses and caused sleep apnea symptoms. One night I woke up with my windpipe fully shut off. I came up out of the bed flailing and fighting for breath. I stopped the Coartem and the symptoms went away. I went in for the sleep study and do not have sleep apnea in any form. Coartem is now off my list as a medication. I wonder what it was nailing?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
This stuff is soo much harder on babs (for me) then Mepron. I took my last dose 3 days ago and still feeling horrible.
nonna05; LLMD has me on Coartem for 3 days, wait 3 days and start Malarone, ART, Plaq, Zythro., and Clindamycine. Mepron and Zyth was the old combo for babs.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
I have done 2 rounds: Neither really affected me in any way except the second time, I got a rash from knees to feet.
Posts: 520 | From Maryland | Registered: Jan 2007
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posted
Bump, I am on day 2 and am totally confused by how this is hitting me.
Each dose seems to cause some mild headaches, light headedness and fatigue/weakness. Lots of air hunger...it feels like I am above 10,000 ft and the air just isn't there when I sigh/yawn/gasp
Several hours after each dose there is some mild flu like symptoms with that sore throat feeling. Strangely I didn't sweat at all last night, the past few weeks I was going through at least 2 pillows a night.
Is this babs or something else?
Posts: 11 | From Ak | Registered: Nov 2011
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