posted
My husband has been treating for just over 2 years and has been making great improvements!
Recently he was having a lot of GI pain and we thought it was his Gall Bladder. His doc referred him for an abdominal ultrasound. We got the report back. It is I showing 3 tumors 1.5-3cm in size. The report also says that they appear to be metastases not primary liver CA.
Needless to say we are a bit freaked out! He had a CT scan last week and we are waiting for those results. He is also having an endoscopy and colonoscopy this coming week.
So by weeks end we should have a better idea of what is going on. Lately I've been hearing a lot about biofilm being cancerous and that many Lymies end up with CA.
The GI specialist said that the tumors could also be from infection.
I am just throwing this out there to get folks thoughts.
Anyone? Thanks!
[ 10-25-2012, 10:32 PM: Message edited by: LymeMom Kellye ]
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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posted
Most tickborne patients who report cancer seem to be ladies with breast cancer -- have no idea if it is cause and effect or just coincidence.
What you are reporting goes to show the importance of not ignoring major symptom changes and not assuming everything is a herx or that all symptoms are always lyme or tickborne related.
Best wishes for a good outcome.
Bea Seibert
P.S. I am sure you know about the importance of getting a 2nd or even 3rd opinion before doing any invasive surgery or treatment. You probably should research and see if a PET or SPECT scan would show any more info than a CT scan as the more info the better. Or another option could be thermography.
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Rereading your post I am a little confused -- were the lesions on his liver? Liver lesions are quite common and often not cancerous. Not sure that an ultrasound is reliable as a means of determining if a tumour or lesion is cancerous.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Impression: several solid liver lesions with target morphology, these ranging in size between 1.5 and 3 cm..findings are suggestive of metastasis. However, given the history of chronic hepatitis, multifocal, hepatocellular carcinoma is also a possibility. Recommend correlation with dynamic contrast CT of abdominal and pelvis..
He had the CT scan last week. Still waiting for the report. Scared!
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lax mom
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LymeMom Kellye: I hope the Radiologist was just being overly cautious. CT's truly do not give the Drs much to work with in this day and age.
Prior to finding out my husband had Lyme, Babesia and co-infections, his Oncologist/Hematologist thought he was eaten up with cancer.
A PET scan finally revealed that the problem was not cancer. I agree with Bea...get 2nd, 3rd even 4th opinions.
posted
So we got the CT scan results. They are now calling them tumors instead of lesions. His lower esophagus is very inflamed. They are not sure if it is his esophagus or surrounding lymph nodes.
Wednesday he has the endoscopy and colonoscopy. An oncologist has been brought in to consult too. I feel more hopeful today than I have.
He just started taking doxy when these symptoms began. The last time he was on doxy 2 years ago the same thing happened. Maybe I'm in denial, but I am wondering if the doxy damaged his esophagus and if the liver is trying to protect itself from bacteria.
Or this could also be parasites.
The search continues.
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Razzle
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Could they be Lyme cysts? Great big huge ones?
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Catgirl
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Bea, are lesions on the liver common to lyme patients or everyone?
Abx are very acidic on the body. An acidic environment can promote cancer. See link below to make body more alkaline.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Catgirl
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Hang in there LymeMom. There are just so many variables to this disease (it's hard to tell what could have caused it). I hope the rest of his tests come out clear.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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lax mom
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posted
My husband also had the base of his esophagus light up on his PET scan. When they did the scope they found it was only scar tissue from reflux.
poppy
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posted
Bartonella can produce tumor-like masses, and these have sometimes been mistaken for cancer. Cancer experts probably are not going to think of this.
I don't vouch for everything this link says, but it does suggest that infection can produce this symptom.
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poppy
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Thanks everyone for giving me some much needed hope!
Tomorrow is the endoscope and colonoscopy. Then he gets a day to rest. Then on Friday morning he is getting a liver biopsy. Then Monday afternoon we meet with the oncologist.
Then...... 2nd and 3rd opinions.
Then..... Taking it all into our LLND
My husband is convinced it's Cancer.
I have a strong feeling its not...
Time will tell. Thanks for the links. Interesting reading.
I'll keep everyone updated.
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poppy
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Just don't get rushed into any diagnosis or actions from consulting with medical people who don't know anything about bartonella. Those you are seeing now will not consider this, in all likelihood.
If a biopsy is done, try to get some material sent to Galaxy Lab or Fry Lab to look for bart. Find out their requirements for samples ahead of time.
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Catgirl
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Ditto what Poppy said.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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randibear
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i have what is called "fatty liver masses". i guess they're little cysts or something. had them for years and dr's say nope, do nothing.
so i havent...but often times i get a lot of liver pain and wonder what's going on.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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kidsgotlyme
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We will be praying for you all lymemom!!
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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He had endoscopy and colonoscopy yesterday. Colon looks great! The bad news is he has what appears to be a 4x6 ulcer/malignancy on his stomach and a mass on his esophagus. Dr fears its cancer. Liver biopsy tomorrow.
Oncologist Monday. Then the 2nd and 3rd opinions.
We live in one of the best cities for diagnosing and treating these types of things. Before any surgey or radical treatment we will have the information we need to make the right decisions..
Thanks to the links that Poppy posted I have called our Lyme Doc who is having a test kit sent from Igenix to do,a panel on all tissues removed. I talked to the GI doc yesterday and told him I had a test kit coming and he said he'd save some tissues.
Time will tell. My motto is one day at a time.
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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posted
What was his lyme treatment like recently? I've read that extended use of Flagyl can cause cancer.
How's the detox? Juicing is suppose to be really good for even cancer patients. I've read that beet juice is suppose to be good for stomach cancer but that you should start slow like adding carrot, celery, etc.
Have you guys tried herbs/anti-parasitics?
Posts: 722 | From CA | Registered: Dec 2011
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I'm so sorry you're having to go through this along with everything else, I messaged you a couple days ago but figure you won't be checking in everywhere and wanted to be sure you know we are praying for your husband and entire family. Believing this is going to turn out positively. Continueing to watch for updates. Love to you all.
~Joahsark
Posts: 219 | From pacific nw | Registered: Jun 2009
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poppy
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IGenex seems only to test for B. henselae. The second link described cases in which the bartonella species was identified at the NC lab, Galaxy now. And it was not henselae. However, Galaxy does not accept biopsy material because it may be contaminated (they are culturing). So you might want to check with Fry Lab too, or at least double check with Igenex that their test is only for one species, in which case it might not be enough of a test.
Here is Fry lab description of their bart testing, more than one species:
posted
Clongen also has a bart species test. Might want to check with them also.
Years ago hubby had an endoscopy and sent tissue samples to IGeneX -- came back negative. But the big issue was that the G.I. doc would not take the number of samples suggested by another consulting G.I. doc (Dr F -- the one in New Jersey who originally published about finding bart in stomach tissue-- mostly in kids I think). If only 1 or 2 samples are sent for testing your odds of finding bart are not too good even if it is there.
Good luck and keep searching for answers.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
We saw the first oncologist Monday and have the 2nd opinion today. So far the news is bad.
There is no cure. No surgery. Just chemo to elleviate his symptoms and slow down tumor growth. On average they give him 9-18 months to live.
I'm in shock and heartbroken.
This started 2 years ago with an ERr trip because if severe stomach pain. He had just started doxy and chlorella. They did a ct scan and said nothing showed up so it was diagnosed as gastritis.
Over the past 2 years he had a hard time with all the pills but seemed to tolerate them OK and appeared to have a 3-4 week herx cycle. He was making progress and had probably hit the 60% wellness in his lyme treatment.
This latest round of GI symptoms started with the addition of dozy. Again we assumed it was from the pills and doxy.
I don't want to scare anyone as stomach issues with lyme treatment are not uncommon. But it's not always lyme. Listen to your body and if things don't feel right please get them checked out.
Thanks for the prayers and support!
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poppy
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So sorry Kelly. Sending a big hug to you both, and wishes for strength to cope. Let us know what the second opinion says.
It isn't always lyme but chronic infection can cause cancer. This is known about other infections, and could be true of tickborne diseases too. Another reason for early detection and treatment after tick bites.
I am not into alternative medicine, but in a situation like this might check out what could be useful when mainstream medicine can't do much. Both my parents died of cancer and I wish I had known then to explore alternatives when it became obvious that mainstream medicine could not prevent the worst outcome. Need to screen this stuff carefully. Will put a link here for previous post on this subject, in case you have any interest in pursuing it.
Well, can't find it, but if you do a search of the archives using the word cancer, a lot of posts will come up. Have to sort this, see what seems most credible.
