ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My nephew will be starting aerosol glutathione that will be inhaled through a nebulizer. I understand that it has a sulfur smell to it. He is holding on to lots of metals and his little body is showing many signs of chronic Lyme and coinfections although still a happy and active boy.
Do you have experience with this form of glutathione? Any recommendations? Where is the cheapest place to get it?
Has anyone tried the transdermal form?
My son tried the IV form and after a while it was too expensive and he became hyper on it and wouldn't sleep.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I got it from Infuserve America, they had the best prices.
I started with the nebulized glutathione and have switched to the IV form since I can do it faster since I now have a port.
Glutatione is a great help. I only notice a difference if I use it about twice weekly. It helps reduce herx symptoms. Reduces the joint pain, body aches, and general fluey symptoms. If I don't take it I start to feel miserable (like now, I ran out of my RX for 2+wks...).
The nebulized form does stink and it kinda feels like it gets hung up in your throat. It will probably make you cough at first then you get used to it. I guess that's pretty normal especially when you start and are needing the detox. It was also stinky with the sulfur smell but you get used to that too as the treatment goes on. I realize that my description sounds bad but it is not. Obviously I continued treatment.
I would recommend the glutathione. It helps.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I don't have experience with the inhaled form but I tried the oral form and had a horrendous reaction. First a headache which would not go away and then it turned into the worse migraine of my life. Hours and hours of intense pain, then vomiting. I almost went to the ER, it was that bad.
I wasn't expecting this at all since glut was billed as something that would make me feel better.
My LLMD thought it might be due to sulphur toxicity. I wanted to mention this because I saw that you said your nephew might be loaded with heavy metals.
So, if he tries it, please have him start with very small doses and then work up v. gradually. I am so glad I didn't try the IV form and I would hate for a little boy to go through anything like I did.
Posts: 1737 | From Virginia | Registered: Aug 2011
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Thanks Sammy and WPinVa. You helped a lot.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
posted
I've been using lipisomal [sp] form, and yeah, it is sulfury tasting.
I combine it with vitamin C, and I think it's helping me quite a lot.
Posts: 161 | From vancouver island | Registered: Feb 2012
| IP: Logged |
surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Glutathione suppositories are another way...
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I did read about lipisomal and suppositories as options. Any form but plain old oral I guess will work.
Is there a blood test for gluathione?
We take NAC and ALA hoping to increase glutathione the cheaper route.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
posted
I use the nebulizer for glutathione. It's pretty easy and doesn't smell too bad at all to me. I can't say if it's helping me or not since I'm on so many meds and supplements. I get it through Lee Silsby. I understand you're supposed to do it in the mornings. I do it twice a week.
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
| IP: Logged |
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My DD uses oral glutathione with alka selzter gold for a herx. She can tell an almost immediate relief.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I didn't know they had an aerosol form (don't know much about it). The first time I did a glut push version I loved it. It gave me a euphoric feeling. I was happy for days.
The next time, good feeling, but not like the first time. Then the third time, I got depressed and started herxing right away. I tried it one more time to be sure, and the same thing happened (depressed, and herx). So, I can't take it anymore. I may try again in a few months.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/