posted
Yes, my colitis was caused by c diff. It makes trating lyme and co much more difficult but forced me into alterative treatments which have helped me very much.
You have to heal the colitis first. Best wishes
Posts: 747 | From Utah | Registered: Apr 2010
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posted
So sorry to hear that. I have a bad colon from a botched colonoscopy. I have done some ABXs but didn't have any trouble inflaming my bowels any worse than they were. I still am not healed, but seem to be able to treat things. I agree though, I would love to get my bowels healed before going on the big guns, OR..... finding alternative and naturals that do not harm the intestines. I am on a powder mix call GlutAloeMine by Xymogen. It has L-Glutamine, Arabinogalactan, Licorice Root, and Aloe Leaf Extract. My LLMD says it heals the gut. Hope so. Anyone else used this?
Posts: 620 | From Ks | Registered: Oct 2011
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Many times my c diff test would come back negative. The stool test for c diff are very inaccurate. Lab corp and quest are the worst. For c diff testing, the hospital outpatient labs are generally better.
Yes my colitis is much better. I still have to be careful of things that disturb gut flora or I do get mild colitis symptoms return, but nothing like the first time I had c diff.
Alternative treatments that have helped me the most are photons. Bionic or PE-1, and infrared saunas for detoxing on my month off from treatments. I found that rife to be very effective against lyme, but also killed gut flora and c diff would return. Many folks are able to tolerate antibiotics again as well as herbals and rife, I am not. My colitis was severe however.
Best wishes
Posts: 747 | From Utah | Registered: Apr 2010
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My LLMD just emailed me to go back on bicillin shots.
To try one shot a week, and if that works go up to two and email her.
Why am I so nervous about this? Its damned if you do-or don't.
So I'm taking again my first shot soon.
-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Colitis can be caused by Lyme/coinfections. This means treatment of the Lyme/co's may result in a colitis flare.
Coconut oil, probiotics and an allergy-free diet (especially gluten free) may result in reduced inflammation in the colon (probiotics have been proven to be as effective as mesalamine based medications for colitis in clinical studies; VSL #3 is the one most studied for this purpose).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I had terrible stomach problems with Lyme Disease. It took me over two years after Lyme treatment to heal my gut completely, but it is back to normal now. Here are some things that helped me:
fermented foods - raw sauerkraut (NOT pasteurized), homemade kefir (simple to make, just buy kefir grains from kefirlady.com), and kombucha. These are much stronger than any probiotic you can take, and I took VSL#3, and fermented foods were stronger. Much stronger.
PARASITE TREATMENT!!!! - I had an upper endoscopy and a colonoscopy. I did parasite stool testing. Everyone told me I had no parasites, but I had an upset bacterial balance in my intestines. When I did a parasite cleanse, I SAW the parasites. I had them.
No Gluten. Even if you're not sensitive, it's hard to digest. And No Sugar.
You can heal the gut with persistence. I thought mine would never be normal. It was severely damaged from disease even before abx. I couldn't eat solid food. I didn't digest what I ate. It was YEARS before I could eat any raw fruits or vegetables.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by Talktel: they tested me for parasites. IT must have been negative because they didn't tell me it was posiitive.
I am taking vsl. Does rice contain gluten, because that I am eating. I am abstaining from sugar.
Yes, as I said, my parasite test was negative, too, yet I CLEARLY had them. It's hard to miss a ten FOOT long tapeworm and THIRTY 15 inch long roundworms.
Even if it's not large parasites, you certainly have an imbalance in the gut. Too much bad, not enough good.
Rice is gluten free. I, personally, do better without it, but it is gluten free.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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quote:Originally posted by Talktel: When I have a colonoscopy on Sept 12, will he be able to see if there are parasites?
No.
I had both a colonoscopy and and upper endoscopy. Neither showed parasites. Parasites are in the small intestine, so don't get seen with either procedure.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
I treated my gut while in Lyme treatment, then it took two years after Lyme treatment for it to be normal again. So, don't stop treating it when you stop treating Lyme!
My doc didn't treat parasites. I used Humaworm. Some here use Parastroy. Both are good. It's easy, just one product.
Lymenet was the ONLY support system I had as far as learning about treatment. I was bedridden.
Unfortunately, you have to learn about Lyme, even with a good LLMD, they can't do it all as they only have a limited time with you, but you know your body and what it needs.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
There is a great product that heals colitis naturally called Intestazyme. You can find it online. My 8 year old son had terrible colitis from lyme and antibiotics. It healed after being on Intestazyme for a few months. He still takes 2 pilss twice/day every day on an empty stomach.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
Humaworm has a website. I think it's Humaworm.com
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Yes, you can take the intestazyme with antibiotics, unless for some reason the antibiotic is not compatible with the ingredients. It is enzymes to heal the gut, along with slippery elm and some other soothing things. Pureformulas.com sells it.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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-------------------- RI Posts: 440 | From New York | Registered: Sep 2005
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
no side effects for any of us...just helps the gut feel better. We test it energetically through electrodermal screening and it shows it will heal colitis when we have it every time. And we have seen the results! Recently we all became very sick from contaminated well water (giardia, cryptosporidium, etc..) - that's why we are all on it now.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Unfortunately, you have to learn about Lyme, even with a good LLMD, they can't do it all as they only have a limited time with you, but you know your body and what it needs.
- Amen!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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