I�d like to know if any of you ever get skin/muscle pain all over your body, the kind you get when you have the flu (but without the fever, coughing, sore throat) and you can barely move, you have to lie in bed very still. It doesn�t feel the same as neuropathic pain, which I sometimes have in my toes and the inside part of my forearms.
My gut feeling tells me it�s a virus that I can�t fully fight because of the Lyme. I get this almost every day for a few hours in the evening, but lately it�s been starting as soon as I get up and lasting for hours on end.
I haven�t treated my Lyme for nearly 3 years now. I know I should, but my local MD �fired� me and I can�t afford to go see my LLMD in the US (I�m in Canada).
I would like to hear I�m not the only one with this annoying symptom, and also to know if it sounds more like bartonella or another bug.
Thank you, Julie
Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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posted
Julie-you are NOT the only one..I experience this quite often, and it is utterly miserable. It makes me sob myself to sleep at times. I really hope things improve soon for you. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
The muscle/skin pain I can definitely relate too. My muscles feel like they are burning and when I even touch my skin to put my lidoderm pathes on it hurts.
I was "fired" by my local MD as well. In my case it was the best thing to happen for me, keep meaning to send them a thank you!
Perhaps you can find a new MD that may be able to help? I use lidoderm patches and neurontin or flexeril which take the edge off.
Posts: 1748 | From United States | Registered: Dec 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I get that too. Ususally the first thing to come on during a flare or herx.
I too find relief with neurontin and muscle relaxers. It comes less and less now but I know exactly what you mean!!! It is a terrible feeling.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
It was every day before I had Lyme.... They called it fibromyalgia then. Magnesium helped me and sleeping well,
Posts: 1728 | From USA | Registered: May 2011
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posted
My first herx, which started within hours of starting treatment 4 1/2 years ago, included having my skin painful to the touch, like with the flu, but only on my left arm. Go figure!
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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