posted
My symptoms started 8 months ago (head pressure, tinnitus, fatigue, brain fog, rib/heart pain, eye floaters, many others)... I tested positive 2.5 months ago for Lyme, Bart, and Babs. Babs causes about 80% of my worst symptoms, mostly my chronic head pressure. I have been on Doxy 400mg a day, Bactrim DS, zith 600mg a day, mepron, and now artemisinin and cryptolepsis. I have had about 8-10 significant herxes. Last week I finally thought things were dying down. Then this past friday my head pressure that radiates from my nose to the top of my head came back with a vengeance, along with fatigue. I get very out of breath when standing up suddenly and dizzy when standing for long periods of time when I am not walking. For some reason my head pressure intensifies every time I get in the car and drive??
Is there anyone out there who has defeated Babs and has had this head pressure symptom?? Or have you made any progress? I do not have the typical sweats and chills. Also, I tested + for Duncani and not Microti.
Thank you for any help.
Posts: 251 | From Baltimore | Registered: Oct 2012
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I beat Lyme and babesia. It takes a good while to beat them! Don't give up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I got rid of lyme, babs, and bart. Went undiagnosed at least 10 years. I had microti. I did not have the head pressure.
Here are the notes I took at last year's lyme conference in Toronto. Dr. H. of NY on the topic of babesiosis:
2011 ILADS Conference, Toronto, Canada
Lyme & Babesiosis: Updates on Treatment & Diagnosis 2011
Dr. H 10/28/11
He has 20 years of experience treating lyme; more than 12,000 chronic patients
He was in France and China discussing babesiosis. Talked with Chinese CDC regarding parasites
Some of his patients get better with glutathione alone. It opens up the detox pathways (is an anti-oxidant)
Borrelia miyamotoi is showing up in ticks in Hyde Park, NY. This strain is in Japan. We can�t test for it.
There is a new ehrlichia species also found.
Indicators of bad outcome with babesiosis:
male sex, extremely high WBC
We see blood transfusion babesiosis in California. WA-1 is now in the Northeast U.S.. It is found along the entire eastern seaboard. It is difficult to get a positive test for it. LabCorp has a WA-1 test. The FISH through Igenex is also very useful.
He treats with clindamycin with azithromycin, also Mepron, then malarone. There is lots of Mepron resistance. So, he adds Septra (Bactrim). This works well. Also, he uses much higher doses of Mepron due to the Mepron resistance.
He uses coartem (which has Artemisinin in it) Dosage is 4 twice per day. Take at 7 a.m. and 3 p.m.; then switch to 7 a.m. and 7 p.m. It can be pulsed once per month.
You can�t combine this with any med that affects the QT interval.
Babs is spreading world-wide. Babs also suppresses the immune system (based on a study of b. microti)
Artemisinin is not as effective now as it was in the past. Use art when coartem doesn�t cure the person. He no longer uses ketek.
Beta blockers (blood pressure medicines) control these types of parasites. So, use them as an antagonist. We need a study on this. Heparin may also inhibit babs. Need a large study on this.
Curcumin (a herb)--he is now using it to treat babs. Published studies show it is useful for malaria.
Cryptolepis has been used in Africa for malaria. There is a published study in Ghana. It had a 93% cure rate (a 50% cure rate in 3 days; 90% cure rate in 7 days) You can get it at: www.woodlandessence.com
If adrenal function is low (patient has a low cortisol), they will not respond to antibiotics.
He told of a patient with intractable babs. They were treated for babs for 5 years and were not cured. Then, he gave them 1 teaspoon of cryptolepis 3 times per day with Byron White herbs. This is making the patient feel well. He hasn�t found any side effects with the cryptolepis. It may not be curative. It lowers the parasite load and strengthens the patient�s immune system.
Brucellosis also causes night sweats, so check for this in a patient with night sweats.
Use malarone for the patient who can�t clear babs. Low dose to maintain them.
We need new treatment options for babs.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
You did not say, but if you are not on lumbrokinase or something similar then I think you need to add that in.
I would also get tested for FL1953 from the F lab -- you could have both that and babesia or the Fl1953 protozoan instead of babesia. Treatment is slightly different.
I would probably also add ivermectin to your current combo.
If you were on all the meds you listed at the same time then that is a pretty good combo. But if you have only been on 1 or 2 things and keep switching then I think you need a stronger combo and if it is working stay on a very aggressive combo for a minimum of 4 - 6 months.
Malarone might also be a better choice than mepron.
Good luck.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Cured with a bab and a lot of hard days. I started with mepron malerone and tindamax,3 months,didn't work. Finished using byron white a bab, it was difficult to say the least but the babs finally left.
Posts: 342 | From northern california | Registered: Dec 2010
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
It took three tries to get it right, but we did eliminate Babssia in my wife using Rife frequency treatments. It has been gone for over four years. No reoccurrence.
Just by chance I also had her taking Turmeric (Curcumin) for inflammation. I was not aware of its effect on Babs until now.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
thanks for the notes from the ILADS conference, TF. I printed and am going to discuss with my LLNP. Also glad to hear from the others. All of this info could be helpful.
I didn't test positive, but seemed to respond well to mepron. Thinking I need to go back on - or try some of the herbs.
Posts: 2386 | From New England | Registered: Aug 2011
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posted
thank you all for your input. I wish rife machines weren't so expensive :/ I have heard many success stories from using them.
