philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Hey all! I haven't really been on much. Just busy with life taking care of the new babe and I am also back to work.
I have been dealing with morning pain and stiffness and it is driving me crazy! I used to be able to just hop right out of bed but lately, I look like a 90 year old woman when I get up!
I cannot put too much pressure on my feet because my heels and achilles tendon area KILL me! I also have bad low back pain which doesn't allow me to straighten up right away. My neck is stiff and will "creak and crack".
I will have to take my time straightening up, and then moving and stretching for a bit. Once I get to moving around I feel better.
I'll also start to get pain throughout my body if I lie or sit for too long.
I'm thinking this is cardiovascular and due to hypercoagulability. I'm taking systemic enzymes, drainage therapies and did a round of these mucor suppositories which are said to help with blood flow problems.
I'm not feeling any better though. Anyone else deal with this? If so, have you found anything to help make it better?
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Sounds like you're toxic. Does it get better as the day goes on?
Fluids, LIGHT exercise, burbur and parsley detox drops, water with lemon, good diet, glutathione infusions/suppositories, minimal or no coffee.
How long have you been taking the enzymes? They could be stirring things up.
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Yes. It gets MUCH better as the day goes on.
I'm doing pekana drops and also parsley. I've been on the enzymes a while. I started A-bab and took a round of alinia and haven't been right since! Ha!
I actually had to stop everything and focus on detox for a few weeks. I guess I'll have to focus harder on the detox especially since I'm back on A-bab.
I was thinking about investing in a rebounder. I just may do so today.
The no coffee thing is very hard for me. That is how I make it through the day. Having a 4 month old and working 12 hour shifts in the ER is REALLY taking its toll on me.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
I have the same issue...mornings are tough for me to get going...my left knee and left shoulder blade and back are killing me when I wake up...It gets much better throughout the day...I do drink coffee though, but the pain is before that.
Posts: 222 | From NH | Registered: Mar 2011
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tickled1
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Member # 14257
posted
Trust me, I understand the coffee thing but read this:
You may be trying to detox faster than your body can eliminate just recirculating the toxins. This happens to me. I have to be very careful not to mobilize too many toxins at once.
I have been found to have KPU, HLA-DR genotypes that make it difficult to detox Lyme and Mold, and found out I have MTHFR (homozygoues C677T). All of these things make it difficult to detox and all the things that are supposed to help me I cannot tolerate like CORE for KPU, or cholestyramine for mold, or chlorella. Active B12 and Folate are for the MTHFR mutation and I can tolerate that thankfully. Do you have or have you been tested for any of these things?
nhlymeguy, the effects of coffee if you drink it every day stick with you. They don't just occur while you are drinking the coffee. That goes for anything in an unhealthy diet that puts you in an acidic state. All processed/packaged foods should be eliminated too.
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philly78
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Member # 31069
posted
Thanks for the link. Maybe I can start drinking caffeinated black or green tea?
I haven't been tested for any of those things. Money is an issue right now, and my son is also in treatment. He has been tested for some of those things though. I decided to focus on him more than me.
Now that I'm back to work, I should be able to get more testing done. Thanks so much for your response! It is much appreciated.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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tickled1
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posted
You're welcome. Hope I didn't overwhelm you. Hope you feel better soon.
P.S. I think caffeine could be part of the problem but I understand needing it for sure!
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tickled1
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Member # 14257
posted
One more simple thing...I get more sore/stiff if I eat night shades.
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tickled1
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posted
P.P.S. My MTHFR and HLA-DR testing was covered by insurance.
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
*Some* Lyme patients have an over-alkaline system. I needed coffee and HCL to overcome my alkalinity. Dr. J, KS has articles on this. No coffee helps some people, but I did better with coffee. I hardly tolerated alkaline foods when I was sick. Now I eat a very alkaline diet ... but still have coffee.
Maybe you need a lymphatic drainage massage. Sounds like when you wake up and haven't been moving around, the stagnation in the system is making you stiff. I used to wake up and rotate my ankles and wrists before I got out of bed. It seemed to help a bit with that. Or I'd do a 5 -10 min pilates workout at a slow pace just to get things moving. Rebounding might also help.
I think length of time in bed makes a difference, too. I haven't been able to sleep in for weeks, though I'm careful to always get 7-8 hours sleep. Last night I went to bed at 11 and didn't wake up until 8:30. Even I was a little stiff this morning, and I don't have Lyme anymore.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tickled1
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posted
Six, What's the best way to monitor our Ph? Do you have any links to articles that talk about Lyme patients being over-alkaline? I think sometimes I'm over-acidic and other times over-alkaline.
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
If you Google this doctor's name with alkaline, more come up. Perhaps you have both?
I think all Lyme patients are different, too. Everyone's bodies are different, their immune systems are different, their condition when they got sick are different. So what works/feels good for some, might be bad for others.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tickled1
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posted
I'm starting to think I could have both as my Metametrix tests show I have D-lactate acidosis but bloodwork in the past has shown elevated bicarbonate levels.
I've gotten severe episodes that look like hyperventilation syndrome with tingling in face and extremities and slurring of speech with hands clawing up and electric shock sensation.
I still get this but not to that extent but feel like I'm on the verge of that quite often. Wish I could figure out which extreme is causing it-acidosis or alkalosis.
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sixgoofykids
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posted
I kind of think, and I'm no expert it's just from my experience and what I've read, that we have pockets of both. I was more alkaline all over, but I had eaten 50% raw and juiced when I got sick, so I was alkaline (good alkaline) already and having pockets of ammonia made it worse.
But someone else might be acidic, and have pockets of ammonia.
Again, just my understanding of it. But I think that ammonia does cause some difficulty with Lyme. Dr. J's writing on it was a help to me.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tickled1
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posted
I just ordered some Bragg's Apple Cider Vinegar and plan to combine it with olive oil to use on salads.
I also bought some Ph test strips. Wish me luck!!!
Off to read that article now Six.
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sixgoofykids
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posted
Good luck!
I've used Bragg's for YEARS! It's great during cold/flu season to prevent colds.
I'm off for the day ... I had a very lazy morning after a very busy week ... now back to busy ....
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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emla999/Lyme
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Member # 12606
posted
For what it's worth,
For years I used to have more stiffness and pain in the morning than I did in the evening and that stiffness and pain usually improved throughout the day. But now my morning symptoms are much improved compared to what they were. I believe that my natural improvement from the morning hours to the evening hours has at least in part got to do with my natural circadian rhythm and that my trying to eat, drink, sleep, doing daily physical activities at times that are in tune with my unique circadian rhythm. And drinking less water at certain times of the day and ingesting more carbs, a little more sugar and a little more salt at certain times of the day and changing my sleeping and physical activity patterns to be more in tune with my circadian rhythm has really helped my morning pain, morning stiffness and morning sluggishness.
Though, I would still say that I feel better and more energized in the evening than I do in the morning. And also still better as the day goes by.
And personally, I have found the role that your circadian rhythm has on the way that you feel at certain times of the day to be very interesting. Your unique circadian rhythm also seems to affect when the best time for you to eat, sleep, drink water/fluids, exercise and etc. Your circadian rhythm can even effect your body temperature.
I would guess that most people probably know whether or not they are a night person "night owl" or a morning person "lark" but here are a couple of online surveys that a person can take to help determine what their circadian rhythm is and therefore whether they are larks, night owls or something in between.
And according to the survey down bellow I have a circadian rhythm of a moderate evening person (moderate night owl). I have been able to change that over these past several months though because I used to be a definite evening person (night owl).
