posted
I finally have gotten a positive test for bartonella henselae IGg after 12 years of failed lyme treatments. I always suspected it, but, could never get a positive, so I have never been treated.
My primary wanted to put me on levaquin, but, I was afraid. I talked her into Rifampin 300mg twice a day, combined with zithromax 250mg twice a day. I have read that this is a good combo, but, would love to hear personal experiences on abx regimens for bart.
My primary also wants my to see Dr. H in NY, but, I just can't afford it. So, I'm trying to get her to prescribe the necessary treatment.
I have almost all the lyme syptoms on the list, and lately the internal buzzing/shaking with joint cracking and pain has been off the charts. I am not currently treating.
My son has bart and finished 7 months of babs treatment (+ blood test) with a mepron/zith combo in Aug. He was also taking Abart and continued on it alone. His rash, which had gotten slightly better, has gotten worse after stopping the mepron/zith.
I don't think that the Abart did anything, and that it was the zithromax that had helped the rash fade slightly. So, doc put him on rifampin/zith combo (150 2xs/day dose of rifampin for children)
Anyway, I'm hoping that this combo will help us both. I'm trying not to get my hopes up, but, I'm so excited. A positive finally! And, my son is seronegative, but, he has the rash, so he definitely has it.
Any input would be appreciated. Thanks.
Posts: 418 | From NJ | Registered: Sep 2007
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posted
Thanks, Joysie. I will be taking S. Boulardii instead of tindimax to prevent C. difficile. Have you had any problems with rifampin? I'm a little afraid to start my son on it, since he is running cross country right now. I don't know if this will interfere with his running, and give him bad side effects.
Posts: 418 | From NJ | Registered: Sep 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Patience needed with slow tx on bart. It can take a year or even longer to rid yourself.
Just want you to know going in that it takes time. I'm not sure your primary is going to want to follow thru with this long term tx.
Only a LLMD will know just how stubborn this bacteria can be at killing off.
It's funny how we are happy when we have a positive test for something so nasty. But it helps us to stop doubting the obvisious sx wise.
I hope you do well with rifampin.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Thanks, Pam. I was just saying the same thing. How sad that we are happy with a positive result. But, when you have battled something for this long, any answer is better than none.
My primary has trained with 2 top LLMD's, and is trying to get me to see Dr. H in NY, but, I can't afford it. I think that I can talk her into treating for a year. If not, I will have to go to an LLMD. I also have a coil machine that I will be trying again.
Thanks for your input!
Posts: 418 | From NJ | Registered: Sep 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I'm not familiar with coil machine. But I will tell you freqs 832 & 357 for bart for me are strong hits.
Of course strong hits means tougher days to follow. I'm only able to do this once a week. Many say bart needs daily tx with rife.
I don't know....I guess I just need to bite the bullet and take myself out of life in order to do it.
That's great that your primary is lyme literate. I have one too. Thank God for that. Not many are blessed to have support from their primary.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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No luck so far for me with 832. I need to try 357. Yes, I was told that you must coil twice a day to get the bart, because it reproduces so quickly. I just don't have the time. I can barely drag myself out of bed in the morning to drive my son to school and make it to work, let alone get up earlier to do this. Plus, I have seen no results so far, so I haven't felt much incentive. I'm hoping these meds will help. Fingers crossed! Posts: 418 | From NJ | Registered: Sep 2007
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