posted
I am just wondering what you guys think is the best treatment for bartonella?
I have been on rifampin for almost 6 months now and alot of my symptoms went away but then they started coming back again. I was also on ceftin,plaquenil and bactrim, and zithro with this and flagyl.
I had to go off abx the last week because of elevated liver enzymes and since then my hot flases, pain behind my eyes, sore feet and anxiety have returned (is this bart????)
anyway.iam seeing my LLMD on monday but I was wonderign what you guys thought..is it ok to stay on rifampin for more then 6 months? would you switch it up? and if so, to what?
Would levaquin be a good choice? Iam scared of the cardiac side effects but I would like to rid bart!
What would you guys suggest doing? is there anything other then what i mentioned that i can take for bart?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
A-bart. It works for me (I was on rifampin & doxy).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lymeboy
Unregistered
posted
There are a lot of different meds for Bart, and everyone has different levels of success or failure with each one. For me, Cipro has been great keeping it under control, but I wonder if there is more to be hit. I KNOW there is actually. Rifampin is a hard drug to handle, and doesn't work well with other drugs. Levaquin is stronger than Cipro and in the same family.
There is a tendonitis risk with these drugs. Be careful.
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Jamers
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posted
Call me crazy...And I may be but those symptoms are my babs symptoms. Or at least symptoms I've had flare every time I treat babs
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Sorry I didn't finish... I took Rifampin for 9 months just to be sure. I think my Bart is gone. If your Bart load is down then it could be another infection coming to the surface. This happens with me.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
I like Rifampin. I feel like it is the least risky for side effects compared to the quinolones. Liver tests are needed though regularly.
I was worried about the risk of liver issues since I have had very elevated enzymes that are transient and difficult to control, but since starting Rifampin my liver enzymes have remained at or close to normal. However, I recently added some stronger stuff to my combo so I'm not sure they will be normal for long..........
I have been combining Rifampin with lots of other meds but I am monitored very closely by a LLMD. For instance, I take biaxin which can interact with Rifampin, so I take it several hours away from Rifampin. I isolate Rifampin at 3:00 a.m.
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My DD was on Rifampin for nine months and she did fine.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Jackie, I was thinking the same thing as Jamers when I read your post Posts: 845 | From Northeast | Registered: May 2011
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Hmm..interesting that these symptoms can be BABESIA! How do you know folks....these symptoms went away with babs treatment?
Posts: 3528 | From US | Registered: Apr 2007
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I was thinking babs too. I heard foot pain throughout the day can be babs. Hot flashes fatigue and anxiety also
Maybe the Bart is knocked down and babs is coming out. Can you take a challenge with some ART?
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
Can you guys who say babs give me some sources as to why u say babs? Everything I have read makes it seem like Bart so I'm confused
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
It is very hard, almost impossible to know for sure which pathogen causes symptoms that we have.
Before I started the photon treatment I tested positively (energetic tests) for Borrelia, Babesia, Bartonella and Mycoplasma. I was sure that all my neuropathies, anxiety, joint pain and foot pain was caused by Borrelia and Bartonella.
Now 5 months later I�m Borrelia, Bartonella and Mycoplasma free. I still have Babesia which I�m actively treating right now, heavy metals, which I'm actively chelating and fungi have also showed-up.
The most interesting thing is that to my big surprise many pathogens are gone with the treatment, but only few symptoms are gone. My sleep got improved drastically and my IC is gone, which is a great relieve. But the rest of the symptoms is still here, some got even worse(herxing!!) ,meaning it�s Babesia or heavy metals or both of them are causing it. My symptoms get much better when I increase the detox and addressing the KPU also helped a lot in reducing the pain and overall toxicity.
I have never had �classical� Babesia symptoms, but as I can see now ( thanks to energetic tests!!!) it might be all along THE MAIN PATHOGEN causing almost all of my symptoms. I say might, because the heavy metals toxicity can�t be ignored , as it may add-up.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
wow interesting Anuta. Are you treating babesia with meds or photons? How did you find an energetic tester?
I wonder why the photons have worked so well for some and not others.
Posts: 3528 | From US | Registered: Apr 2007
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posted
CD-57-: I�m treating with photons + low fat diet+ salt/C on and off.
I use Biotensor to test myself. I guess that if you chose to treat with photons, in order to have a success - you MUST do the energetic testing few times a day. Because things are changing very quickly, much faster than treatment with meds and you have to know what has to be addressed, is a priority, which frequency to use, how often, etc... ART tests are very helpful even with traditional treatment using meds or herbs, but for photons it is a necessity.
My Borrelia took 2 months to go, Bartonella took 3 months ( I was on abx, herbs and antimalarials for 2 years prior to that and still tested positive for all pathogens!!!), but if I did not do the tests I think it would not be that fast.
Babesia is another story, it is much harder to treat even with photons, it is fighting back like hell, but things are moving, will see how long it will take to eradicate it.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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Catgirl
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Member # 31149
posted
My LLNP told me that pain behind the eyes and sore feet are bart. Hot flashes, babs.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
My LLMD told me the same catgirl but she said bart can cause hot flashes too and light sweats
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
I think it is Babesia or Babesia-like organism....maybe fl1953.
Posts: 722 | From CA | Registered: Dec 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I will start a new post if this is considered hi-jacking... but could anyone explain to me about photon treatments and Biotenser? I am not sure what this is.
Posts: 2387 | From New England | Registered: Aug 2011
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posted
Well, you will know if Bart treatment takes care of the symptoms. There is a lot of symptom over lap with these infections.
Posts: 845 | From Northeast | Registered: May 2011
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