And there is a recent book that might be worth reading:
If I am reading this right, you can get a kindle edition of the book and read on your computer. Can download kindle reader on Amazon for free.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
So sorry to hear about your husband! Does he have anyone else in his family with stomach cancer? I have a friend who has a family history of stomach cancer. My prayers are with you both!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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lululymemom
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posted
So sorry to hear the news.. Please have him start on dandelion tea. It purifies the blood very supportive of the liver. They are seeing alot of promise with leukemia patients.
posted
Awful, awful news. Look into Cancer Treatment Centers of America. They use both conventional and alternative treatments. I have heard good things through the grapevine about them.
There is a website entitled cancure which has alot of alternative treatments on it including clinics.
Another option is to contact a man by the name of Ralph Moss. He knows alot about the tried and proven alternative treatments. He has a binder that you can purchase which has alot of stuff.
Also, for an additional fee, he will do a phone consult. IMO, if you choose to look into alternative treatments, he is a good starting place. He will save you alot of research time and money.
May the Father of all comforts, shower you with grace and hope.
Posts: 538 | From kentucky | Registered: Nov 2011
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posted
I just remembered..There is a test which can be done with the tissue samples. I can't remember the name of the test but Ralph Moss mentioned it in his binder.
The test takes the tissue samples and adds the different chemotherapies to it. You then know which chemos are the most effective to use in the fight.
I looked at Ralph Moss website and he mentioned chemotherapeutic assays.
Look into it.
Posts: 538 | From kentucky | Registered: Nov 2011
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posted
Oh, LymeMomKellye, so, so sorry about your husband. I am keeping you, your husband and family in my prayers. Don't give up! Keep fighting. Posts: 331 | From West Coast | Registered: Jan 2012
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lymielauren28
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Kelly, so sorry and my prayers are with you. *hugs*
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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beths
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posted
So shocked to hear this. Sending prayers, light and hope.
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map1131
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lymemom, don't take "no cure" for an answer. There has to be many alternative and chemo does do wonders for many tumors.
With lyme we've all had to look outside the box. Cancer is the same way. You will find hope with tx options.
Wishing you and your family good guidance into all possibilities.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I know well what a fighter you are, I know you'll stop at nothing for the real answers. Praying for you all through this unimaginable time. Messaged and called, so sorry I was in the car the first time! I am here when you get another chance. (((Hugs & Love)))
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lymielauren28
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*If* it were me, and I was told I had incurable cancer I would go to the Gershon Institute and do the Gershon therapy. It's all nutritional and may sound hokey but I personally know a gentleman who was diagnosed with terminal cancer who went, did the therapy and has been cancer free for 7 years. He was given 6-9 months to live. There was also a long time member of the board here who went and was cured of her Lyme and coinfections. Do a search for Gershon Therapy on the board and you'll find her. Just something to think about. I agree with Map wholeheartedly. Again, praying for you and your family.
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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Sammi
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LymeMomKellye, I am so sorry to hear this. How did the consult go today?
You may want to research the Cancer Treatment Centers of America. I have heard good things about them from a cancer patient and her family.
You and your family continue to be in my prayers.
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lax mom
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LymeMom Kellye,
So many of us on this board are dealing with multiple tragedies in one family. I cannot wrap my brain around it.
I am so sorry that the news was not positive. However, the Dr's are not God. They cannot give your husband, you or me, etc. a timeline of how much more time we will be here.
nefferdun
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posted
I am really sorry. That is shocking and devastating. No one has mentioned Low Dose Naltrexone. It is very good at stopping the growth of certain kinds of cancer. It is extremely safe and inexpensive and does not interfere or interact with cancer therapy. Here is a link;
My very old dog was diagnosed with liver cancer and we put him on LDN. He died of heart failure, not cancer. I don't want to give you false hope but this drug is as close to a miracle as it gets.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
So sorry to hear this. You and hubby are in my thoughts and prayers. BIG gentle hugs
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Ellen101
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So sorry. I second what others have said, don't take no cure for an answer. I hope your appt today went better. Sending thoughts and hugs.
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dbpei
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You are in my thoughts and prayers. May God give you the strength and courage needed to get through this difficult time and to continue having hope.
Posts: 2387 | From New England | Registered: Aug 2011
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posted
So sorry. As for alternative treatments that are not expensive, maybe look on the internet for LDN, or for dca.
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map1131
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I was reading on LDN yesterday and thought of lymemom too.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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You and hubby are in my thoughts and prayers. BIG gentle hugs
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