posted
Hi everyone...I am just feeling really listless and weak and depressed the past week or so. I actually have had some special things happen in my life that should be making me happy, but I am so depressed over this picc line and all the time it consumes and how weak and frail I feel that I just have moments of crushing sadness.
I think my super low blood pressure is contributing to feeling so down too. I am going to ask my llmd to put me on florinef like he has been thinking about when I see him on monday. It is so hard to have no energy all the time and to feel sick to yr stomach and listless and faint a lot.
I have been eating a vegan diet at my fella's urging for the past week and that has helped me keep food down, so I am thinking that if I can hit 90 lbs or so I will ask dr to stop the TPN. I CANNOT keep infusing for 12 hrs a day, it is just too much and it makes me feel hopelessly ill and freakish.
Anyway thanks for letting me rant. Jess.
Posts: 870 | From ct | Registered: Nov 2012
| IP: Logged |
posted
Hi, It is very normal to feel depressed while on Iv,abx.
I also, get super low bloodpressure...I am also a vegetarian. Hang in there, it will get better! Atheana
Posts: 47 | From ft lauderdale florida | Registered: Aug 2011
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Oh no-I'm starting IV-why does IV make you more depressed?
I don't need that right now Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
posted
Lyme and coinfections can make you depressed and messes up just about every body function.
Some people react to some of the antibiotics out there with depression. That doesn't always mean it is serious. It might mean you will have some blue days.
Lyme itself can make you indifferent to life. Abx is one way out, don't worry ahead of time. You may do just fine.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Jess,
Wish I could walk over to your house and give you a big, huge hug.
Please don't let this get you down. I know the PICC and TPN is a hassle...I did it 18-24hrs/day for 3 1/2 years, so boy oh boy do I know!!!!
But at the same time, it is keeping you alive right now, and that is a good thing - a beautiful thing!
Please talk with your partner about this. He can help you feel beautiful and loved and cared for like noone else can. Ask him for help with these feelings.
I'm thrilled avoiding meats is helping. Yes, I haven't been able to tolerate meats since 1988...just takes too much digestive effort, plus I have genetic issues that cause me to not be able to tolerate some of the amino acids in meats very well.
Hang in there, ok?? You will get through this! I know you will!
BTW, TPN itself can cause depression...I struggled some with it off and on throughout my ordeal too. And I found homeopathic remedies, the support of my family, and my doctor (Primary Care, and the doctor who diagnosed me with Lyme initially) to be very helpful.
A counselor may also be needed to help give you some additional coping skills.
But please know that you are a beautiful creation just the way you are, TPN or no TPN! Your spirit is beautiful and sweet. Your partner is probably attracted to that part of you, too - talk with him about this!
Hugs,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
| IP: Logged |
posted
Razzle-I don't know where to begin..thank you so very much. Yes, you know better than most what a damn hassle this TPN is.
My partner is WONDERFUL, he is so lovely about all of this, but there is a part of me that is like, here is this very handsome and healthy young man, and he is stuck with this bony and fragile slip of a girl. UGHHH...
Thanks so much for the compliments, btw. I am not always my biggest fan, and am kind of inordinately hard on myself. I really appreciate it so much, Razzle. You are kind of my lifeline on here..no one(with the exception of one very dear friend who also happens to have lyme) understands me with this stuff quite the way you do, so thank you again. Jess.
Posts: 870 | From ct | Registered: Nov 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic