posted
Hi to all, I am being treated for Lyme,bart and Babs. On lots of abx and feeling crappy on and off.
What I was wondering is...has anyones ferritin levels gone up. I am now at 3093( not taking iron supp). My iron Saturation is low at 10%.
My wbc is on the alert at 2.5. RDW 15-5High. Neutrophils 1.2 low.
My hymo said to not worry about the ferritin going up...but I am. He said I really don't have enough iron in the body.
He thinks I have Hyperferritin cararact syndrome, but doesnt know how to test for it. I guess I need to go to a new Hymo.
Has anyone had a major jump in their ferritins, since being on abx? Thanks all Atheana
Posts: 47 | From ft lauderdale florida | Registered: Aug 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
An eye exam, maybe? And be sure to mention what your Hemotologist said, that you might have this Hyperferritin Cataract Syndrome...
BTW, I too have a ferritin level over 3000...but I think mine was caused by excessive iron infusions...I've been avoiding iron supplements, and just had one phlebotomy session (I can't do the iron chelators because of my sulfur intolerance).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Thanks. All the girls in my family were born with cataracts. I was told that phebotomy would make me worse. Thanks for letting me know about the sulfur in Chelators...I was thinking of doing that route.
Posts: 47 | From ft lauderdale florida | Registered: Aug 2011
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posted
a ferritin of 3000 means you are rusting and have excessive iron deposits. These feed bacteria of all kinds, cause liver and other organ damage. I have a background in Hematology, this hemo you speak of is a big time quack, run don't walk away, get therapeutic phlebotomy, an integrative MD will be open to this, your ferreting should be at least 100 or so.
Thar is absolute BULL**** that phlebotomy would make the cataracts worse. How can drawing blood and shorter intervals to decrease the number of RBC's - it takes 120 days to build a set of new red blood cells, during that time, your blood will draw upon the excess iron stores and over time will decrease. A low iron saturation is also part of iron overload. no wonder you feel like crap!!! 3000 is way way way too high and MUST come down greatly!!!
I suggest using ip6, ionic footbaths, detox foot pads. I myself had a problem with high ferritin, but it's real normal now bec if the therapeutic phlebos, it's been 6 months, correcting methylation with methy l b12 shots and 15 mg Deplin has helps my body metabolize iron more properly. my LLMD now is a believer in all of this.
Posts: 532 | From Texas | Registered: Oct 2004
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posted
I don't think that the above post is accurate. In chronic inflammatory diseases, ferritin can be high, though saturation % is low. It's the saturation % that indicates the iron overload. Sue
Posts: 226 | From Princeton | Registered: Oct 2010
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Whitmore is right. Ferritin is an acute phase reactant and can be elevated from other disease processes besides iron overload. A C-reactive protein test can help differentiate between high ferritin in overload and high ferritin in other conditions...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I'm bringing this post back up. My ferritin is 350 and I've had a few docs say I'd be MUCH better off getting it down to 50 or 75. But the above info in this post seems controversial. Any other input on this?
Posts: 123 | From Tahoe | Registered: Oct 2016
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posted
Doctor is full of bull****. I am a hematologist and a Ferritin over 300 is dangerous, get tested for MTHFR and be treated for this,plus therapeutic phlebotomies to get Ferritin below 200.
Posts: 532 | From Texas | Registered: Oct 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Bryan,
I just posted on the other post about all this. Might be worth a look?
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