posted
It didn't help... I have terrible gastro pain and bloating, and extreme food sensitivities. I went on the GAPS diet for about 6 months and also ate very low fructose while doing it (this was before I knew I had lyme and thus had no idea that the bartonella might be causing my symptoms).
I'm sure it does help some people, as I read so many stories of it helping people with neurological issues or dysbiosis, but it definitely did nothing for me. My symptoms remained the same, and I felt like I was eating an even more restricted diet than I really needed to. For example, my diet right now is essentially very similar to the GAPS diet except that I now eat quinoa, but I feel the same as I did on GAPS.
Also it is a real pain in the butt to spend so much time making soup and homemade sauerkraut etc!! I wouldn't mind if it had actually produced results, but in the end it didn't improve my leaky gut at all, and was just a waste of effort.
Posts: 24 | From Toronto, ON | Registered: Jan 2012
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I tried it too after being on an anti candida diet for almost two years and getting nowhere. Was on liquids for 3 months and couldn't get myself back to solids. First time in my life I started to tip into an eating disorder. I was starving and completely out of balance and ended up doubled over in abdominal pain for days at a time on more than one occasion. At the end of all of this I got a stool analysis back and conditions in the gut had actually worsened. I truly believe it helps some people. For me it was the wrong way to go.
-------------------- Just a catepillar, full of imaginal buds. Posts: 143 | From Philadelphia, PA | Registered: Mar 2011
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Lymetutu: Has the person who is helping you been on the diet? I used the SCD diet when I first got sick.
The GAPS diet evolved from that diet. The premise of the SCD is to stop eating all polysaccharides. Those are the sugars that get digested in the large colon but can also ferment there giving food to bad bacteria.
It is the large colon that houses most of the bad bacteria. The idea is to starve the bad bacteria and replenish the colon with good bacteria.
I was on the SCD diet for 4 months. It gave me food to eat because I was having so much abdominal pain. I also think it cleared candida which has made taking antibiotics easier.
There is a website called realfoodreallife. They make fermented drinks and a fermented probiotic.
I have started it because I read that fermented foods have much more live bacteria in them.
Maybe that may be helpful for you as well?
Many blessings!!!
Posts: 538 | From kentucky | Registered: Nov 2011
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I am hoping to heal my gut and get rid of candida. Yes, this person was/is on the diet. She had pancreatic and liver cancer and is doing VERY well. God sent me a big blessing when He connected the two of us!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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Wow Tutu! Did she really beat pancreatic cancer? I thought that was impossible!
Posts: 2541 | From Northeast | Registered: Jan 2008
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Hi Tutu... I think I may have mentioned this before but this was a big corner for me in terms of healing. I did it for about a year and still follow it to some degree. I like the soup and bought the saurkraut. I would say I am yeast free. When I was in Germany a woman with lyme told me that a doc told her that she would have to eat protein and vegis -- no fruit or sugars and she could beat candida. I have done a combo of the two things and do not believe I have candida any more. I found it miraculous in terms of healing the gut!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
Tickled.. she had a cancer of the islet of the pancreas. They removed half of her pancreas!!! She had 17 tumors in her liver. I'm not sure how long ago.. but I think only a few years.
She looks great and says she feels great!
willbeat... thanks.. that is so encouraging. I must beat this candida. If I ever have to go on abx for pneumonia or something, I'll prob die from the fungal infection, not the pneumonia!
PS .. I totally trust her. I met her 2 yrs ago at a banquet for a ministry I am involved in. Her husband and I are now on the board of directors. We have a ministry in Cameroon. It's awesome!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I like a lot of the things from Nourishing Traditions and Weston Price. There's a blog called something like The Nourished Kitchen... something like that.
I went to a conference this past February and Sally Fallon spoke - and I took a cooking class. Many people, including some of the speakers, spoke very highly of GAPS. It's also big in the autism community.
I think the stock, the liver, and the fermented foods are super important. You can buy Fermented Cod Liver Oil (we like cinnamon the best).
There are plenty of fermented foods besides sauerkraut. Zu-Kay brand kvass, kombucha, kim-chee, and Bubbe's brand pickles. I've even heard the suggestion to drink pickle juice (assuming it is "real" pickle juice, not regular store-brand pickles with vinegar).
Good luck! I think it is soooo good for you, especially for yeast issues!
-------------------- Garden
"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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tickled1
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I think I will have to go on GAPS or SCD for life now.
Before I got C Diff I found out I have D lactate Acidosis and probably SIBO and yeast. Have been reading about all that and prognosis is not very good and recurrence rate is very high.
I am scared. Looks like one of those diets, probiotics and maintenance abx for the rest of my life however long that may or may not be.
Sorry to sound like such a downer just scared and burnt out. Who knows though. Maybe this is the last piece of the puzzle and actually adhering to things will keep me on track and heal me.
Maybe this all happened for a reason: to force me to adhere to diet and probiotics. If Tutu's friend could heal from cancer than maybe I can beat this too!
Posts: 2541 | From Northeast | Registered: Jan 2008
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That's where I am too, tickled. That is why I preach and preach about avoiding yeast. Once you get it, it's hard to get rid of it.
I believe WE ALL should be on probiotics for life. Even healthy people should be taking them.
I need to go GMO free also.. The problem is the $$$$$ .. They are killing us with this "food" in the US. We need to be GMO free and need to be buying organic... especially meats.
I found out that my friend had her surgery about 14 yrs ago!! So she really is a miracle. She said it took them about 20 yrs to diagnose the pancreatic cancer. I've heard others say this as well.
Yes, if SHE can get well, so can WE!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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This gives me hope Lymetoo. Thank you.
And yes, $$$ is the problem!
Have you started the GAPS diet yet? I can't even bring myself to look at GAPS or SCD in detail. Will do that over the next couple days I guess.
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
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Shoot! I'm already seeing some things with reading about GAPS that worry me. Says to use eggs and I'm allergic. Says to use peanut butter-I'm allergic. No mention of lactobacillus overgrowth and avoidance of D lactate containing probiotics. Also don't know if the fermented foods contain D lactate. I guess I have my homework cut out for me.
Posts: 2541 | From Northeast | Registered: Jan 2008
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Tickled1: Learning a different diet is like going to a foreign country to live. At first it will be difficult because you have to learn everything.
Once you learn everything, it becomes easier. Then, you adjust and start enjoying life again.
SCD is more manageable than GAPS. People have recovered from all the things you mentioned on SCD. There is also a support site on yahoo just like this one. They are very encouraging plus the veterans post recipes.
Maybe this is the ticket for you. It certainly will improve your gut. By the way, it is a great diet for SIBO.
Posts: 538 | From kentucky | Registered: Nov 2011
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posted
Soccer.. what's the difference in the two?? I have the GAPS book on loan right now and tickled is right... too many foods I can't eat.
They have onions in EVERYTHING .. if not onions, then garlic. I may be able to handle garlic. Onions .. not sure.
My friend is making some sauerkraut right now. I'm anxious to try it, but it may kill my stomach.
Not sure this is in the book, but I'm supposed to make bone broth. It is supposed to be very healing to the gut. She brought me some and it is just fine.
editing.. OH, just saw the "homemade meat stock" in the link I gave above. So it's there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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I have to research these diets more and it sure would be great if this was the ticket for me. I am confused though b/c things that should help me hurt like probiotics make me nauseous and digestive enzymes burn my stomach.
I don't know Tutu. Maybe we'll be able to tolerate some of those foods after our guts are healed? So confused. Also confused about fermented foods. I can't eat vinegar for instance. Makes me very ill, spacey, confused, burning face, ataxia type symptoms. Are there different types of fermented foods like why is vinegar which is fermented bad but some fermented foods good?
Posts: 2541 | From Northeast | Registered: Jan 2008
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I'll ask about the vinegar. I know they use apple cider vinegar.....and I THINK it dissipates??
I can't tolerate digestive enzymes either. I left them off for several days and today I took one. Have been in pain ever since.
I was using Zymex II by Standard Process and I think it was OK. I "graduated" to Enzycore but it has not gone well for me!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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I'm supposed to see my LLMD next week and am going to run all this by him but honestly I don't think he will know how to handle this since everything that is supposed to theoretically help me I can't tolerate.
I bought some apple cider vinegar a little while ago but then chickened out on using it b/c it is not pasteurized I am scared. I know the while idea is for it not to be pasteurized but I feel like if it's going to screw anyone up it will be me.
Do you know at which point in the SCD or GAPS diet they introduce the enzymes Tutu? Maybe we're just not ready for them yet?
Posts: 2541 | From Northeast | Registered: Jan 2008
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You know what? I've been reading the book tonight and regardless of whether or not you try the diet.. you need to read the book!!
GREAT information!!!
I think you can try the ACV if you dilute it. My friend cooks it in the bone broth. Seems to be OK with my stomach.
I just read about the 'alcohol' put into our system by candida... hmmmm
Also said that cooked onions are healing. hmmmm
Not sure on the enzymes. I've tried for years now to take them. The Zymex II that I mentioned is not really enzymes, but my chiro said it helps digestion.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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I just don't know about the type of bacteria in the ACV and don't know if it would raise my D lactate levels and make ataxia type symptoms worse from D lactate acidosis.
As far as alcohol from candida, it, and by-products from all kinds of intestinal bacterial overgrowth flood our systems with all kinds of horrible toxins. That is what causes my neuro symptoms. Our bodies can't metabolize D lactate for instance.
The onions being good thing makes me scratch my head too. I think I will get and read the book though. Also the SCD book.
I am getting frustrated w/my LLMD b/c when I call for advice on various things, more than once he has told me to take Therelac. My Metametrix testing says not to take D lactate containing probiotics AND I have a milk allergy and Therelac contains d lactate bacteria AND is derived from milk so he is pi$$ing me off by recommending things w/out looking at my file.
It is very clear that docs don't know the first thing about all this and I'm wondering if I really want to pay him to educate him on it!
I have to hurry up and cancel this morning if I'm going to b/c my appt. is Mon. I just don't know what to do. Don't know if I should go and spell this all out for him one more time or not.
Posts: 2541 | From Northeast | Registered: Jan 2008
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posted
SCD came along before GAPS. SCD is more related to gut issues while GAPS believes that healing the gut can heal the brain.
GAPS diet is much more restrictive from what I have read.
The first book on the SCD diet was called the Vicious Cycle. It was written by Elaine Gotschall.
Posts: 538 | From kentucky | Registered: Nov 2011
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Regarding the alcohol that is produced by Candida ...
Excerpt from page 51 in the GAPS book:
"So what does alcohol and its by-products do to us?...There is no part of the body that will not suffer from the constant supply of alcohol even in tiny amounts. Here are just a few results of chronic presence of alcohol in the body:
1. Reduced ability of the stomach wall to produce stomach acid. 2. Pancreas degeneration with reduced ability to produce pancreatic enzymes, which impairs digestion. 3. Direct damage to gut lining, causing malabsorption. 4. Nutritional deficiencies through malabsorption of most vitamins, minerals, and amino acids..... 5. Damage to the immune system. 6. Liver damage with reduced ability to detoxify drugs, pollutants and other toxins
-- 11. Alcohol has an ability to enhance toxicity of most common drugs, pollutants and other toxins."
-- I may come back later with more.
I think many Lyme patients are REALLY overlooking what damage CANDIDA/YEAST is doing to them!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
It's supposed to be VERY HEALING to the gut. That is why I'm going to try it. My GUT is a total train wreck. Candida/yeast is a huge issue and we need to start from the bottom up, so to speak!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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I did the SCD diet for 18 months with absolutely no sugar or fruits. It probably saved my life. I still have big gastro issues,but have discovered I have parasites. I have read so much about worm parasites and Babesia being the culprit for Bells Palsey of the Gut. I don't know for sure, but think this is my problem. I have been on parasite meds off and on for about a month. After I finally found one I can tolerate I think I am passing parasites. YUK!!!! But, if I have to it I will. I am hoping doing this will allow my digestive system to start working right again. My tremors and buzzing have gone to almost nil, compared to the roaring activity I had before starting parasite meds.
Posts: 620 | From Ks | Registered: Oct 2011
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Which parasite meds are you taking? I'm sensitive to everything I've tried.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
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posted
Tutu, try using your rife machine for parasites and candida.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I used Allinia,,,,way too strong. Then I used Paradex by Progressive Lab.
The best one was Wormwood Combination by Kroeger Herb.
Wormwood did give me discomfort, but I had results and still doing it. Detoxing any of this stuff is not fun.
I like it because it contains cloves and from what I hear, it can kill parasite eggs.
My intestines definitely feel much better. The pain level has gone from a 8-9 to about a 2-3.
I am so excited that something is finally addressing that area in my hip that has been the focal point of my distress.
Posts: 620 | From Ks | Registered: Oct 2011
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tickled1
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Saw LLMD yesterday. He wants to do a stool test for SIBO and said not to start the SCD diet till I do the test? Said specific abx needed to hit SIBO like low dose erythromycin for long time which increases motility? and I think Xifaxin. Of course yeast needs to be addressed as well. I guess xifaxin stays in the gut and is not absorbed systemically.
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
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Oh! He also said the Metmetrix testing is pretty reliable for parasites and that I tested negative which he said surprised him as he would expect them in me?