D Bergy- I actually just ordered Turmeric/Curcumin extract and should be getting it today.. hope it helps!
Posts: 251 | From Baltimore | Registered: Oct 2012
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
B. Duncani is brutally hard to get rid of. Most who are posting on this thread about 'beating Babesia' did not go against this particular strain if I remember their stories correctly. Huge difference.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Do any of you guys know which symptoms go more with each type of Babesia? I have noticed people seem to have Microti more than Duncani. I have Duncani and I dont have the class sweating, chills, fever, etc. My main symptom is this horrible head pain/head pressure and fatigue. I also get very out of breath and light headed when I stand up too quickly sometimes.
Posts: 251 | From Baltimore | Registered: Oct 2012
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
xrunner, I have exactly those same issues and I had many positive titers for B. Duncani. I don't have sweating or fevers. I do get occasional chills on my bad days. The head pressure is horrible. Fatigue is out of this world for me many days. I also get out of breath fast on bad days. I get light headed often too.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
My wife only took one or sometimes two 500 mg capsules a day. It was not enough to eliminate the Babs but may have helped a little.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
The curcumin might help your head pressure xrunner. It is a big anti-inflammatory and penetrates the blood brain barrier. I also have some of your symptoms but never tested positive for babesia. Not sure I was ever tested for b duncani, though.
I would like to look into rife sometime. Which machine can you get for $450 that is worth $1000, lymetoo?
xrunner, have you ever tried PEMF or cranio-sacral therapy? I am looking into both as I have heard they help.
Posts: 2386 | From New England | Registered: Aug 2011
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posted
I'm on day two of the turmeric/curcurim extract. I hope I am taking enough. Serving size is two capsules @ 1250 mg. I have noticed a slight decrease in pressure, but it is still very much there, as always.
I am on Mepron (2 tsp a day), Doxy (400mg a day), Zithro (600mg a day), Bactrim DS (twice a day), Artemisinin (600mg three times a day), Cryptolepsis (3 tsp a day, and now curcurim (twice a day). On days I am not on Artemisinin, I take Banderol, Samento, Pinella, Bora, Quina, Mora in a mixture of water. I take Resveratrol, Vitamin C, Vitamin D, Alpha Lipoic Acid, and Serrapeptase mid day. I drink green team/liver detox tea at lunch. I take a detox bath on days I don't do yoga with epsom salt, hydrogen peroxide, and baking soda. I don't eat red meat, rarely eat gluten, and avoid dairy and alcohol. I also eat a low fat diet except for when I need 30g of fat with Mepron twice a day.
My head still feels like it is constantly in a vise. I dont know what to do anymore Ever since starting treatment the pressure has only gotten worse, with a few good days in between. Is there anyone out there that has beat Duncani??
Posts: 251 | From Baltimore | Registered: Oct 2012
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RZR
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Member # 20953
posted
I tested positive for babs duncani (LabCorp) and sweats and chills are my main symptoms. Thankful I don't have the head pressure.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
xrunner, you are taking a lot of stuff! Have you ever thought that maybe the pressure in your head is from so much bacterial die off all at once? Can you talk to your LLMD about this and see if there is some way you could reduce or take away some of your ABX and herbs to see what happens?
I don't know what type of curcumin you take, but I believe mine is 250 mg per capsule. It is recommended to take 1 to 2 pills 3 x day to decrease inflammation or your cytokine load (bacteria die off).
Other thought I had is have you ever done IV ABX or shots of Bicillin? They supposedly penetrate the blood brain barrier better than oral (unless you use mega doses of amoxicillin) See below:
posted
Do Bicillin shots help fight against Babs??
Posts: 251 | From Baltimore | Registered: Oct 2012
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I don't think they fight babesia, but they fight lyme. Lyme can also cause head pressure. One of the hardest things about this disease is figuring out what you are fighting...
Posts: 2386 | From New England | Registered: Aug 2011
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Where can I read on the web the most informational material on this subject?
Can a person own the equipment to do this?
If not, how does a person find a qualified practitioner to do this treatment?
Posts: 620 | From Ks | Registered: Oct 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Cozynana, I am in process of asking around. Sometimes chiropractors use this - also holistic MD's, PT's, acupuncturists, etc. You can buy your own machine for under $400, but I would want to try it first to make sure it helps.
xrunner, sorry for hijacking your thread. PEMF cannot heal babesia or lyme - but it might be able to help make treatment more effective and make you better while doing...
Posts: 2386 | From New England | Registered: Aug 2011
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Lady11- I got a positive result for Duncani through IGeneX. The head pressure always intensifies 95% of the time I start driving... It also almost always happens right after eating. It is only month two so I am hoping I am killing away... I've only had 4-5 significant herxes. And now this weekend I went away for the holiday and remembered everything else except my Mepron so I miss 1.5 days of it. I have an appointment Monday with my LLMD. I am wondering if there's any other way to address the head pressure.
Posts: 251 | From Baltimore | Registered: Oct 2012
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posted
I wonder if a food allergy could partly be the cause? Have you had food allergy testing done?
Posts: 27 | From Cn | Registered: Apr 2012
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Ever since starting treatment the pressure has only gotten worse, with a few good days in between. Is there anyone out there that has beat Duncani??
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