posted
Hello, i am in the 5th week of iv rocephin 2grams daily; i had some head pressure and fog with some dizziness in the begining of this bu it settled down, but it has returned for the last almost 2 weeks now and it does not seem to let up at all. I aslo have been having insomnia and neck stiffness which is worse than normal. Now i know the iv rocephin can get in the head really well and i am probably having a herx. i have been taking extra glut with alkaseltzer and lemon lime water plus other supps like NAC, Alamax, Sydetox, and ITIRES. I guess i am just looking to see if anyone else experienced this with iv and if anything helped; i have been thinking about asking for iv glut. Also how long it lasted for you? Thank you kindly, dee
Posts: 79 | From Maine | Registered: Sep 2011
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gmb
Unregistered
posted
My LLNP told me that week 4 or 5 after starting IV Rocephin would be pretty bad. It should settle down in a few weeks, but expect monthly flares or herxes for a while. I didn't have the monthly flares, but its a more constant herx with head pressure and brain fog.
I started IV back in December 2gr daily then 2 months later went to 2 grams 2x/day for 4 days on and 3 days off since then.
I've most likely plateaued with Rocephin and have been hitting Babs pretty strong with Mepron/Zith and Bactim DS. I'm starting to have some pretty good days now and then.
Insurance coverage for CY2013 should be out soon to see if I can afford to stay on IVs into next year. Every year they up the rates (and deductables) and lower the coverage.
Alkaseltzer works for me also. And lemon water daily.
hang in there, progress is slow. Have you treated for Babs or Bart yet.
posted
thanks gmb, i fear that i may be like you in that i have a constant head herx of this, i hope i am wrong though!. But so far i don't see a pattern, although it's still pretty early. I am also taking Malarone currently for a few months now; although i really do not think i have babs; i don't really think i have the usual symptoms. Bart is another stroy, i never tested pos, but i believe i have it. I do have some of the symptoms and when treated with Abart i reacted strongly and couln't take it, also a few months ago i took only 2 doses of rifampin and reacted very strongly to that and could not take it, I also tried factive and developed tendonitits only after a couple of weeks so i had to stop that one also. Not really sure what to do next about bart. I will be seeing my LLMD soon and will ask him. Thanks again, i guess it will be slow going and i just have to push through it, ugggg
Posts: 79 | From Maine | Registered: Sep 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I had head and neck pressures so bad that I could not walk very much. I could only take showers laying down I the tub. This was for a month before starting any ABX.
I started IV Rocephin 2G per day and by week 3 most of head and neck pressures went away and I was able to walk. I never had any increase in head pressure, only had it melt away initially. Thereafter, I only got worst and with new symptoms each week.
They said some get worst before getting better. I felt more and more like I was about to have a stroke, with blockage in my head. It only got worst during the 4 months of IV Rocephin. Then I tried Ceftinand same decline.
Next I tried Doxy and Biaxin and it melted all the head and neck symptoms and many of the other ones. Over many months again things got worst with new symptoms.
Posts: 2094 | From NY | Registered: Oct 2011
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posted
I am experiencing the same head pressure on zithromax 250 mg. Lots of headache, sinus pressure and popping in my ears. If found acupuncture and neck adjustments from the chiropractor helpful. It is a weird sensation I never felt before. I had the same theory- that it is the abx working in the brain causing the pressure.
My doctor has no comment on it, at all. I do feel more face and neck tension and headaches.
Posts: 4 | From Brooklyn | Registered: Feb 2013
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