Topic: 3 weeks to increase son's babs treatment over the holiday- advise needed
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My 20 year old son will be home for 3 weeks at Christmas. I want to blast him and kill his lingering babesia.
He is currently on 2 tsps of mepron a day, plaquenil and zith for babs. He takes Valtrex also and then does a week a month of tindamax and amoxicillin. He has taken malarone and 2 years of Zhang's artemesia 2. He is symptom free but his blood work is off.
What would be worth adding? I don't know if I could get BW A-babs in time but that was a thought I had.
I plan on upping his GSE.
Any other ideas?
Thanks for your help.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I would definitely add in ivermectin. Also if possible sida acuta or cryptolepis.
And if you really want to get aggressive then add back the malarone and also add in some doxy.
Definitely consider adding in EGCG green tea extract -- that could cause a big reaction.
Or you could add clindamycin and switch from pulsing the tindamax to daily flagyl.
Need to be sure he is on high doses of lumbrokinase or other things for hypercoagulation.
And if you are really stuck then lariam is another option.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Parasites/worms are now being recongnized as the #1 co-infection of lyme disease addressed at the recent ILADS conference. FINALLY!!
If your son hasn't been tx for this co-infection it might be a good idea to consider. Some people here have had good results with Ivermectin.
I had good results with antiparasitic herbs such as Humaworm, Parastroy, Hanna Kroeger Wormwood Combo and salt/c. Note: One mos of tx is never enough and has to be ongoing until symptom free.
Google parasite symptoms. BTW, Is his eosinophil count above normal in his blood test results? If so, it can be indicative of a parasite infection.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Carol in PA
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Member # 5338
posted
"He is symptom free but his blood work is off."
If he's been taking mepron for a long time, I think he could use a course of antioxidants.
Mepron works by OXIDIZING. This causes our own cells some distress, as they already need to get rid of free radicals generated by their own energy production.
In other words, the Mepron can make him feel bad by stressing the body's ablility to clear the cell's waste products.
You could stop the Mepron and increase supplements that would help the liver to make glutathione, which it needs to detoxify poisons, including the toxins left behind by dead Lyme bacteria.
Magnesium Fish oil Undenatured whey, for amino acids Acetyl l-carnitine Alpha lipoic acid Milk thistle Curcumin
Two or three weeks of this should strengthen his immune system. If he takes antioxidants along with the Mepron, it decreases the effectiveness of the Mepron.
Editing...Hah, I see that Bea and Gael posted while I was composing this. Each of us has different background experience that shades our preferences.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My oldest son is fit as can be, no stomach issues, no cognitive issues. I have tried my sickest son and I on Humaworm. I guess I just don't suspect parasites in him. I am willing to try and have a bag of humaworm. He could that start that tonight when he walks through the door. Merry Christmas, son! So good to see you.
He did a full ILADS treatment for 1.5 years, tried going down to one week a month of abx, some syptoms crept back in. Then back to full abx for 3 months and now no symptoms for 6 months, but high ECP. It has been between 39-84 with the doctor wanting a normal value of 10. Mine is finally 10 after 2 years of treatment
I have ECGC in the house for 2 of us so can get him going on that. It is NOW brand. Is that OK?
I understand that 3 weeks isn't enough but it is a great window to see how he reacts to new things and adjust if needed. It is a great time for herxing also as he won't be working or studying. It is hard to add new things when he usually is 2.5 hours away at college.
He has tried Epicor for 6 months and has done transfer factors and 2 other Researched Nutritional products. His CD57 is 102 falling from 119.
Is flagyl better than tindamax at working on babesia? He pulsed tindamax for years. How long could he take continuous flagyl? I could email and ask the doctor. I am sure he would do this for us.
We all take milk thistle, we take fish oil and a high quality krill oil and ALA several times a day and have for years. Also take NAC.
Will curcumin target babesia? Two of us take Enhansa in large amounts. I could get him started on adding that to his daily regimen.
Seibert- when you say add back in the malarone and start doxy, does this mean malarone on top of mepron? My next step after his upcoming labwork was to suggest doubling the mepron as Dr. H. says he sometimes needs to do. Also, is doxy on top of zith or in place of? I would run all this by our doctor and he usually is amazing with trying new ideas/treaments.
Any advice on how to start ivermectin and where to order it from?
Any unusual labwork that you would recommend at this point?
Thank you everyone for your time and expertice. I have been reading here for a long time and it is so nice that you brought everything together for me. I have got to get this boy through Lyme!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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Dr S in his books suggests taking both mepron and malarone together. It is the 2nd ingredient in the malarone which seems helpful -- not just the mepron in that drug.
Yes -- for some flagyl is more effective than tindamax.
The turmeric (curcumin) could help -- that is one of the few things hubby never tried.
Yes, pretty sure you can take mepron, malarone, zith, doxy, ivermectin and flagyl all together if your body can handle it. And the herbs should all be ok with that combo as well.
But just remember to add 1 thing at a time.
You might ask the doc about testing to prove hemolysis -- a short term decrease in RBC and hemoglobin would indicate that if the meds are working but think there are a couple of other tests that could be done as well.
Not sure, but I think the ECP test could indicate intestinal (GI) parasites as well as blood borne parasites such as babesia.
The ivermectin paste is readily available at Tractor Supply or the prescription pills should be available at about any pharmacy.
posted
I would add pumpkin pie with whipped cream and other tasty things to eat.
If he is symptom free, I would just enjoy Christmas and not change meds (unless directed by the doctor). I've heard it said that you should "treat the patient, not the test results", meaning the important thing is that your son is symptom free.
Making him sick (herx) by adding a bunch of new meds when he is symptom free will make you the Grinch that stole Christmas! Enjoy Christmas and be thankful that his symptoms are gone!
Posts: 177 | From Ohio | Registered: Aug 2012
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Patriot: It is all about the timing of trying new things since he is attending a large school for engineering. He knows that it would be better be down a bit now than during an honor's course. I think he would do anything the doc or I asked just to beat the buggers.
I understand the treat the patient, but how do you ignore the ECP, HHV6 and mycoplasm high numbers? If he relapses from stopping treatment too early, we loose a lot of tuition, rent and have an unhappy son falling behind. His infection is now 20 years old.
Bea- thanks for the info. My son did a long stretch of malarone- 6 a day. I need to look into prescription ivermectin. I didn't know this was an option. My insurance has been very good to us!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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And unfortunately babesia is too serious an infection to leave to chance in my opinion. One of my biggest regrets is not treating hubby more aggressively for babesia during the first 10 years of his illness. The longer you are infected the harder it is to treat in my opinion.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Thanks Bea. I am so sorry about your husband!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
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