posted
The biggest hurtle I can't seem to get over is fatigue... and I mean relentless fatigue. Sometimes I wake up tired, sometimes I wake up refreshed and quickly become tired, it's very unpredictable.
Anyone else experience this? Anyone who has experienced this find a way to get over it?
Posts: 5 | From Pittsburgh, Pa | Registered: Aug 2012
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posted
My LLMD seems to think that it will gradually lessen on IV Rocephan and Biaxin. I am starting to sleep less and can do a little. But the abx are tough to take and wear you out.
Good news is that my husband is GREATLY improved, is up at 7 and able to work at last. His tcell count is up but mine is quite low. Doc says my immune system took a beating from too many years untreated. Last year my husband slept alot...now he just naps a little in pm.
we both went GF and eat simply. But meat, protein shakes, fresh fruits and vehetables are important. If you can juice, that will help, too.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
My LLMD seems to think that it will gradually lessen on IV Rocephan and Biaxin. I am starting to sleep less and can do a little. But the abx are tough to take and wear you out.
Good news is that my husband is GREATLY improved, is up at 7 and able to work at last. His tcell count is up but mine is quite low. Doc says my immune system took a beating from too many years untreated. Last year my husband slept alot...now he just naps a little in pm.
we both went GF and eat simply. But meat, protein shakes, fresh fruits and vehetables are important. If you can juice, that will help, too.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Fatigue is a major part of this journey, unfortunately. But it can be your friend in that it requires us to toss aside all that does not matter and focus on what's most important.
It requires us to be excellent with food for nutrients and with our time so as to rest and get to bed early at night with the lights out.
While fatigue is just part of having such a complex infection and the stress on the body, in addition to assertively& specifically addressing:
infections, parasites, heavy metals, any issues with mold or chemicals in our surroundings, nutrition,
LIVER SUPPORT LINKS & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you mention, unfreshening sleep is a hallmark of lyme. Some things can help but treating lyme & other tick-borne infections is THE most important key.
Many with lyme also have inner / middle ear issues that affect balance, reading, walking, talking, concentration -- and all that can cause fatigue.
If you have any of the symptoms on this list, try to avoid sensory stressors where you can. For instance, avoid ALL fluorescent lights as much as you can. I never turn mine on in the kitchen and have a floor lamp and another lamp on top of my fridge with regular incandescent light bulbs, not the low energy kind.
STAY OUT OF BIG BOX STORES - IMO, this is one of the most important things to help us not get just blasted from all the sensory hits from smells, noise, lights and all other million things that vie for our attention in these places that do not resonate with the human body.
Go scent and chemical free.
You can take your cues from the list below as to how to lower sensory stressors.
VESTIBULAR SYMPTOMS [note that nearly every one can go along with lyme or other tick-borne infections] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You probably are clear of additives but, just to be sure as they can cause severe fatigue for those with lyme:
THE REQUIREMENTS OF PROTEIN & AMINO ACID DURING ACUTE & CHRONIC INFECTIONS
Indian J Med Res 124, August 2006, pp 129-148
- by Anura V. Kurpad
Fifteen pages of text.
Excerpt from abstract on page one:
. . . In general, the amount of extra protein that would appear to be needed is of the order of 20-25 per cent of the recommended intake, for most infections. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My doc says that's the last symptom to go. I still have problems with fatigue, although it has gotten better. In fact, it seems to be my only symptom these days...
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
I use to sleep most of the day and night...so much that I just counted the hours in a day I was awake. Addressing adrenal fatigue has been really beneficial for me. I rarely take naps anymore. Through testing, it was revealed that I have really high cortisol levels throughout the day.
To work on this, I take Adrenal complex, adapten-all, licorice plus, and LDN. Hope this is helpful for you!
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
Overwhelming fatigue was my husband's main symptom. It is getting better with treatment.
He was diagnosed with adrenal fatigue before the Lyme and is working on recovery from both.
Posts: 2612 | From USA | Registered: Aug 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
coq10 helps me a lot-good quality
also if i stop my cortef or armout thyroid it is worse
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
also-doing what i have to to get good quality uninterrupted sleep
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
TREAT BABESIA .. the NUMBER ONE cause of extreme fatigue!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I agree with Lymetoo. I have an issue with fatigue and after feeling better this summer, when I took a break from treating Babs, I noticed that when I started back on the protocol my fatigue increased.
This just made me more certain I still needed to to treat it.
I have also found that taking regular rests and pacing myself improves my fatigue.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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