posted
Is it worth the cost? If your child already has a 504 or IEP, is there any benefit?
Posts: 749 | From State full of ticks | Registered: Dec 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I didn't see any benefit for my son. He is getting better all the time. As long as the school was meeting his needs, I was fine with their testing. I didn't need more proof that learning was difficult. I did get a PET scan done though to see what we were dealing with from Lyme.
My other thought was that the money could be better used to get him well.
Best of luck to you!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I have gotten my DS neuro-psyc evaluations about every 4 years. Some schools require an updated one when entering high school in order to continue services. He also needed a current one(within 3 years) in order to request and receive accommodations on the ACT. The first three where covered by our insurance because they were in network. We are still fighting with them over the last one because they changed their rule after 15yrs and said that we now needed prior approval.
If you don't truly have to have one at this time for a specific reason like the ones above I would not do it. I think they can be long and hard on the child and costly for you.
-------------------- Lyme, Bart, Babs D, FL1953 I am just sharing my thoughts and experiences - I'm not a medical professional. Posts: 69 | From Midwest | Registered: Mar 2010
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posted
Thank you. Our LLMD suggested we have the evaluation done but it seems like a repeat of what he went thru with the 504 plan testing. The cost is $4,200 and I'm not sure if insurance will cover any of it.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
$4200 is a bit steep. My husband's was $1750 at first. The negotiated rate with insurance was $1100.
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Hoops-
The testing is well worth the cost (and the amt you posted is what we paid several years ago), if you do NOT yet have an IEP in place, and one that you think genuinely serves your child's interest.
If you already have the IEP and your child seems to be doing well academically and socially in school, then IMO the testing can wait, to be used as a backup card should the school system begin to back out of meeting your child's needs.
FYI, in our state the school system had to acknowledge the results of the neuro-psych testing we had done on our son, but they did NOT have to honor the results, basically and bottom-line.
We spent a significant sum more to have 2 Lyme specialists on the phone-line during our initial IEP meeting with the school --( both the top-notch psychologist who did the testing and a Lyme-literate counselor), and what I remember most were the disbelieving smirks on the face of the woman who was going to be his teacher and that of the principal. This in a very liberal very "compassionate" kind of small school setting.
One other basic consideration. Our son's test results were right on, and definitely did indicate problem areas related to his Lyme, and it was useful to know what those areas were.
Thing is, despite those problem areas our son consistently tested grade levels ABOVE average, and so was automatically disqualified for an IEP in our state. We didn't have him tested in order to get the IEP, but am just saying that getting the tests solely for that purpose isn't worth it for anyone whose child is testing grade-level or above.
Also, it was also our experience that with another 6 months of treatment after his tests, the learning disabilities that showed up on the tests had all been pretty much resolved.
Hope that helps.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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posted
Is there any benefit from this after the testing? What happens after the testing - therapy?
Posts: 749 | From State full of ticks | Registered: Dec 2008
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