recently went to my llmd complaining about a dry cough and chest tightness i recently noticed. he tested me for mycoplasma pneumonia and chlamydia pneumonia, both of which came back positive. my mycoplasma was indeterminate while my chlamydia pneumonia IgG was a low positive: 1:34, neg<1:16.
after doing some research i am very worried and confused. from the research i have done it seems as though chlamydia pneumonia requires a specific combination of long term antibiotics, similar to lyme disease. also, the testing, like lyme, is not accurate so many believe that any sign of positivity is a definite infection.
i am currently on bicillin injections 3x week starting my 5th month, azithromycin, and malarone. from my understanding, this is only partially covering chlamydia pneumonia.
has anyone here been diagnosed with cpn from your llmd? has anyone been successfully treated? im just not sure what to do.
a few months ago i began noticing new symptoms. at the time i thought it was lyme but not im worried it could be chlamydia pneumonia.
please share your stories/experiences/feedback.
thanks so much.
Posts: 28 | From NYC | Registered: Sep 2010
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posted
Treat the Lyme and Co's first... the CPN protocol dosages (Doxy, Azith, pulsing Flagyl or Tindamax) are not high enough dosages and will only make your lyme and co's stronger.
CPN and lyme are commonly found together.
Posts: 396 | From EAPennsylvania | Registered: Dec 2007
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I have it, too. I'm also on Bicillin, plus Zith, Mepron, Flagyl.
I've taken all the recommended abx for CPN during my Lyme treatment. I'll have my titers checked when I'm closer to remission.
It's a serious infection, so watch your titers. If they are super high, you can always do a round of CPN-specific abx.
posted
Go to www.cpnhelp.org for excellent information. There are several people there who also have Lyme Disease
Posts: 250 | From canada | Registered: Oct 2007
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posted
"Go to www.cpnhelp.org for excellent information. There are several people there who also have Lyme Disease"
Most on that site (I've been a member since 2007 -- different handle) focus on CPN and believe that the protocol for it will cover Lyme -- (incorrect), ESPECIALLY if you have coinfections!!
I believe that's why he confused... on the CPN site they tell him that the CPN protocol will cover Lyme (incorrect) ... (his IgG titres are low...)
if his doctor tested him for CPN then he must be aware of what it can do.. and, it depends on who his Lyme doc is.....
Personally, I believe he should stay the course with Lyme, but I am only basing my comments on what happened to me and my experiences.
Posts: 396 | From EAPennsylvania | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For mycoplasma,
cross search that term with this primo researcher: Garth Nicolson, Ph.D. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
If you have CPn AND Lyme, you have to be informed about the protocols for both diseases in order to cover both adequately.
If you start the Lyme treatment first, without being aware that the usual doses for Lyme are huge in comparison for treating a CPn infection, you could end up with a massive reaction that might be interpreted as a Herx, when in fact it might be Secondary Porphyria from the CPn.
Also, there is an assumption ( incorrect ) that the Lyme protocol will cover CPn. It doesn't, because the Elementary Body form of CPn is not covered and addition of NAC or Amoxycillin is needed.
I had had 5 years of Lyme treatment before I discovered the CPn was an issue for me, and that I had probably had it longer than the Lyme ( 18 years ) I have been on NAC for 18 months and am STILL getting a positive NAC-test reaction !
Posts: 250 | From canada | Registered: Oct 2007
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posted
Interesting, in that, I had 5 years of CPN ONLY treatment (full dosage of the ABX combinations)
and did not get well because of my unbeknownst Lyme and co's) BUT my CPN titres (except IgG) went to normal... MY CPN IgM and IgA titres were HIGH
I personally believe the CPN protocol drove the Lyme deeper into me. I was in bed for about 2 years on the CPN only protocol (yes, I am aware of all of the nasty side affects and did, in fact experience them as well, e.g. porphyria.....) so I learned to differentiate.....
I understand the difference between the life cycles of CPN and it is a nasty one to deal with as well, but I believe that in this
scenario,(Rossphotos titres are at the low end in the IgG and I believe is treating with one of the top Lyme doc's)
it would be prudent to be concerned about treating the Lyme and co's first, especially with Babesia.....
As for NAC, I've been taking it for 6 years and am doing so now as a liver protectant for Lyme treatment...(and covering any possible CPN sneaking up)
Posts: 396 | From EAPennsylvania | Registered: Dec 2007
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I have to wonder : is it possible all of us with mycoplasma, babs, CPN , lung issues actually have LUNGWORM? 66 % of CFS patients in a Harvard study tested positive for lungworm parasites . If that is the case for us , then years of ABX will nor cure our pneumonia or asthma, babs breathing problems. I really wish we could have an accurate test for this.
I have bronchitis now and live on asthma meds .I had 3 years of ABX with no improvement of breathing problems or fatigue. ( Pain did improve! ) .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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