If you are a morning person (lark) then your body temperature and thus your body's metabolism will usually be higher in the morning than that of a night person (night owl). So, a morning person may be able to drink more water/fluids earlier in the morning because their body temperature is often higher and a morning person will usually wake up feeling more energized than a night time person because their body's metabolism is already higher in the morning as compared to a night time person.
But a night time person's body temperature and their metabolism is at it's lowest in the morning and thus a night time person will usually feel worse in the morning. But they will usually steadily improve throughout the day and feel at their best in the evening hours because that's when their body temperature and metabolism peak.
I have learned that for me, it is best for me to drink more water/fluids and to do more physical activity when my body temperature and metabolism is at it's peak (in the late afternoon/ evening). And it is best for me to drink much less water and to do less physical activity when my body temperature and metabolism is at it's lowest or lower (early morning/late at night).
**** (there is a interesting chart about half way down the webpage on the link above regarding the circadian rhythm of "morning people" and "night time people").
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Philly, You said you are taking systemic enzymes. You could try increasing the dose, and see if your symptoms improve.
I'm presently taking 14 tablets of Wobenzym daily, in one dose on an empty stomach. A while back, I tried increasing up to 20, and I felt much better.
Something else that can help with that creaky feeling is fish oil. Look for one with a very high ratio of EPA, and aim for 2000 mg of EPA daily.
The systemic enzymes and the fish oil help to reduce inflammation, and your stiff joints will feel better. The omega 3's in the fish oil improve cell wall integrity...when your cells function better, you feel better all over.
If your tendons continue to bother you, look into treating with the SOTA Magnetic Pulser or the SOTA LightWorks. Either of these should help, although they work in different ways.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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sparkle7
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posted
I am one who feels worse in the morning. It interesting what emla posted about this. I have always been a night owl. It's a bit difficult being a night owl since most things we do in our society are on a daytime schedule. Alot of my family members are night owls, too.
People I know think there's something wrong with me or I'm lazy since I don't like to get up in the morning. It's not true... I like to work in the afternon or evening/night - so, I'm up at 2AM doing all kinds of stuff while they are sleeping.
When I got ill - this AM thing got much worse. I think it may have to do with the fact that toxins are processed at night when we are sleeping. I don't know for sure, though.
I wish I could get up early. I like the morning but I always feel weird at that time of day. Especially since I've been ill. It's probably different for each individual.
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emla999/Lyme
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posted
Sparkle7,
I too have for the most part always been a night owl. And there for a while I was an extreme night owl!! I couldn't go to bed until between 4:00- 6:00 AM. But slowly I have been able to change my body's circadian rhythm back to a moderate night owl. Though, I am not sure if I will ever be a true morning person.
And personally, I have found that my water drinking and eating habits played a big role in this change. I have also found that a few of my other habits also affected my circadian rhythm.
Our circadian rhythm affects our body in more ways than previously thought.
sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Thanks! I'll look it over. I used to wear a watch with an alarm clock to tell me to go to bed! lol....
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emla999/Lyme
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Member # 12606
posted
I thought that these statements taken from the link down bellow was rather interesting.
"Researchers found that the body's circadian clock controls an essential immune system gene in mice -- a gene that helps the body ward off bacteria and viruses."
"It does appear that disruptions of the circadian clock influence our susceptibility to pathogens."
The circadian rhythm affects our immunity to pathogens/germs:
So, if you are not in tune with your body's natural circadian rhythm then you may be causing your body to be more susceptible to pathogens/germs.
And in my opinion, your water drinking habits/schedule, your eating habits/schedule, your exercise/physical activity habits and sleeping habits and other habits/schedules can affect your body's circadian rhythm (clock) in either a negative or a positive way.
tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Doesn't whether somone is a morning person or night owl depend on cortisol levels too? I myself am a night owl. I think I was once told from cortisol saliva test that mine is backwards.
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philly78
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Member # 31069
posted
Oh wow. Thanks for all the info and suggestions! Hopefully I will get to read some of those links soon.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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