posted
I have been infusing Claforan every 8 hours for 3 1/2 weeks now. Also taking anti fungals and Lyme supplements. It's been going ok until the past 3 days and I am hoping for some advice.
I know that during the treatment Lymies are supposed to get sicker as the bacteria is killed, Herx and Die off reaction. I have been undiagnosed for 11 years.
Suddenly for the past 3 days when I infuse, the meds are so painful entering my body, stabbing pains everywhere, pain in my head, shaking and the pain lasts until I take some Naproxyn and it never fully goes away. I am now running a fever of 101 which has also never happened until now. I have been hanging out around 99.6 or so.
I am drinking lots of water and urinating fine. I know UTI's can happen on Claforan.
Other Lymies out there that have been on IV Claforan what was your experience and how worse did it get? Any help would be appreciated.
-------------------- Take your life back! Posts: 17 | From Southern Part of N. America | Registered: Sep 2012
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
You are right in herx territory, at three weeks plus of this med.
However, some people have had problems with claforan. I did, had to quit, never figured out if it was herx, serum sickness, or allergy. Broke out in hives upper half of my body and felt so weak, I stayed in bed for two days.
Not sure whether this reaction is what you are having or a herx.
Posts: 2888 | From USA | Registered: Mar 2004
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
I loved Claforan but after a month had to switch. I would get intense pain in my arms and legs the minute I started infusing. I tried to take Benadryl prior to infusing but that did not help.
If this was me, I would be having a conversation with my prescriber.
Best, Karen
Posts: 1847 | From Maine | Registered: Jun 2004
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posted
My Dr took me off of Claforan. Took a bunch of labs. We're waiting to get those results to see if that's an infection in my blood. Dr. said that our infusions shouldn't hurt. My stabbing pains would become horribly intense right when the med hit my blood stream. My body would barley have time to stop the stabbing pain and I would infuse again. When I woke with a temp of 101 this am I had to go see my Dr. I was hoping I might be moving into a new level of my treatment. Like...getting worse so I could get better. But the meds shouldn't hurt and with a picc line in my temp shouldn't ever be over 100.5.
My whole insides right now are just throbbing like they have been so over stressed they keep throbbing in pain.
My next appt is Nov 7th. Until then rest. This is the second adverse reaction I've had to Treatment. I've been on 3 oral abx: and now one IV. Treatment has had to be stopped both times from adverse reactions. Pretty discouraged and physically the weakest point yet. :-(
-------------------- Take your life back! Posts: 17 | From Southern Part of N. America | Registered: Sep 2012
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