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» LymeNet Flash » Questions and Discussion » Medical Questions » Those who pulse-really need your help

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Author Topic: Those who pulse-really need your help
beths
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I see my LLMD next week. I am on high dose mepron and clindamycin-killing my stomach and causing yeast.

I want to discuss pulsing-would help my stomach and detox issues-although my LLMD isn't a big fan of pulsing.

How to you take your meds-want to discuss some alternatives with her-Thanks-Beth

Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Summer3
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I have pulsed before. I didn't find that it made a significant difference for me than if I had just stayed on long-term but some people do get a lot of benefit from pulsing and it helps them stay on.

I'm not sure if Mepron can be pulsed. I know Flagyl, Tindamax and the quinolones are often pulsed but I have not heard of Mepron or Clindamycin pulsing. Do you take things for the yeast issue like OLE, Nystatin or Diflucan, S. Boulardii?

Are you able to take Zithromax with Mepron? That is usually the ideal combo. I also did Clindamycin/Mepron. It was rough at first but started to level out at about 6 weeks. I thought I was improving but my liver enzymes were so high I had to stop everything.

--------------------
http://www.lymepie.blogspot.com

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unsure445
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Does you practitioner prescribe Byron White? Maybe its time for a change. They are very powerful.

Maybe you can drop the Clindamycin.

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unsure445

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lyme-o
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Hubby pulses Zith with Mepron. Seems to work for him
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beths
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Lyme-o_Your mailbox is full-can you pm me on how he pulses and who is his LLMD?
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WPinVA
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My memory is not that great these days (thanks to the Lyme) but I took Mepron (along with other meds) for several months and recall being on a three weeks on, one week off pulsing schedule.

Also, my doctor decreased my Mepron dose and took me off Zithromax when I got yeast. Not sure what that will do for my overall recovery, but it did help me to feel better. I had a hard time on high dose Mepron.

I have made a lot of progress on pulsing. It was during an off week this past winter when I first felt halfway human and that gave me a lot of hope.

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faithful777
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I tolerated pulsing, but didn't get better doing it.

I now only pulse flagyl and arteminisin and take other orals daily.

I do Clindamycin IV 5 days a week only. Everyone is different and some do okay with pulsing, my husband and I didn't do well at all with that kind of regimen.

We use lots of probiotics and garlic daily for yeast. Oil of oregano is good for yeast too.

You might just need to readjust your abx cocktail. I certainly didn't do well on every protocol that was prescribed, we had to find the right one and that takes time.

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Faithful

Just sharing my experience, I am not a doctor.

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anuta
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I don�t think that pulsing is such a great idea for Babesia treatment.
Last year, when I was still treating with abx, after 1 year of mepron +zitro+artemisinin, I felt so much better, almost 100%. So my LLMD decided that my Babesia load was very minor and put me on pulsed protocol of Dr. J. (you know this doctor pulses everything, even Rifampin. He believes that this allows the immune system to kick-in.)
After about a month � I started to have all symptoms coming back and in few weeks I was back at point zero- fully blown Babesia.
So I had to restart all over again.

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gmb
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I just started TindaMax this week to finally go after Lyme cyst form. I've been treating with abx since 2010 and always adapted well to a new protocol with no major herx.

My LLNP told me to start TindaMax with 1000 mg once a day for one day a week, and after I adjust to up the dose to two consecutive days per week till I see her again in mid-December

Now for the better part of the past year I've been on IV Rocephin (4 days on, 3 days off); and daily oral Zith, Bactrim DS, and Mepron double dose, with Actigal, Gabapentin, atenolol, baby asprin, VSL#3 DS, Floristor, Vit B12, Vit B6, Vit D3, Fish Oil, Magnesium, Milk Thistle, lemon water, and Braggs ACV and raw garlic.

I had been working 4 days a week since starting treatment, but just went back to a full 50hr week last month to help shop with our typically peak fall workload. So I was leary on when to start TindaMax.

With the hurricane damage pending I took the first dose at 6pm Monday night and expected to be in bed early if we lost power. And if I was in bad shape from a TindaMax herx I could possibly get Tuesday off due to the storm.

Within a few hours I had some serious GI pain and spent time on the thrown. Made it to work Tuesday a bit sluggish, and today I will double dose on the Floristor.

Still fatigued and going thru the motions at work. My constant head pressure and brain fog seems a bit different, And Tinitus from a dead chochlia in 1992 is at double volume.

I hope the TindaMax gets me over the top towards remission and then I can figure out this Babs crap.

later

gmb

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