I have a lot of anxiety that is only relieved with complete rest and nobody talking to me (not really a possibility)
Are anxiety/panic/depression related to crypto herxes (neuro herxes). I think that when you are feeling that way it can be really hard to decipher. The physical herxes seem more definitely herxes.
I am on art and crypto (1 tsp 3 times per day) started right in on the full dose.
My shoulder pain has definitely intensified in crypto, although it was present previously.
And now I have cold, but am happy to report it has been almost a year since my last one (I used to have colds and sinus infections constantly)
So...what are your crypto herxes like? Does it tax your liver (thus shoulder pain....this is what my PT believes it is "referred pain" from the liver being taxed)
Thanks
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You might decrease the dose. It could still be the same dose per day, perhaps, but lower doses more frequently? Or just lower daily dose and build up as your body instructs you.
Yes, pain can be referred but inflammation in nerve fibers and other tissue can cause pain to increase.
With any kind of herx, pain seems to increase. Herx support link to follow. Liver stress is just part of lyme, part of any herx and part of full body inflammation. Details in the next post.
I had absolutely zero problems with it. I felt better on it. Still, individual responses vary.
Listen to your body and make adjustments to decrease stress or "shock" from all directions.
You say: "have a lot of anxiety that is only relieved with complete rest and nobody talking to me . . ." (end quote)
THAT sounds like adrenal exhaustion and, although you say that it's not a possibility to have no one talking to you, this is a very serious message that your body is giving you to
Get Quiet & Stay Quiet & Still.
Patients in adrenal failure used to be instructed to stay in dark, quiet room and only very short visits. No stimulation as even a short quiet conversation would put them at further risk. Seriously.
I don't have a link to that but around 1996-1999 I read that in a medical book in a medical school library when I was searching. Google had just been invented in 1998 and I had no computer.
Since, I've tried to find that book and quote but have not been able to, still, I recall it clearly. I had copied the pages but lost them long ago.
Now, I know you say you can't do that, however, were you to have a broken ankle, you'd have to figure out a way to stay off of it.
If our adrenals are "broken" we simply have to find ways to get quiet and stay still - at least for certain long periods of time.
However possible, adjusting stimuli is very important for most of us during treatment. It's a very real physical requirement for many reasons.
I hope there are ways to do that.
In addition, we have the advantage of knowing about adrenal support. Link to follow.
In addition, with infection and treatments that can be hard, too, the strain on the various nervous systems so be sure to have nervous system support with FISH OIL, B-vitamins, etc.
I have to stop now but hope with others' replies and links here, you find some comfort. -
[ 08-21-2012, 12:49 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
I thank you so much for everything you just posted. You are very right about a lot of it. I think brain fog is something that impedes my abiity to figure out how to get the rest I need.
My problem solving skills are shot and it has been a long arduous summer for me.
I get that shaky feeling with my adrenals. I have it now. I also caught a cold.
I just got back from PT....my therapist just told me "your body is completely depleted, you need about 24 straight hours of complete rest".
God bless him, he is always right on.
Again Keebler thank you for your words of encouragement.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
No doubt about it, Keebler rocks!
Crypto brought out some bart symptoms for me. Anxiety, panic and depression sound like bart. I decreased my dose to twice a day (helped) and I still had some benefits from it.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Well, not sure about "rocking" but hope stuff that comes to my mind helps.
When reducing amounts - better to do a smaller dose each time but still spread out over the day rather than decrease the number of doses.
More water might help, too. Instead of putting the tincture in a half cup of water, try a cup of water. Nurse it a while. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Pme, my husband had shoulder pain before he started abx for lyme. He doesn't have babs, so I wonder if it is lyme related. I do wonder if he has bart though.
Crypto brings out bart symptoms for me (treating for that too). As far as herxing goes, I herx every weekend ever since I started the crypto (also Byron White). I basically feel like crap (just like with my lyme herx). I do notice a tiny bit of air hunger on the weekends, and that tippy feeling, but for the most part they are better than they were. If I get too tired though, I bang into walls.
I did go off of this stuff for a week once and all of my babs symptoms came right back (slid backwards).
Rest is critical for lyme. I think even Burrascano said it in his dvd, Putting Lyme Behind You. Rest hard.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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I just think it is ironic that you have brought up bart symptoms.
I always thought that I had more babs symptoms, but now am wondering about Bart.
one...because my neuro sx outweigh my physical ones
two...because my daughter who has congenital lyme and just started treating had this herx involving the bart rash. I was shocked and didn't realize that it was the typical bart rash until I posted here (she has had zillions of different skin related issues in her short life, but never anything that looked streaky)
So... think you may be onto something. Very astute.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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