posted
What ever happened with that new drug for chronic lyme disease that is in FDA Hands? reading about this months ago on another forum.A CURE MUST BE FOUND, ENOUGH OT ALL THE SUFFERING!
Posts: 10 | From montague massachusetts | Registered: Aug 2012
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posted
Could you tell me more about this drug? I haven't heard anything about it. C.P.
Posts: 106 | From Colorado | Registered: Jul 2012
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I think that they were doing research on a specific drug; I don't think that it is in FDA hands at all. The research is being supported by Time for Lyme, if I remember right.
But frankly, I don't think there can be A drug that will cover all of these infections. We would be lucky if we could find one drug for Lyme alone! Which is also unlikely, as spirochetes develop resistance quickly---not to mention the different forms of Lyme, the biofilm, and other methods of evading the abx and immune system.
Posts: 3792 | From around | Registered: Mar 2008
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This drug is based on the claim that chronic Lyme is caused by leftover proteins from the borrelia bacteria. Basically the IDSA autoimmune side of things. ILADS doctors such as Dr. H and Dr. Burrascanno agree that the immune system(proteins) causes inflammation. But they disagree that this is the cause of all the symptoms of chronic Lyme and there's possibly a still underlying infection, possibly co-infections too...
Truthfully, I take that side of ILADS after reading the primate article! http://www.plosone.org/article/info:doi/10.1371/journal.pone.0029914 Especially since before I got really bad, I took three weeks amoxicillin by my family doctor, thinking it was just a sinus infection/common cold. Helped but did not cure me, 8-10 months later I developed the inflammation. I definitely believe this is a stronger bacteria then most.
But I would say it is possible that even though you have a underlying infection, this could still help people with the inflammation and allow them to live their lives better. For instance, taking antibiotics and this drug at the same time for pain and a persistent infection.
I honestly think this could help me, I've been on eight months of antibiotics and inflammation has not gone away. It has actually gotten worse with antibiotic treatment, I went into my LLMD with just burning wrists, now have burning knees, hands, fingers and ankles. And things haven't gotten better with the inflammation!
On the other hand will this drug lower our immune system and could possibly make things worse? I think this is all up in the air... And what about the side effects?
Could be good for people who've had Lyme for year or two. But someone who's had Lyme disease for 5+ years, all that time allowing for the bacteria to embed...
A lot of doctors believe that chronic Lyme is nature's mistake. I honestly think that we make more mistakes than nature does.
My birthday was yesterday, so you probably know what I'm wishing for! Let's all hope for the best with this drug! Make sure everyone keeps updated about the drug by making posts!!!
**edited name of LLMD**
[ 09-05-2012, 01:23 PM: Message edited by: Lymetoo ]
Posts: 267 | From MI | Registered: Oct 2011
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
REALLY hard to believe that even the "best" LLMDs are ignoring the parasite/worm co-infection. Burgdorfer AND Eva Sapi found ADULT filarial worms in over 40% of the ticks that they dissected and over SIXTY species.
FILARIAL WORMS CAN PLAY A MAJOR ROLE IN CHRONIC INFECTIONS. Check out www.lymephotos.com This is what came out of me after six mos of antiparasitic herbs and salt/c.
I just don't get why this is being pushed under the carpet. On top of it, these ticks can be carrying roundworms, hookworms, threadworms etc.
The idea that some miracle drug is being touted to knock out all of these infections just seems like another money making scheme to me. Sorry for being a party pooper,
I am just sick of the b.s. Borrelia is NOT the main problem here. According to Dr. K., once the parasites are eradicated, the other infections incl. bb are much easier to knock out.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I mean think of it this way, say you treat all of parasites with a month or two months of Humaworm and antibiotics. Well for some reason they're still other symptoms, what if the fatigue and inflammation are all caused by the immune system going after the left over proteins. It's possible this drug could be added to the arsenal as an effective weapon against Lyme Disease and its left over effects.
quote:Originally posted by glm1111: The idea that some miracle drug is being touted to knock out all of these infections just seems like another money making scheme to me. Sorry for being a party pooper,
I know the IDSA is not even really taking a prospective of a persistent infection, it p!sses me off too. But don't get discouraged thinking this is not going to help you.
Overall, yeah, this going to be no miracle drug.
Posts: 267 | From MI | Registered: Oct 2011
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posted
I think the drug will help a lot of people. It will make it so our bodies can detox the Lyme. I think it's really for those who don't detox well, or at all. 20% of people have these genes.
It could make it so the ones that can't detox can be exposed to mold and not have to take binders like Cholestrymine. It may only work on the Lyme protein though. I don't know.
I think it's a good drug but certainly not a cure, it will only benefit the people who have this problem. My suspicion is that it is for the majority of people active on this forum that aren't in remission.
Posts: 845 | From Northeast | Registered: May 2011
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
I'm one of those that can't detox well and I've been told that toxins could just be recirculating making me sick even after infections are gone.
I have KPU, MTHFR (homozygous C677T) and HLA-DR genotypes that dan't detox Lyme or Mold. If this is something that could help me detox and I didn't have an adverse reaction to it I'd be thrilled.
Even if they're only doing this to make $$ on a drug if it helps me I don't care.
Posts: 2541 | From Northeast | Registered: Jan 2008
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Even if they're only doing this to make $$ on a drug if it helps me I don't care.
- If there is no profit, there is NO drug company.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
I have no problem with the money making part. What I do have a problem with is that the drug doesn't hold true to it's promise and it's just another carrot.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
MuscleCar55 -
HAPPY BELATED BIRTHDAY!
Yup! I betcha I guessed your wish ... and may it all come True for you! : )
Posts: 1432 | From New Jersey | Registered: Jan 2012
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