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» LymeNet Flash » Questions and Discussion » Medical Questions » Dr H Treatment guidelines?

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Author Topic: Dr H Treatment guidelines?
dan67
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I just saw someone mention an old post from 2011 where Dr H's treatment guidelines were shared, but I can't find that post, can someone bump it up or paste a link to it here? Thanks so much.
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joalo
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Buried on page two.

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

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Lymetoo
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If it gets posted, we'll update the #1 sticky!

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--Lymetutu--
Opinions, not medical advice!

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poppy
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It's in book that interviews various lyme docs about their approach to treatment. Seems to me like you can read part of the book online, can't remember how. On Amazon, maybe.

Well, here is the amazon page for the book. Not available on kindle. Can search inside the book, not sure if you can read that whole chapter.

http://tiny.cc/kui5nw

I personally found his statements about attitude affecting outcome to be offensive.

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dan67
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I was asking about the different dr h, the one in NY I believe who's treated over 10,000 patients.

The Dr H you guys are talking about is in california, and yes you can read the whole chapter from that book about his protocol for free on the publishers website, I can't remember the exact website but if you google the book "insights lyme treatment" or something like that, you can find the page and on that page there is a link to a sample chapter which is dr h in california's treatment protocol.

But... someone also said there was the full tx protocol of dr h in NY on Lymenet somewhere??

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sammy
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http://www.livestream.com/skidmorevideo/video?clipId=pla_6e766799-727a-467e-872f-c1936459b2bf&utm_source=lslibrary&utm_medium=ui-thumb

You may be referring to this? It is a video from a conference from spring 2012 at Sidmore college.

Dr.H discusses the complex and complete way that he diagnoses and treats his patients.

You will see that it is very different than Dr. B guidelines, he does not go infection by infection telling what med is the best. That may vary by patient and they may need a combo!

It is an excellent video presentation so if you haven't seen it yet, I would highly recommend that everyone watch it. Full of good info!

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Lymetoo
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OOPS... my fault for leading us astray. I didn't even know Dr H had guidelines.

If Dr B has an update, let me know!

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--Lymetutu--
Opinions, not medical advice!

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poppy
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What strikes me about that video you linked is how few people there were in the audience. Good attendance by legislators who needed to know this was a widespread problem. Did they get that from the conference? I wonder why it was not well attended, considering how many lyme patients there are in the state. Anytime the legislators show up, they are counting heads.

Is this why NY docs are in the crosshairs again? Doesn't look like a big enough problem for legislators to take on?

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Summer3
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I haven't seen the video, but I was at Skidmore that day for the Lyme event in person and it was well-attended.

What struck me though is that the panelists that were against long-term Lyme treatment (I believe it was an insurance company representative and an ID doctor) were not very good at even attempting to defend their positions. They gave in and stayed quiet pretty easily.

A rheumatologist on the panel really surprised me. He was all for long-term treatment and fully agreed that Lyme patients are being mistreated.

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http://www.lymepie.blogspot.com

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sammy
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Lymetoo, I really don't think that Dr. H has a set of formal guidelines.

The presentation contains a wealth of info and is probably as close to a good set of guidelines that one could get.

I thought it might help Dan67.

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Lymetoo
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Oh, I think I have seen that. Pretty good stuff.

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--Lymetutu--
Opinions, not medical advice!

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lyme-o
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oh thats not the same Dr H I was thinking
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lyme-o
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oh thats not the same Dr H I was thinking
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lyme-o
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oh thats not the same Dr H I was thinking
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lyme-o
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whoops sorry. Only meant that once
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