posted
So confused...... Phototoxed and got a minute of direct UV, Also treated with Cedax for Lyme and took some glutathione......soooooo sick!!!! Anyone have a worse herx with glutathione?
Posts: 16 | From Louisville KY | Registered: May 2012
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dbpei
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posted
The second time I took it, my symptoms seemed to flare that night and the next day. I did not feel it helped even a few days later. The first time I took it, I felt really good the next day - almost like I did pre-Lyme. Can't figure out why the difference.
Posts: 2387 | From New England | Registered: Aug 2011
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Summer3
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posted
I always feel really good for about a day. When I wasn't so severe I would get 2 or 3 days from an IV where I felt great.
My numbness, twitching, energy etc. were all significantly improved. When I am in a really bad state, I just feel better but am not able to do anything like I used to (running, hiking, etc.).
Catgirl
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posted
Yeah, there is something up with this that the docs haven't discovered yet. The first few times I tried glutathione, I felt fantastic. Then the last two times immediately made me depressed and herx. It was within minutes of getting a push or IV glut. I've heard this from other people too (herx/depression).
Glutathione is bioenginered, but I don't know what is in the base of it (any fats or oils). I am sensitive to fats and oils now. They make me depressed and herx too. I can no longer eat nuts either. So, the less fat I eat, the better I feel.
I suspect it has something to do with protomyxzoa, but I tested negative for it. Maybe there is another undiscovered bug (babs like organism).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Just don't understand the mechanism of action.... If it is such a great detox ...... Why did it make me so sick??? My phototox also got worse? Does it go first into tissue and then suck out the muck and transfer it into the bloodstream ? If then you can't detox fast enough and get sick?? Just trying to rationalize. It made me so much more light sensitive that I had a "nerve flash" of scalp nerves and left me with h/a, dizzy, and tachycardic and arthymias for several hours!!! Yikes!
Posts: 16 | From Louisville KY | Registered: May 2012
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droid1226
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posted
Depends how you're taking the glutathione. IV is great for detoxing but also creates a lot of yeast.
Keebler
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posted
- Editing to add SUN SAFETY NOTE: Some medicines require avoiding any sun exposure. Doxycycline is just one of many. Check the pharmaceutical company home sites for all your RX details.
---------------------
I don't know what you mean by getting " Phototoxed" or the source of that one minute of UV therapy but, if with artificial light, all bets are off regarding reactions as there are so many variables.
I have heard that IV glutathione has helped many but the oral has mixed reviews. Maybe, later, taking it would work better if you start very slowly.
As for glutathione, not sure of the brand you take (capsule?) but it may work better to work on basic liver support that helps your body manufacture its own. Be sure to let your LLMD know of your reactions.
If by, phototoxed, you mean that you feel poisoned by the UV lights you used, I would not use those again. Sunlight should be better but even if that is too much this time of the year, just DAYLIGHT into your eyes helps.
If your skin has reactions from sun, check the Rx and or the porphyria links in this links set. There are over 11 kinds of porphyria and the tests are very extensive but also not totally reliable.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
[ 10-20-2012, 07:41 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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dbpei
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droid, I never heard that IV glutathione caused yeast. I have a pretty nasty yeast invasion in my gut right now. The glut was about 2 1/2 weeks ago. Interesting...
Posts: 2387 | From New England | Registered: Aug 2011
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posted
It's possible that you could have a difficult time detoxing through the glutathione detox pathway. It's one of four major drains in Phase II liver detox.
Phase I is like the bathtub filling up with water too fast - ie, toxins too quickly. Phase II is like the bathtub doesn't drain well - ie, not detoxing properly.
A genetic liver detox test can be done through the Genova Lab in NC - test is called the detoxigenomic liver test. It will show your body's genetic ability to detox.
I can't handle glutathione treatments of any kind, and the test showed I don't detox it well, genetically.
Posts: 13171 | From San Francisco | Registered: May 2006
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Summer3
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posted
I had not heard of glutathione causing yeast either. I have only had a problem with that a few times and each time it was right when I started a new medication. Rifampin, Clindamycin and Ceftin caused the worst cases.
I don't take a ton of stuff for yeast either. Just off and on Nystatin.
Keebler
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posted
- Just added to my reply above:
SUN SAFETY NOTE: Some medicines require avoiding any sun exposure. Doxycycline is just one of many. Check the pharmaceutical company home sites for all your RX details. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
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posted
Glutathione is a very, very strong antioxidant...might kill Lyme/co's directly also...
And it is known that when mobilizing stored toxins, one can feel sicker... Binders should help, plus Vitamin C.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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WPinVA
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I had a horrible reaction to glut (oral). Got the worst migraine of my life - incapacitated, pulsing pain, vomited. I almost went to the ER.
My LLMD said it might have something to do with sulphur toxicity.
Posts: 1737 | From Virginia | Registered: Aug 2011
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Tammy N.
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I haven't read everyone's replies, so if I'm repeated what someone may have shared, please pardon me.
If you have a sensitivity to sulphur, or a detoxing inability to process sulphur, Glutathione can be an issue for you as it is sulphur-based.
I have issues with sulphur. Still trying to solve this problem myself. Some times I can tolerate sulphur things well, other times I cannot For the most part, I try to avoid them until I can figure out a way to better process it.
Posts: 2238 | From East Coast | Registered: Jul 2010
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Razzle
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Molybdenum and Vitamin B12 may improve your sulfur tolerance...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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dbpei
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Razzle,a very informative article! Thank you.
Posts: 2387 | From New England | Registered: Aug 2011
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Tammy N.
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Thanks Razzle. Very interesting article. I have re-started taking Molybdenum in the last few weeks.
What I didn't realize is the possible detoxing effects and symptoms. I have been feeling like hell physically and couldn't put my finger on exactly why (like today, for instance, my spine is killing me, from top to bottom). After reading this link, it has me thinking maybe with the molybdenum I'm stirring the pot quite a bit.
Think I may back off and see if my symptoms subside. Then ramp up again, slowly this time.
Thanks again.
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
I think it depends a lot on how toxic you are as to the reaction. Also the source of the glutathione could make a difference.
Back in 2001 when hubby first got sick with tickborne illnesses and we were trying to figure out if it was still mercury toxicity or something else he got his first glutathione IV's. He went out of work the next day on disability and never went back to work.
He got 2 glutathione IV's on 2 consecutive days. I think it was either 400 or 600 mg the first day. He felt bad that nightand vomited supper, but decided to get the 2nd Iv the next day. The dose on the 2nd day was increased to either 800 or 1000 mg -- both were IV's drips over about 15 minutes I think.
During the 2nd IV hubby started having dry heaves and got really bad Parkinsonian tremors. He scared the other patients in the docs office.
On the way home -- would normally have been a 3 or 4 hour drive -- I had to pull over every 20 or 30 minutes so he could throw up. We stopped at my sisters for a couple of hours halfway home and finally made it home.
It was probably 6 months or more before another ACAM doc could talk hubby into trying IV glutathione again. That time we started with only 200 mg IV push. Quickly worked up to 1400 mg 1 or 2 times weekly.
Later hubby did IV glutathione 1 or 2 times daily once he got his PICC line for probably 3 years. At that time it was the only thing I could give him to wake him up from his seizure-like spells enough to get him into the bed.
One doc who was into muscle testing said hubby might as well drink the stuff he had such a high requirement for glutathione.
Eventually we got to another doc who suggested a different brand of ALA (alpha lipoic acid) -- ALA Max. By using that hubby was able to produce enough glutathione on his own and got off the IV's.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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