posted
i have not had any good days in a month my symptoms are neck pain, headache between eyes, body aches and the heels of my feet are killing me like there on fire. what should i take i have tried cipro, bactrim, sida acute, cryptolopes. Im lost I never had my feet burn like this.I been 22 years in hell and spent thousands of dollars . please i need opinions im not coming out of this usually i would have some good days. also i have a holistic doctor i just saw who wants to give me nutritional ivs and shots and amino acid ivs but very expensive what do you think of this.
Posts: 39 | From white plains, newyork | Registered: May 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
A Befe unit / Aqua Chi machine will help with the feet issues.
You soak your feet in them to rid "toxins".
What do I think of nutritional IVs?
Sometimes they are very necessary and helpful.
Esp. the "Myers' Cocktail" which was *invented by* John Myer of Johns Hopkins University. Dr. Gaby further developed it.
Spending the thousands/tens of thousands of dollars for treatment is (very sadly) not uncommon.
PLEASE give your holistic doc a print out of my post linking the benefits of berberine.
All the links are from reputable sources.
Point...links...point...links...
It is mind blowing - the benefits.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had the burning feet once..i had to go to a podiatrist for a few weeks to calm the nerves down...now i take neurontin if that sx coomes back
have you aggressively txed Bb with an llmd? i have found that needs to be done first...then you can maintain on herbs etc
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
I believe the burning feet is typically bart.
Cipro and levaquin helped a bit but nothing to jump up and down for. What helped me the most was Mino with Rifampin. I had to ramp up as it really hit hard.
When I could no longer do mino, I did zith with the rifampin. I tolerated that much better but maybe because the bacteria load was down.
Hope this helps. The headache between your eyes may also be a part of it or possibly sinus inflammation?
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
What helped me the most with burning neck and head was IV Rocephin. What worked better was Doxy and Biaxin, key ingredient being Doxy. I had it to the extreme where I could barely walk very far with pressures so extreme that I wanted to blow my brains out.
I also had the feeling that something was lodged in my head and migrating headaches. It was very weird. One day headache was more frontal, next day on top, and on the third day in the back and base of skull. Then on the fourth back to temporal/ the front again.
Warning that Doxy causes increased intercranial pressure and I felt like it was going sky high and I almost wanted to stop. I am so glad I kept going, and by week 2-3 things started to melt away. All headaches and neck pain went away for a while, until I stopped and changed meds, then they started to come back gradually and almost in the same order that it disappeared in.
Do you feel any vibrations or tremors? Any in your head?
Posts: 2094 | From NY | Registered: Oct 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Parasites/worms play a MAJOR part in Lyme disease and is often overlooked even by the best LLMDs.
Check out the symptom list at Humaworm. Antiparasitic tx such as Ivermectin and abendazole seems to be helping many here when abx did not.
LOTS of antiparasitic herbs such as Humaworm, Parastroy, Hanna Kroeger Wormwood Combo, extra cloves, digestive enzymes etc plus the salt/c protocol saved my life and got rid of the Filarial Worm co-infection carried by many ticks and pictured on www.lymephotos.com
Do a search on here for parasites and also google it. Tx has to be continuous and can take several yrs whether pharma or herbs.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Consider getting your vitamin d levels measured and take high doses of vitamin d
Also consider neurontin for nerve pain
Posts: 1155 | From Southeast | Registered: Oct 2005
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