posted
just want to hear everyones description of the
words brain fog, what does it feel like for you,
because for me, the words brain fog just dont sum it up, please include feelings, emotions, perceptions, and
visual stimulus, when ever i try to explain to
friends or stupid doctors they just dont get it and
i can barely articulate these feeling into words
or lamens terms thanx
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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Note that just about every symptom can also be caused by lyme.
Also note that come of the clues here can help. For instance, since those with vestibular issues are bothered by fluorescent lights, AVOID them. it really helps to do so.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS & SCD - Superior canal dehiscence -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This can also help you explain to others:
posted
i have trouble describing that as well and it's my main symptom. to me, it feels as though i've been drugged 30 min after waking.slow thought process,trouble finding words,head tremor. just an overall feeling of being drugged no matter what i do or don't do it's with me for the day. I have not worked in two months because of this.
Posts: 137 | From New england | Registered: Aug 2012
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
It can feel like you are out of your body.
I call it "OPS" for outer-planetary surrealness.
Posts: 4682 | Registered: Oct 2000
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posted
i just want it gone, so how can we do that, does anybody no, 2 years and seven months of this nightmare is waaaaaay long enough, i can deal with pain aches all that stuff but for the mind to always be foggy, it gets to be to much it is to much i just want it gone
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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posted
derk... candida/yeast can cause brain fog too.. are you careful with your diet and taking good probiotics?
I hope you find a Dr who can help you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
After I had a spell of being unable to read, couldn't figure out how I was supposed to do it, I concluded later this was brain fog.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
thanx lymetoo, i dont know whats up with me ive
never taken antibiotix, if thats what you mean by
candida or yeast, i dont no if thats how you get
it, but i eat good healthy meals, i dont have the
best diet but by far not the worst diet, i have
been drinking socially over the years, but i no
that drinking and lyme dont mix, but i havent
drank in two weeks not a drop and i still feel
foggy and lethargic and just crappp, just a
quick question i have 30 days of 100mg doxy, ive
never tried one thing not one, would all you guys
and girls would you guys try the doxy even with
this mind set just to atleast see if it helps at all ???
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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posted
Brain Fog to me feels like living underwater. It makes me feel stupid and embarassed because I can say the wrong words, transpose letters in words and can not remember the simplest of the things. It also feels like it is not me. Someone else has moved in without being invited. A true loss of control of one's life. I feel pressure in my head, distant from others and alone.
Posts: 65 | From Just Maine | Registered: Jul 2012
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derk, if you have Lyme the Doxy will probably make you
feel worse before better. Maybe not. Some like Lymed2010
never herx on abx.
If you don't start treatment and you have the disease(s), you
Will become progressively worse; Lyme is a degenerate
disease.
Maybe try the Doxy but back off if it makes you feel too bad.
You won't know unless you try; but you will need more than
you have to start feeling better. I hope you can get to an
LLMD; it doesn't sound like you have one according to
the posts here. I pray you see some hope and find direction soon.
Posts: 331 | From West Coast | Registered: Jan 2012
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Perception of reality s SO distorted. Real everything one dy, next is the payback, living surreal, identity, relationships with fam, friends, it's so sick.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
thanx for the reply you guys, just makin sure im not cray, YETTTTT
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's one thing to describe what it's like and quite another entirely to describe it for others.
Consider your "audience" and how they will interpret your saying that you feel "out of body" or surreal, etc.
Be very careful when choosing expressions. They will make an impression and, maybe, not for the best. If you were in their shoes, what kind of descriptions would best convey the experience?
Consider your audience, not that you are to be an actor but in how they will receive the communication. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
When I have brain fog, it feels like my brain is full of jello and thinking takes a really long time. I also feel sort-of numb, and sort of out-of-step with the world around me - like the world is moving way too fast and I'm stuck in slow-motion.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Someone will ask me a question. I have to wait for my brain to re enter my head and re program while I stare at them with a doe in the headlight look.
Then I say, can you repeat the question?
I have even had to say, I don't understand your question-can you re phrase it.
Life feels like I live it looking thru wax paper
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It is exactly like being in a fog; cloudy, unclear, hard to decipher, fading away. I hate it too. Mine is better now but so scary to recall what it was like. Dementia. Memory Loss. Inability to concentrate. Thoughts fall through the cracks before I can complete them.
Examples Pick up the telephone to change the channel on the TV. Forget my son's name and think to myself, "now what the heck do I call him"?
Get angry at my husband for trying to explain something about the computer. Shout out, "don't you get how stupid I am! I won't be able to remember anything you are telling me so stop it!"
Begin a drive to another town which is one road, straight the whole way, and get lost. Have no idea where I am or how long I have been driving. Go home crying and scared.
Feeling like dementors have sucked my soul out. What is the use? Why bother?
So what is it like to begin to recover? When I remember something - something I was supposed to buy at the grocery store - a person's name I have not seen in a while - to do something important. . . any time I remember something I thank God.
When I can actually decipher something I feel so good - It is like the sun coming out on a cloudy winter day. Everything feels bright. I just want to do a dance - "I am thinking, I am thinking!"
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
WOW!! i wish you guys could all speak for me you guys nailed it for me esp you neferr, thats how i feel , it sucks
-------------------- +++++++ do i have lyme, please comment, derealisation,anxiety,floaters,hypertension,tinnitus,dizziness,minor aches,igenix results,igm,**83-93ind,igg**41++ what do u think,please comment Posts: 195 | From california | Registered: May 2011
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
The best way I have found to describe brain-fog to people, is to ask them if they have ever had a really really bad hangover - one in which they were just a zombie and could not think or talk, just basically "wasted".
Then I tell them that brain-fog is a lot like that.
Posts: 1358 | From Midwest | Registered: Apr 2009
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posted
It made me happy to see this thread, not because I'm excited there are others suffering with "brain fog" but because its a very alienating way to feel and I've got it bad lately so its nice to know I'm not alone.
For me, I feel like i'm watching a movie and don't really understand it and I'm not even sure I wanna be there.
It gives me an anxious feeling because I worry about how long its going to on and how am I supposed to exist like this and accomplish anything or even just support myself.
When I get it bad I very depressed and discouraged and spend my time looking for solutions....not really enjoying the world around me.
I always try to remember it does break and when it does the world if full of color and laughter.....everything is new and beautiful again:)
Hope everyone going through this gets a break from it soon.
Posts: 137 | From ATX | Registered: Nov 2011
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
The loneliest feeling imaginable.....all of the above, living a fake existence, not being able to feel joy or pleasure.....everything seems like you are watching a movie.
Posts: 3528 | From US | Registered: Apr 2007
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posted
It feels like I am awakened out of a dead sleep and thrown into the middle of the Superbowl. Confused about daily tasks, getting lost/disoriented, not connected to my body, feel numb both physically and a little emotionally--cannot compute things to process.
Simple things just don't make sense like they used to. Conversations are nearly impossible.
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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posted
All of the above...plus "brain shocks" every single night while trying to fall asleep...'sounds like a metal spoon banging on a metal pot along with flashes of light...none of my LLMDs (I've seen three) seem to know what they are...mini-seizures, maybe? All I know is that it totally sucks! 'Had it for three years now! 'Been on IV meds and orals...nothing seems to help! I just wanna die most days!
Apparently folks do get better from it though! Good luck and hang in there!
~tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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