nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Did simple patch test with how quickly Iodine faded from arm. Mine was quickly.
So Thyroid/iodine is off. some supplements suggested ,but a couple say not to/or careful if you have Hashimoto's
I would think with all the blood test over last few years something would have been said.
Is this usual to be low from these meds or the illness?
Thanks, nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Some people think that patch test is not much good.
I am taking iodine along with thyroid meds, and have hashimotos. It was determined by blood test for autoantibodies to thyroid. Since lyme attacks the thyroid, maybe to drop body temp, I don't know if this came about because of lyme. Thyroid problems run in the family, but I don't think anyone else has been checked for hashimotos.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
I have been diagnosed with Hashimoto's by Endo doc...I had high antibodies in my blood and TSH finally elevated to whatever level they need to start medication...they did U/S and it showed thyroid w/nodules and holes...typical of Hashimoto's...I have zero family history of any thyroid problem, but my Endo refused to acknowledge Lyme as any cause or relation to the thyroid problem.
My Endo just called me this week and said my TSH jumped to 15!!!...it was always around 4 then went down to 2 on medication...don't know what triggered this.
Posts: 222 | From NH | Registered: Mar 2011
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posted
Yes, blood tests need to be run to check for antibodies. I have Hashimotos but none of my family members have thyroid disease. The Lyme disease attacked my thyroid as well as the rest of my endocrine system. Any LLD knows this kind of information. When I first got sick I thought all of my smptoms were from my thyroid disease, but now I know the thyroid was a secondary illness caused by the Lyme. It's difficult to balance hormone levels because of the Lyme disease. No matter what my TSH or T4 or T3 are, I'm still sick, and it's because of the Lyme.
I wonder how many people think they just have a thyroid problem when in fact they have both Lyme and thyroid disease? C.P.
Posts: 106 | From Colorado | Registered: Jul 2012
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posted
Yes, blood tests need to be run to check for antibodies. Any doctor can order them. I have Hashimotos but none of my family members have thyroid disease. The Lyme disease attacked my thyroid as well as the rest of my endocrine system. Any LLD knows this kind of information. When I first got sick I thought all of my smptoms were from my thyroid disease, but now I know the thyroid was a secondary illness caused by the Lyme. It's difficult to balance hormone levels because of the Lyme disease. No matter what my TSH or T4 or T3 are, I'm still sick, and it's because of the Lyme.
I wonder how many people think they just have a thyroid problem when in fact they have both Lyme and thyroid disease? C.P.
Posts: 106 | From Colorado | Registered: Jul 2012
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Be aware that the auto-antibodies that indicate Hashimoto's can vary from time to time. That is they may show up some of the time, but not all of the time, depending on whether you are having an attack or not. When they don't show up, that doesn't mean that you don't have it, if they have tested positive before.
With hashimoto's, your thyroid can jump between hypo and needing high doses of thyroid to hyper and needing lower doses. It's very frustrating!
Posts: 3771 | From around | Registered: Mar 2008
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
where to go to find out?
If I'm on nature thyroid 1 grm now is that all they would do anyway?/
It doesn't seem to be helping.
Then do most take natural bovine supplements to support or what..
I have about 2 ounces of energy in me right now..It's 1 am.....
Does the thyroid mess up sleep also or just adrenals?
I have asked so many doctors, specialists,etc over the years. .could I have just finally bottomed out??
I felt like this was starting as an issue over 7 years ago. The doc's just seemed to have hodge bodged at it.
Lord I can Just get to restroom... I'm supposed to see an MD, doesn't take insurance of course, spends up to 3 hours with you to check this kind of stuff.
I have LLMD that is supposed to know anout this ,but isn't focus right now.
The appointments old , have a today if to cancel....
Maybe my PC could just handle it if I could get there and not focus on LD.
Whatever happens I need help that takes very little effort to get in me until I start coming back to functioning...
I can't imagine what my contacts and lack of response by mail/phone must be thinking at this point...
I have some cytomel also (T3) so many supplies so few instructions
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Nonna -
Thyroid is tricky because the standard for "normal" isn't always normal for some people, and a GP might just blow you off.
I.E., the tests can seem "within range" but that might not be "normal range" for you!
An endocrinologist is the person to see when you suspect thyroid problems. Usually they can tell by blood work, combined with your symptoms.
And from what I have heard from folks who are hypo, or have Hashimoto's - the Armour Thyroid - which is prescription (made from swine thyroid)seems to be the "first choice" for boosting a low thyroid and feeling more normal.
I would not take over the counter bovine products - esp. without a someone monitoring your blood levels. Just common sense. Moreover, any thyroid treatment is going to take about 2 months to get noticeable results.
And in your case, Lyme and Cos are going to make you feel like a zombie anyway, so how do you tell the difference without blood work?
Good to see you back on the boards my friend. Hang in there!
Posts: 1432 | From New Jersey | Registered: Jan 2012
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Thanks, I was ready to throw the works at me/in me.
Held back so doc can run blood work.. I am om nature-troid ,which is supposed to be like Armour.. That is the only one I want cause it's not supposed to shut down your own for life..
I did order what I thought was same ,but it came in Little baggy from Taiwan or something
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Thanks, I was ready to throw the works at me/in me.
Held back so doc can run blood work.. I am om nature-troid ,which is supposed to be like Armour.. That is the only one I want cause it's not supposed to shut down your own for life..
I did order what I thought was same ,but it came in Little baggy from Taiwan or something
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Most endocrinologists use only TSH to determine thyroid function, and are not open to more advanced ideas.
Posts: 2888 | From USA | Registered: Mar 2004
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
should I stop my supplements until blood test?
One I just noticed has Iodine..I'm sure others have bovine stuff??
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
NO. Get your Free T3 and Free T4 tested every 6 weeks or so. Those are the numbers to be watching. TSH is only the phone call that the body makes telling it needs more T3/T4.
If your free T3/T4 do not go up, then supplementing with cytomel is what most doctors do.
Also, over time, your nature throid may need to go up. This takes time and won't always be a quick thing.
Your stamina is not going to be the first part of recovery. Many say it happens much later and very gradually. Try not to stress and just get tested so you know where your numbers are.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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