Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Hi guys, I wanted to ask if anyone has ever read any medical journals/literature pertaining to lyme patients later being diagnosed with lymphoma? I now work in oncology and am shocked by the sheer number of my lymphoma patients who are also co-diagnosed with things like fibromyalgia, sjogren syndrome, arthritis, lots of hypothyroid disease, etc.
I am also shocked that since I moved to Oregon a year ago when I tell someone I have had lyme or they see my Lyme Surviver bumper sticker, they immediately start talking about how awful Lyme is!! In Ohio, they would just shrug and act like it's no big deal, I've heard 3 things on the radio about lyme disease out here...I love that there is a much bigger awareness of the disease out here.
Anyhow, if you have any info, let me know, I've done some searching online, but have yet to find a specific article suggesting a correlation.
posted
I just recently starting looking into this myself, because my dad has been diagnosed with lymphoma (don't know what kind yet other the B cells), but he's also had a LOT of bartonella symptoms and I've been wanting him to get tested for a while. I'm curious what you find out!
In case a moderator is reading - Is there a way to put a watch on a topic so I can follow it easier?
-------------------- Wendy Posts: 253 | From Near Albany, NY | Registered: Jan 2009
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quote:Originally posted by Ocean: I've heard 3 things on the radio about lyme disease out here...I love that there is a much bigger awareness of the disease out here.
- And yet, there are no real LLMDs there. Maybe that is why the patients know how bad it is. They stay sick.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymeboy
Unregistered
posted
Interesting. My mother died of Lymphoma 3 years ago this November. Before she got Lymphoma, she suffered for 5 years with a disease called Wegener's. It is an autoimmune disease. They pumped her full of Steroids, prednisone, and others, which would make her feel ok for a small time, then completely ruin her. One of the drugs that she took was reported to cause Lymphoma, (I cannot understand why a drug like this would be on the market).
I am convinced she had Lyme. I remember her taking the tests and they were all negative. It wasn't until 3 months after she died, when I got a positive Lyme test that I started to realize that she could still be here today if we didn't have a system run by greedheaded schmucks.
It kills me to think about it. I have very tough neuro issues, and living with that is definitely making my fight tougher.
Anyway I would love to know if anyone else has made this connection and if there is anything we can do to keep from getting cancer ourselves.
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by WendyK: In case a moderator is reading - Is there a way to put a watch on a topic so I can follow it easier?
Yes, you can check the box for "Email notification" if you post a reply.
That way you'll get an email whenever someone else posts a reply.
You need to either post on "full reply form" or go back and edit your post, checking the box.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Lymeboy, I am sorry to hear about your mom. It seems like anything is possible with undiagnosed lyme.
Regarding not getting cancer, Dr. Oz is constantly pushing to eat as many antioxidants as possible. So I eat the dark berries, tomatoes, that sort of stuff. Even carrots. I am forcing myself to eat just a little. I just pop an extra probiotic when I eat anything with sugar in it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lyme toxins -- or toxins from ANY infection -- and the stress on all organs and systems, can certainly predispose (not sure that is the correct term if not genetic related?) anyone to cancer.
That is just one reason why liver support is so very vital. As Catgirl mentions, antioxidants are important to help guard against cancer where toxins can't be totally avoided.
Liver support is chock full of antioxidants and most antioxidants are good for the liver, too.
Adrenal support is vital to help guard against further damage to the endocrine system. Etc.
But, sadly, the environment in which we live can really set up anyone for any kind of cancer, too. Humans were not intended to live the way we do - on levels too numerous to mention.
Be sure to avoid all scented products. Air "fresheners" have been linked to cancer. So have synthetic colognes, plastic bottles, exhaust, etc.
Check out: Environmental Working Group -
Posts: 48021 | From Tree House | Registered: Jul 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Good addition, TuTu. In addition to sugar, food ADDITIVES (even additives in Rx) can really clobber us. Fried foods, etc.
In a perfect world, we just wouldn't have "foods" that are processed. But it became a way to make money and such products do provide jobs for thousands of people.
There is no need, though. It's been a "created need" - humans need real food. But as processed foods came along after WWII, they were seen as good. Everyone got on the bandwagon.
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Ocean,
You say:
" are shocked that since I moved to Oregon a year ago when I tell someone I have had lyme or they see my Lyme Surviver bumper sticker, they immediately start talking about how awful Lyme is!!
In Ohio, they would just shrug and act like it's no big deal, I've heard 3 things on the radio about lyme disease out here...I love that there is a much bigger awareness of the disease out here." (end quote)
----
This note is not so much for you but for anyone considering moving here.
You seem to have stumbled on the few here who are aware. Most in Oregon have no clue about lyme as it's nearly been declared "illegal" in the the state.
Still, though, there is not one LLMD or MD who is able to fully treat lyme in Oregon. Not one would even spend a minute to explore ILADS articles or conferences.
Good thing that there are a few LL NDs (naturopathic doctors), though, who are ILADS-trained.
And the various support groups work hard to help patients.
The media reports produced locally have all had IDSA slants on them, though.
I wonder - if you recall what you heard on the radio here about lyme - if that was a local station and locally produced. Do you remember what station? Approximate Date?
If so, I hope you might be able to post that so I can look up what was said by whom.
I'm glad that, somehow, you've found those who know about this here. I just want others to be fully aware though, of the state of lyme in Oregon. I've known of some to move here and then be discouraged that no MD will take them seriously.
Oregon has a terrible reputation of how MDs and the teaching hospitals approach lyme and those with lyme. I've had zero help from MDs regarding this - and so much grief.
While even many NDs were sorely lacking in this regard, a few ILADS-educated LL NDs, though, have saved the day for many.
posted
Yes, I more than believe there is a connection, from personal experience and here is a link to a publishing.
A few years back they thought I had really bad lymphoma. Through a bunch of antibiotics while I waited to see the specialist. They gave me about 8 antibiotics (each antibiotic 7-12 days). Then finished with 1 month of tetracycline and the lymphoma was gone.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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Rachel
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