posted
My lyme doc believes I will be done with treatment in the next 3-4 months. He's one of the top 5. He says that I can safely get pg as long as I stay on abx throughout pg and breastfeeding. Of course, even though he says this, I am still fearful that in the future, we will find out that the abx during pg did not protect the baby.
I'm really interested in hearing your honest thoughts and feelings about someone choosing pregnancy after chronic lyme treatment.
thanks for taking the time to share - this is such a huge decision
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
A friend of mine with Lyme and Bartonella just had her first baby in January. She was on Amoxi and Zith all through her pregnancy.
She had 3 samples of cord blood and 3 samples of breast milk tested by Igenex. All came back negative.
BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Oh! I should add that she did NOT crash after delivery. She's doing great.
She worked with a midwife group in Everett. They knew about her Lyme. She got some lectures from the male MD in the practice, but all of the midwives were super cool.
posted
boxermom - thanks soooo much for sharing! I feel excited and hopeful - I have felt the presence of this precious baby spirit for many years - lyme threw me off course - I have an excellent fertility doc and really wanna go forward when the time is right - big smile
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
well, then I will ) and, I'll use a midwife, too - homebirth all the way
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Dr j states you MUST be on 2 and for the duration of pregnancy and while breastfeeding. Zithromax plus omnicef or bicillin or amoxicillin
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
bcb1200 - do you have his complete pregnancy protocol? that would really help!
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
That's what I was on...omnicef and zith. Little guy is 11 weeks old and doing well.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I know this is probably going to be very unpopular, but,
I had 2 children while having chronic Lyme UNTREATED.
The first child I breast fed, she has Lyme and co. The 2nd child, I did not breast feed, for personal reasons, and she is not infected, completely neuro typical.
So, please be careful with the breast feeding.
And God bless, having a child is a true gift :-). You'll be great!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
philly: congrats and please give your little one a kiss from me!
surprise: I appreciate your honesty - luckily, we can do that here since so many out there seem not to be!
I feel like it's going to happen and I have a feeling also that there are protocols that will keep my baby safe - I just feel it!
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
Both my kids have congenital lyme plus co infections. I was undiagnosed at the time. We had fertility issues (makes sense now that I know about the Lyme) and had both children via IVF. I would be very careful about any fertility drugs you take, meaning monitor your hormones after to get them back in check. I really think the fertility drugs wacked out my hormones and that added to the cascade. I do not tell you this to scare, but give you something more to look into so you can do all possible to counteract. I breast fed both my kids as well and had a twin loss with my second child. Just be informed and ever vigilant.
Posts: 101 | From USA | Registered: Jul 2011
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Agree with Surprise about breastfeeding I viewed a Dr K video and he said that transmission was FOUR times more likely through breast feeding.
But the good news is that it can be cleaned up with high doses of chlorella.
Good luck with having a baby! I am excited for you!
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
thank you I can't imagine NOT breastfeeding my child - that would feel like torture and so unnatural
yes, my llmd also mentioned chlorella - I take it now for metal detox
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Good luck Supergirl!! I LOVE babies!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
[QUOTE]Originally posted by supergirl: [QB] thank you I can't imagine NOT breastfeeding my child - that would feel like torture and so unnatural
**If you've had a child born/given Lyme and co-infections, you can imagine it.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
kidsgotlyme: thanks for the good wishes! I appreciate it
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
My daughter is due in 4 weeks after being treated for lyme. She did get pregnant before the doc felt she should, BUT she had been feeling great and many of her test results had flipped. She is on zith and has been the whole time. Her doc is one of the top LLMDs. We are praying all the baby test results come back clear.
Outcomes that are upbeat are much appreciated. My heart goes out to those that were not as fortunate.
Will try and post back her outcome to add to this ongoing compilation of results
Posts: 132 | From SE Pa | Registered: May 2006
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posted
gardenoflyme Congratulations! I would love to hear how things progress.
Is she planning on breastfeeding? getting breastmilk tested?
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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