Anyway, he is also suspecting MARCONS due to a chronic sinus issue and he swabbed me. Results should be in soon.
Posts: 2541 | From Northeast | Registered: Jan 2008
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glm1111
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Adding digestive enzymes and extra cloves to parasite herbs will add an extra punch for getting rid of eggs, larva, mycoplasma, parasites, candida and other invasive bacteria.
Cloves are antibacterial and an analgesic as well. I take Super Digestaway by Soloray. You can take these in between meals as well.
Really helps with brain fog as it digests away harmful bacteria, yeast etc. Also Aloe Vera GEL/Juice is excellent for candida.
P. S.
don't be fooled by lab tests for parasites. I had many tests over the yrs that were negative and I was LOADED. Best to at least try an antiparasitic herb to see if it provokes a herx.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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quote:Originally posted by tickled1: [QB] Saw LLMD yesterday. He wants to do a stool test for SIBO and said not to start the SCD diet till I do the test? Said specific abx needed to hit SIBO like low dose erythromycin for long time which increases motility? and I think Xifaxin. Of course yeast needs to be addressed as well. I guess xifaxin stays in the gut and is not absorbed systemically.
- Be VERY VERY cautious!!! At least your GI was smart enough to TEST you!!!! Mine just "decided" I had SIBO, gave me two weeks of Xifaxin and ever since then I have had HORRIBLE CASE of yeast.
and my GI doctor DOES NOT BELIEVE IN CANDIDA IN THE GUT!!! That was 2 yrs ago and I'm still suffering.
SIBO is the latest greatest thing for GI drs...
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
glm... I can't take digestive enzymes, nor aloe vera (due to citric acid) .. can I get cloves by themselves?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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glm, I have a difficult time tolerating digestive enzymes b/c they burn my stomach. Interestingly though, once I took Wobenzym with food and I had the most horrible smelling BM's one could possibly imagine. I mean other-worldy. Even my 5 yr. old daughter commented on it when accidentally walking into the bathroom on me. I also was very loopy in the head during that.
Tutu, my GI doc is NOT smart...it was my LLMD that ordered the testing LOL! At least he will know how to address yeast too if SIBO shows up. I'm assuming the tests for SIBO aren't common w/GI docs and not covered by insurance since I'm paying out of pocket for this. Also paying out of pocket for the nasal swab. Seems that should be covered. I dunno.
I think aloe was on the illegal list for SCD diet for some reason.
Posts: 2541 | From Northeast | Registered: Jan 2008
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Well, tickled. My supposed SIBO was actually YEAST to begin with. I just didn't recognize it.
Keep us posted on the SIBO.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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Pretty sure I have both.
There's no way around buying the book is there? Have you started the diet yet Tutu?
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
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You know, I had SIBO/yeast symptoms long before Lyme and I'm thinking if this left me predisposed to chronic illess/infections in general.
Man it would be amazing if GAPS could transform my life. Seems worth the effort. I am overwhelmed with what's involved though and have had a very hard time adjusting diet up till this point.
Maybe having a book to refer to spelling it all out for me will be the tool to help get the job done.
Posts: 2541 | From Northeast | Registered: Jan 2008
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Have you been to their website?? Maybe you can read more about it there.
I haven't really started it, but am avoiding foods that GAPS patients are to refrain from.
My friend is slow in getting me started, but it's really in my court now. She's got some sauerkraut and will show me how to make it. She's supposed to come over this week.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tickled1
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I'm confused as to whether I should do SCD or GAPS. I imagine either one would be an improvement.
I have found some info on a few websites but it seems it is still highly recommended to read the book/books. Here are a couple websites:
tickled1
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Hi Tutu,
What's the latest on your GAPS journey? Thinking about ordering the book today but still not sure if I should get GAPS or SCD book.
I have to do something. My stomach is a mess. Am thinking yeast is a big problem now after the 2 courses of PrevPac and then Clindamycin and then Flagyl. And of course the years of abx before all that.
A couple of years ago too Diflucan really messed me up and all of a sudden I developed extreme sensitivity to vinegar which I believe aggravates or cross-reacts with yeast and mold.
I'm thinking that there was such a big die-off from the diflucan that I couldn't clear it b/c I have major detox issues with MTHFR, KPU, and HLA-DR.
I guess my plan of attack is to do one of these diets, do glutathione infusions to detox and maybe try enzymes.
So should I buy the GAPS book Tutu?
Posts: 2541 | From Northeast | Registered: Jan 2008
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tickled1
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..and of course probiotics too.
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